Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

My AAA is 4.1 cm both my Primary and Cardiologist just said that I need to be checked again at the end of this year. Neither doctor said to stop exercising actually they encourage it. Both doctors know that I do not lift heavy weights I use mostly machines and never more than 15 lbs. I do a lot of cardio and they said that was OK. Basically told me to keep my BP at 130/80 or below and to make sure I take my Cholesterol meds they want my LDL below 70. I try not to focus on it too much it's in the back of my mind but I will not let this take over my life. If I follow my doctors orders I believe I will be alright. I am told that these are typically not fast growing and some remain the same size for a very long time and never need to be repaired. They also told me the risk factor for the size I have for rupture is < 1% that is why they just check it annually

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Hi my names is Doug! Great posts and helpful information. I have a 4.2 ascending aneurysm, RV dilation, and regurgitation in my heart. Newly diagnosed,trying to deal with the info. Feeling a bit overwhelmed!

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I have accidently diagnosed with Ascending Aortic Aneurysm through a CT test in December 2023. Post TEE test confirmed that I have bicuspid valve as well. My ascending aorta size in CT scan is define as 4.4 X 4.5. I am 50 years of age and overall healthy with daily workout (Aerobic exercises). I do not know of anyone in my family with this condition from genetics perspective. Cardiologist asked for another CT scan in 6 months to see the growth rate and define next steps.

My BP remains in overall good control (AVG 125/83).

1. Anyone have similar experience and how fast that Aorta size will increase over time?
2. Once this size becomes 5.5 and surgery is the only option, what are the risk for 50 year old male?
3. Is there anything I can do that can help reduce or eliminate this speed of Aorta growth?

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No family history. I went through the risk factors with the heart specialist (head of thoracic surgery and a major university hospital) and do not fit any except elevated blood pressure that was treated and still is. I was exercising a lot (road biking) that I have now stopped. I have lost weight, my blood pressure is lower (still take meds) and walk instead. I am basically doing all I can and hope it stays stable. If not I have a plan in place where to go and have the surgery done if/when it is needed.

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@23997929

As noted by many others you are not close to requiring surgery. It seems that is when you go to 5 cm or over. I am also at 4.2 and found out at 4.0 cm 2-1/2 years ago. I also got very worried when I found out but after seeing heart specialists who have experience in treating the condition, I found out it is important to be checked at least annually to monitor the rate of increase, keeping heart rate low, blood pressure below 120 and no heavy lifting or strenuous activities. A lot of good information in this blog by many others.

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Do you have a family history??? My father and grandfather both had aneurysms . Dr finally got a hold of me and said he was going to run a couple more tests , to check on the suspicion of a bicuspid valve ?? My BP is good , I do exercise and wonder how much weight is too much ?? But I feel like my emotions have settled since first finding out last week ! Thanks for the reply !!! 🙂

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@glendamn

Hi , My name is Glenda and I'm 59. Just got results for a CT scan for something completely unrelated. It seems I have a 4.2 cm Ascending Aorta Aneurysm. Completely took me by surprise. My father and grandfather both had aneurysm's , so I guess its a generic thing. the CT scan suspects bicupsid valve? so I guess some tests will have to be run?? Just waiting for my family doctor to be back in the office, and trying not to panic..

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As noted by many others you are not close to requiring surgery. It seems that is when you go to 5 cm or over. I am also at 4.2 and found out at 4.0 cm 2-1/2 years ago. I also got very worried when I found out but after seeing heart specialists who have experience in treating the condition, I found out it is important to be checked at least annually to monitor the rate of increase, keeping heart rate low, blood pressure below 120 and no heavy lifting or strenuous activities. A lot of good information in this blog by many others.

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@Drew944

Hi feel down too and try to keep my self up- I’m 48 and felt palpitations on and off since I was 8. I have 2 daughters 3 and 5. A 4.3 aneurysm was found incidentally 6/2018. Been depressed and scared since. I just wanted to share all the positive notes I have been taking to help make my self feel better which sometimes helps:
I wil be fine
Managed/Monitored.
no treatment needed
try not to worry about it
based on size - not dangerous - may never grow larger- keep bp low as it is-mine small-enlarged will be fixed if ever grows-routine
small/stable
no treatment needed-no surgercal indication now or ever only requires observation
no limitations other than bench/heavy weights
can live entire lives with this size and nothing happening
treatable when small - repairable when larger - there is a fix - monitored - most important.
gradual
too small - not a prob
many years checking - not now
keep fit
live and let live
keep up w apts
listen to dr's
repair rate high ie 98% - Full Recovery - Excellent They do millions of these
prob- 10 years - maybe more or ever- out repair - maybe new meds or non/minimaly-invasive fix's
stop thinking about it Dont do this to myself
file under all other worries u dont think of.

STAY POSITIVE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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So true and appreciate this since staying positive will be important.

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Oh my goodness, DON'T Panic! 4.2 is considered quite small for an aortic aneurysm. Just relax, get recommendations for a good cardiologist as you will likely be monitored every 6 months to assure the aneurysm remains stable. Mine has remained quite small for 15 years although it has grown slightly to the 4.2 size. Your doc will give you recommendations to keep the size stable.

I wish you good luck.

Donna

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@glendamn

Hi , My name is Glenda and I'm 59. Just got results for a CT scan for something completely unrelated. It seems I have a 4.2 cm Ascending Aorta Aneurysm. Completely took me by surprise. My father and grandfather both had aneurysm's , so I guess its a generic thing. the CT scan suspects bicupsid valve? so I guess some tests will have to be run?? Just waiting for my family doctor to be back in the office, and trying not to panic..

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You should be OK at 4.2 just take it easy u til you get to the Doctor.

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