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Arachnoiditis: Looking to talk with others

Posted by arannek72 @arannek72, Jul 3, 2018

I just got diagnosed with arachnoiditis. The radiologist found it on my MRI. I have had 7 steroid injections and I fear that they have caused this chronic situation. My back is worse than it ever was.

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mike1831 | @mike1831 | Sep 7, 2025

I have 28 stairs from basement to bedroom and it's killing me.

No leg sreength.
To the person who had 7 injections, these Docs love those injections cuz they don't want to write narcs. Don't ever let those idiots near your back.

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larry68 | @larry68 | Sep 8, 2025
In reply to @mike1831 "I have 28 stairs from basement to bedroom and it's killing me. No leg sreength. To..." + (show)
Profile picture for mike1831 @mike1831

I have 28 stairs from basement to bedroom and it's killing me.

No leg sreength.
To the person who had 7 injections, these Docs love those injections cuz they don't want to write narcs. Don't ever let those idiots near your back.

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Why not your back?I get back injections every year for extreme back pain.

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uswpres1 | @uswpres1 | Sep 9, 2025

Is it possible for your hands to hurt and be stiff and sore from AA around the L3-L4 area?

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carolynhughes75 | @carolynhughes75 | Sep 9, 2025
In reply to @larry68 "Why not your back?I get back injections every year for extreme back pain." + (show)
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Why not your back?I get back injections every year for extreme back pain.

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Larry, you are setting yourself up for Adhesive Arachnoiditis. Read the medical research on how multiple injections and multiple back surgeries are linked to developing this. And let me tell you, it is very painful.

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larry68 | @larry68 | Sep 9, 2025
In reply to @carolynhughes75 "Larry, you are setting yourself up for Adhesive Arachnoiditis. Read the medical research on how multiple..." + (show)
Profile picture for carolynhughes75 @carolynhughes75

Larry, you are setting yourself up for Adhesive Arachnoiditis. Read the medical research on how multiple injections and multiple back surgeries are linked to developing this. And let me tell you, it is very painful.

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So what are my options?I am building our house and doing a lot of strenuous work.

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vijay26 | @vijay26 | Feb 2 6:15pm
In reply to @donfeld "Do you know how to get its handbook from Doctor Tennant? I can't seem to find..." + (show)
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Do you know how to get its handbook from Doctor Tennant? I can't seem to find them but I am using some of his formulas and ideas and I'm feeling a lot better. Just diagnosed with it about 4 weeks ago. Mayo is not giving me any help and all they recommend is a stimulator and I'm only on stage one. What doctor tells me it's not going to get that bed but it doesn't tell me how to prevent it. You know of insurance companies pay for AA treatment as I'm getting some feedback from the Mayo that having problem with the provider? Thanks Don Feldman

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@donfeld
Amazon might have it. Or try Kindle.
Does the stimulator work for you?
I have all symptoms of Arachnoiditis and it is hard to find a Dr that my insurance would cover in IL.
When you say pump, what medicine is good in it? I am on Diluadid. It is not helping my pain.
Morphine was discontinued, because of its addictive nature.
What should I do for pain?
Please reply. Thank you.
VJ
Is it a disease or a condition?

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