Arachnoiditis: Looking to talk with others

Thank You don, not a cry, tears. Please don't do anything that your gut tells you no. Thank God you are in the beginning stages. You now know the more you may have done the more it gets worse. Mayo Dr. said no Stim. he is right. When a stimulator is implanted the more lamina is removed. I wish my NJ congressmen, Senators would have just invited me to meet with them. Medical Community is strong and protected. I have had cancer. "HAD" Third strike out is ONLY for baseball. Hope you are going out this evening. If yes, HAVE FUN!

Hi. I am so sorry for your loss! I know what it is to want to write to the DC doctor who permanently altered your life. I want yo also but I am afraid that it will get out and some of my other doctors will drop me. They are all in a cya club together.

The oil with equal parts thc and cbd is very helpful for me. I take gummies at night to sleep. They help too

How are you getting the THC oil? I know how to get smoke but I can't get the oil that I know of.

I'm sorry for a BIG spelling error, I meant to say, "I can't rid myself of the anger for that first surgeon" I was always a spontaneous person, I my husband said, lets go, I ran. So much fun! He's at the Giants Game today, I could't go. He deservers to go to relax, laugh with friends and free for a day! Started a 1 EST.

I found a Neurological group an hour, half from here. Calling tomorrow for an appt. I will Not mention AA. I will say Spine Pain. Afraid if told the truth they won't see me happened before. How are you feeling?

That was smart of you not to mention the AA.

I am not sure what state you live in. I live in Illinois where AA is one of the qualifying conditions for a medical marajuana card. I get it from a medical marajuana dispensary where there are doctors and pharmacists that are specialized in this type of treatment. It has really given me a little bit of my life back. I can actually sleep now.

Hello arannek72, What is the cya club? A dr. at Johns Hopkins, Ablations 2, made my nerves, spine worse. I contacted Administration!! I had the paper work emailing that dr. and I back and forth, I usually save all medical correspondence, I can't find it dropped the Administration, my proof ?????? So much has been said about these drs, can't get it out to the public!!!!

I hope you never, never get to this point. At least you are being treated I had none only pain Management and not one Radiologist read the MRI with a fine tooth comb. I read they have to by a famous dr. I can not think of his name darn it. Also, hard to read with the medal in the way. 4 walls closing in today. I'm sorry. Have a good evening.

I'm sorry, oops, reply was for Don.