Aortic Aneurysms – Introduce yourself & meet others

Hi everyone,
I had an open AAA procedure about 3 months ago which was successful but i am now experiencing frequent discomfort in my right buttock
Whilst I was told this could happen post surgery due to possible ‘clot residue’ in the blood vessels, i wasn’t given any advice on what if anything can be done to alleviate this condition.
Anyone ??

I completely understand , I have BAV and I’ve encouraged both my boys to be screened for bicupsid valve and aneurysm . I’ve had weird things happening so I wanted to be screened for connective tissue disorders . Maybe once I finally get an appt with a cardiologist and will ask him. I wish you well and thanks for replying:)

I'm in the US. I'm getting the test because I asked for it and my cardiologist referred me. I want to know if what I have is genetic or not. If it is, I want to tell my kids. My son is 54, my daughter 47, and I believe they would benefit from knowing. It really has nothing to do with me. It's all about them.

I’m having a hard time getting referred for generic testing?? Are you in US or Canada ? My surgeon feels it’s not necessary??

Thank you for sharing your experience with AA. My doctor has not suggested surgery at this time. I think I will ask him at my next appointment what is best for me. I planned this trip before I was diagnosed. Best wishes. Susan

Thank you for your response.
Susan

I dissected completely at age 50 in 2015. I survived because I was in the middle of downtown San Diego when it happened, an ambulance arrived within 2 minutes, and I was only 5 miles away from the best cardiac emergency care center in California. I would never consider flying with your condition if my doctor was recommending that I have surgery. But, that's your decision. An aneurysm is like the bulge in the side of your left front tire. Do you want to go on a long trip into the desert on that tire and take the risk that it will blow out? Or would you rather get it fixed and travel safely? There is no one answer for everyone. It's about what level of risk you would be comfortable with.

But, I can tell you from having suffered a sudden and complete aortic dissection, after a long flight from Minneapolis to San Diego, then a day in 113F in the Anza Borrego Desert, followed by two long days teaching a seminar, that I would not risk my life again like that. If I had been in the air at the time I dissected, we wouldn't be having this exchange. That said, I just got back last night from a 3 hour plane ride back from DC and it went great. I also have a 13" long Dacron Aortic Graft inside of me that keeps alive. I am so very thankful for every day I have. Peace.

Hi, I'm 76 with a 4.6 cm AA. During my last checkup with my Cardiologist, I specifically asked if I could fly to Europe. She said yes, but to wear compression socks and walk during long flights

Hi my name is Susan and I am 68 years old. I was diagnosed with the condition this spring after not being able to get over a cough, had a chest X-ray and it showed the I had a 4.4 centimeters. CT scans confirmed I had 3 aortic anorisms. I was shocked! I have a question, did anyone ever ask if its ok to fly with this condition?

I’m coming up on my 2year anniversary of my triple A dissection type B. My name is Elle 59yrs
I only take BP med to control BP. The dissection has caused my life to change Bigtime!! It’s slowed me down so much that I’ve had a hard time dealing with the slow down. I don’t like feeling this way.