Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@anniejam

is there a bus from minneapolis airport to mayos in Rochester?

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Hello @anniejam

There is a shuttle that runs fairly regularly from the airport to Rochester, Minnesota, and to all of the major hotels there. Here is the website to the shuttle service I used the last time I was at Mayo. https://groometransportation.com/minneapolis-st-paul-airport/rochester/?

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is there a bus from minneapolis airport to mayos in Rochester?

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I am not aware of pain with my .AAA

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Hello Kanaaz. I just have a little question. Does anyone with the ascending aortic aneurysm get chest pain from it? I see my cardiologist next month. He is managing my cardiac spasm from endothelial dysfunction. I have a 4.2 aortic enlargement in addition to the spasm. I have been having an uptick in chest pain and a change in pattern of the pain, which is why he scheduled me earlier for my checkup. I deal with low blood pressure, especially at night. I have made life style changes in order to keep active and live my life. But the pain can be incapacitating at times, which gets in the way. I always take a partner now when I go out, for example. So does anyone get pain from their aneurysm. How do I interpret this without overreacting? Thanks for any info on other people’s experiences.

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@ccubed

An aneurysm is usually defined as an outer aortic diameter over 3 cm (normal diameter of the aorta is around 2 cm), or more than 50% of normal diameter. If the outer diameter exceeds 5.5 cm, the aneurysm is considered to be large.

There is usually a determined size when something needs to be done. Abdominal over 6cm. The most important thing for you is to have a dr that you trust and try to know that you are being watched by someone in that specialty.

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That is the information I have as well. Thanks for sharing

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@amiscott32

I am a 32 year old female. Previous smoker but no other predispositions. I have a AAA and was hoping someone could give me some advice. My symptoms are getting worse but not sure that everything is related. Along with the strong throbbing in my stomach I’m also having back pain. I have a purple spot on the back of my right calf. A huge vein sticking out on my right thigh. Tightness on the left side of my neck. And constantly low blood pressure. Are all or some of these related? Please help!! Thanks in advance.

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I believe they are all related and you need to see a cardiologist

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@wittmack

We will look into the specialist, however I have ataxia that is progressing, possible EDS therefor don’t heal well. Many other complications make me hesitant to even think about another surgery.

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I understand your hesitation about additional surgery. I wish you well.

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@degarden_girl

I think your first questions should center around how to find an outstanding cardiologist. An ascending aortic aneurysm should be evaluated and monitored by a specialist. A specialist will perhaps refer you to a vascular surgeon for evaluation. You want to do this now so you know and are feeling confident in your medical team, well in advance of your need to have surgery. I wish you good luck and good health.

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We will look into the specialist, however I have ataxia that is progressing, possible EDS therefor don’t heal well. Many other complications make me hesitant to even think about another surgery.

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@hopeful33250

Hello @hollywoodal, I would also like to welcome you to Mayo Connect. You have mentioned taking 12.5 mg twice a day, but I'm not sure what medication you are referring to. Can you explain more? It sounds like it is helpful to you in that you notice a feeling better after a couple of hours of taking the med. I would be interested in knowing more about this drug.

I can understand your problems with Metoprolol. My response to that was tough, to say the least. My cardiologist switched me to Atenolol, much better!

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Atenolol. It was not feeling better it was worse. Brain fog, balance problems, vision problems, dizziness. I have a new doctor and I am now off of the atenolol. I'm taking Elipulse the last 10 days. It's a product sold in Canada. It does not have all the side effects.

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@wittmack

Thank you for posting this conversation as I meet with my pcp on Friday to discuss options since my ascending thoracic aorta aneurysm now measures 5.0 cm. What are the questions I should be asking? Thank you

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I think your first questions should center around how to find an outstanding cardiologist. An ascending aortic aneurysm should be evaluated and monitored by a specialist. A specialist will perhaps refer you to a vascular surgeon for evaluation. You want to do this now so you know and are feeling confident in your medical team, well in advance of your need to have surgery. I wish you good luck and good health.

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