Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@dixiemisty

Hi, I scheduled for genetic testing since my father and brother both had aneurysms. Don't totally understand it.

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I didn’t realize there was a genetic test for this. Can you elaborate please? Is it specifically for this? My father and brother both had aortic aneurysms but in the abdomen. My brother passed away on the operating table he was unaware he had it. My dad’s had a slow leak he had a 15 hour operation. He made it through but was never the same.

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Hi, I quess the only way they know is with family history of aneurysms like parents and and siblings or genetic testing for a certain gene. It won't help us bus good info for our kids . Good talking to you.

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@dixiemisty

Hi, Dr's told me basically the same as you. Mine is 4.2 cm and suggested surgery at 4.8 cm since I'm only 5 foot tall.

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Yeah all the cardiologists I've had over the last two decades have told me that once it gets over 5.0 to consider surgery but there are risk factors with that. I just try to keep my blood pressure down and I can't do any aerobics or anything that gets my heart rate up above about 140 beats a minute because it does them put pressure on the aneurysm.

I posted the other day about my aneurysm and about the doctor saying it's hereditary and I was hoping somebody else would have commented back to me regarding that matter because it's strange that an aneurysm would be hereditary and how would they know that anyhow? I never got anybody to respond back about that issue.

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Hi, Dr's told me basically the same as you. Mine is 4.2 cm and suggested surgery at 4.8 cm since I'm only 5 foot tall.

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I was diagnosed with a ascending aortic aneurysm when I was 27 years old after a echocardiogram found this aneurysm. I've had a history of a irregular heartbeat since I've been 24 but I never thought I'd have a aneurysm.
All cardiologists state my aneurysm is a hereditary in nature.

My aneurysm size has remained at a 4.1 for several years now.

I have limits to lifting anything heavy, any exercises that put my heart rate above 140 and even rides that have a G force to them I've been told to not ride on.

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@tazzy

I have chronic pain in my chest since those surgeries. The best guess from my doctors is that major scar tissue is causing the pain. I’ve tried a few things to see if I can stop this pain (medication, acupuncture, cortisone injections, lidocaine patch) but so far nothing has helped much. Curious if anyone else has experienced chronic pain after surgery(ies).

In addition, my aneurysm was caused due to a genetic marker HLAB 27. Does anyone else have this?

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Hi, I scheduled for genetic testing since my father and brother both had aneurysms. Don't totally understand it.

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@franip

I am sorry, I didn't think of listing my symotoms in my original post. I am noticing a greater level of fatigue and shortness of breath. Now i'm not sure if that is related to my age, slight weight gain or my medical condition. I have a physical coming up and i will discuss these issues at that time. I will give an update after my exam on July 12th. Thank you for your interest.

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Hello @franip

I just wanted to check in with you as you had mentioned that you were going to have a physical in July and you were going to mention your symptoms to the doctor.

Did your doctor think that these symptoms might be related to the aortic aneurysm?

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@avw

Has anyone had an ankle aneurysm?

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Welcome AVW, can you explain a bit more about your aneurysm? Was this a sports injury?

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@hopeful33250

Hello @franip and welcome to Mayo Clinic Connect. What a great photo of you! You look like a very engaged 80-year old who is enjoying life.

Most of us on Connect agree with your thought that this is a good place to post about our health conditions without the fear of people telling us we are complaining. We do have concerns when our health problems are mounting and it is often hard to tell where one problem ends and another begins.

As you are posting specifically about your 4.2 aortic aneurysm, I am sure that other members with this condition will post in response to you. In the meantime, however, I'm wondering what symptoms you are currently having and if your doctor has offered any treatment options.

Once again, welcome to Connect. I look forward to getting to know you better. Will you post again as you feel comfortable doing so?

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Could also be the medication your on

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Has anyone had an ankle aneurysm?

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