Appointment Rescheduled

Welcome, @azcurlygirl. How disappointing to be ready for an appointment and have it cancelled. Seeing results come in can be concerning. Is your appointment at Mayo Clinic? What condition is being investigated?

Thank you:)

My appointment is at Mayo Clinic and I have small vessel disease. I’m 4 months post op from my second open heart surgery.

@azcurlygirl, I recommend contacting cardiology to inquire about the change in appointment. It is possible that additional investigation is required. Best to ask directly rather than guessing.

I'm tagging a few fellow Mayo heart patients like @danab @karukgirl @phoenixpal @mercuryrose @jeanern01 to join the discussion.

You may wish to connect with others talking about small vessel disease and open heart surgery in this related discussions:
https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/?search=small%20vessel&index=discussions
https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/?search=open%20heart&index=discussions
I'm confident your experiences with surgery and recovery would be helpful to others.

Welcome to Mayo Connect @azcurlygirl ,
I agree 100% with @colleenyoung, I would call the cardiology department and ask. I would also use the patient portal to get a message to your team. The are very responsive in my experience and you will get the answers you are looking for. You mention your appointment is at the Mayo Clinic, is it Rochester, MN? Is this where you had your open heart surgery?
May I ask, did you have surgery for small vessel disease?
Nobody wants open heart surgery, and most certainly nobody wants to go through it again!! Yikes!
I know you must be concerned about seeing some of the results coming back with abnormalities, so to ease your anxious thoughts, contact the cardiology clinic as soon as you can.
I hope you come back and let us know how things are...

Hello 🙂
My appointments are in Phx/Scottsdale. My surgeries were both at Banner Boswell Hospital in Arizona. I had a single coronary artery bypass and then my most recent surgery was a redo of the first bypass. The initial bypass failed and somehow grew into my chest wall.

Oh my goodness! Well, let me share my opinion with you regarding the Mayo Clinic...they are the most amazing healthcare organization in the World! But I may be slightly biased.
I had open heart surgery at Mayo Rochester (affectionately known by some as "The Mothership". I had been misdiagnosed by my local cardiologist with four, maybe five different heart conditions, one of which was small vessel disease. To make the story longer (!) I was finally told by my local guy that I had a very rare condition called sub-aortic membrane and needed open heart surgery right away. If it was so rare, I thought, how many had the local heart surgeon done? I asked to be referred to Mayo and they said I had Hypertrophic Cardiomyopathy, obstructed. Never heard of it. Barely could spell it. I actually ended up needing to have open heart surgery, but I knew I was in the right place and relief flooded my thoughts.
I can't imagine having to have a re-do of a re-do! No wonder you are on pins and needles.
But rest assured...you are in the best place in the world with the top doctors in the world.
I am sorry you have to wait until August, but it's practically here! Are you close to the Mayo campus? I bet it's HOT there in August!

Oh my goodness Debra, you have no idea how much hope you have given me! My cardiologist (not Mayo) told me a couple months ago that I had small vessel disease and there was nothing more they could do for me. He told me to just wake up and be positive every morning and chose to live a long life. I pray that the doctors at Mayo are able to get to the root cause of my cardiac problems. My health is quickly declining and this is definitely helping me stay positive!

Ps… yep… it’s terribly hot here lol!

I am so glad you are on board with the Mayo Clinic now! And I am so glad you found Connect. I know from experience that a lot of times we get thrown into heart disease categories that we may not have because it's not the garden variety heart disease the doctors are used to dealing with.
You know what my doctor told me after the small vessel disease diagnosis? He said drink more water. Drink more water? I am not much of a water drinker, but I could not imagine how that would help stop the chest pain and shortness of breath. Oh, and it didn't help! And I also kept getting worse.
Boy oh boy! I hope you keep me posted on your journey.
When I first joined Connect I stalked the groups and read all I could. I not only learned a lot, but when I first posted, I felt like I had met friends I didn't know I needed. It brought comfort to know I could reach out and someone would hold my hand virtually.
And we are hair twins! I have curly hair too. Wish I had a nickel for every time I heard how lucky I was to have such curly hair!! 🙂

It would be disconcerting, to me personally, to be informed, or told directly by the relevant office, of a delay or postponement of an important meeting if no reason were offered. That said, there are numerous possibilities:

a. a more urgent case than yours simply had to be put in the soonest possible moment, and yours is the one deemed least urgent of all current caseload;
b. The physician has learned that he/she will have to be away that day due to unforeseen circumstances beyond their control; and
c. The physician is receiving real-time diagnoses about you and it is looking like you will need an other diagnostic that can't be scheduled soon, or may possibly, OR where the new information means you need to follow a new regimen for a few weeks before he sees you, has made the change necessary.

There can be other reasons, but you get the idea. At the very least, though, you get some level of courtesy, and you should have a level of informed consent to the change.