Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

I have an AAA. It's at a 3.7 . I'm scared. I am 59 years old. I don't understand why they won't do surgery until it measure a 5 cm. They told me because the surgery is so risky. Can someone address this issue?

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@raylo32

I have several cardiac things going on so I might as well post here. I am 71 yo male and have been a life long serious athlete, runner, swimmer, and the last couple decades cyclist. I had creeping LDL cholesterol due to family history that I somewhat arrogantly believed was not an issue due to my constant exercising. Silly me. It finally got high enough that the doc recommended a statin which I agreed I needed. A few years after starting that we did a calcium scan that came back 1000! So now I am on Crestor and Zetia trying to keep LDL as low as possible. But it all leaves me wondering if I should push to get an angiogram to see exactly how bad my CAD is.

As a side finding an echocardiogram found that I have an aortic root enlargement, I believe 4.0 or 4.1. Doc was initially concerned about my BP but my systolic is consistently 120-133 or so, so that seems OK and he did not prescribe any BP meds. As another side finding, I have a first grade AV block, cause unknown. The doc did a stress test with isotope contrast and said there was "some scarring" visible, possibly from an extended case of Lyme disease I had back in the early 2000s. But who knows.

Meanwhile I continue to do everything same as always with no restrictions... ride my bikes indoors and outdoors, some light weight lifting, pushups, etc., but I am not sure how long that will last. I am due for a follow up echo in a couple of weeks to check the status of my aorta again.

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Hi Raylo32
Re the CAC score a friend of mine scored 1,200+ but her angio showed 20-30 % blockages so the plaque was mostly dispersed throughout her arteries so not so bad at her age of 64. Same with me at age 65 my CAC was 488 and the follow up non invasive Angiogram showed minimal build up in all arteries but also showed the total plaque at 337!! Doing the Angio is the best thing to do to get a better idea. My ascending is 4.4 so like you it will be a “watchful waiting” process (I’m on a 12 month checkup cycle).

I loved you comment about “arrogance” - that is soooo true - I reckon since the age of 60 my arrogance / ego has been downsized to the point now where I’m eternally grateful just to wake up in the mornings. Best of luck from “Down Under”.

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I have several cardiac things going on so I might as well post here. I am 71 yo male and have been a life long serious athlete, runner, swimmer, and the last couple decades cyclist. I had creeping LDL cholesterol due to family history that I somewhat arrogantly believed was not an issue due to my constant exercising. Silly me. It finally got high enough that the doc recommended a statin which I agreed I needed. A few years after starting that we did a calcium scan that came back 1000! So now I am on Crestor and Zetia trying to keep LDL as low as possible. But it all leaves me wondering if I should push to get an angiogram to see exactly how bad my CAD is.

As a side finding an echocardiogram found that I have an aortic root enlargement, I believe 4.0 or 4.1. Doc was initially concerned about my BP but my systolic is consistently 120-133 or so, so that seems OK and he did not prescribe any BP meds. As another side finding, I have a first grade AV block, cause unknown. The doc did a stress test with isotope contrast and said there was "some scarring" visible, possibly from an extended case of Lyme disease I had back in the early 2000s. But who knows.

Meanwhile I continue to do everything same as always with no restrictions... ride my bikes indoors and outdoors, some light weight lifting, pushups, etc., but I am not sure how long that will last. I am due for a follow up echo in a couple of weeks to check the status of my aorta again.

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I am age 78 . I am concerned about being older and facing open heart stent repair for ascending aortic aneurysm. What have been your experierences post surgery?

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@moonboy

You're going to be fine. Generally surgery is not implicated until you reached 5.0 cm. You are going to want to keep your weight down your blood pressure down and no smoking or heavy drinking. You'll see your doctor next week and everything will be just fine. I had a complete aortic dissection in 2015 that I survived. I get annual CT scans with contrast of my aorta and other vasculature and mine is typically 4.1 to 4.2 cm after open heart surgery to repair it. I am still here after 10 years and thankful for every day. You'll be just fine because you know you have an issue and you can deal with it in an orderly fashion, as opposed to an emergent fashion like I had to. Just meet with your medical team and follow their careful advice. They're watching out for you and you're going to be OK. Peace and have a relaxing holiday.

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Thank you, Moonboy, for responding. I am a bundle of nerves right now with upset stomach and stuff. I eat healthy, am active, and blood pressure and weight is good. Only other problem that I know I have is Alpha-gal allergy (caused by Lone Star tick, and I can't have any meat from an animal with a hoof). I have been retired for 12 years from an office job, and since then, my best friend and I have been packing for a moving company, and I also volunteer at our local historical society's consignment shop. I am lifting heavy boxes and moving heavy furniture all the time. Probably lifting more weight than a lot of guys! So, are you limited to what you can lift?

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You're going to be fine. Generally surgery is not implicated until you reached 5.0 cm. You are going to want to keep your weight down your blood pressure down and no smoking or heavy drinking. You'll see your doctor next week and everything will be just fine. I had a complete aortic dissection in 2015 that I survived. I get annual CT scans with contrast of my aorta and other vasculature and mine is typically 4.1 to 4.2 cm after open heart surgery to repair it. I am still here after 10 years and thankful for every day. You'll be just fine because you know you have an issue and you can deal with it in an orderly fashion, as opposed to an emergent fashion like I had to. Just meet with your medical team and follow their careful advice. They're watching out for you and you're going to be OK. Peace and have a relaxing holiday.

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Hi. I had a CT scan to see about cholesterol last week, and I just saw the results. I am so worried, because under "Other Observations" it says "Ascending thoracic aorta measures 4.0cm dia. and is borderline aneurysmal." I sent my cardiologist a message--he'll be in on Monday. Back in December of 2014, I was diagnosed with a Myxoma (tumor) inside my heart at age 58. That was the scarest thing that had ever happened to me. I had open-heart surgery in Feb. of 2015, and I had no cholesterol or any other problems. Now, ten years later, I have high cholesterol, which can be controlled. But I am so worried and scared about this borderline aneurysmal. I think it will help me to connect with others who have this.

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@jpbrickman

thanks for responding, I have been to a cariologist here who basicly told me don,t lift over 30 pounds and do another 6 months. I just had my 6 month scan and it showed a growth from 4.0 to 5.0 which he stated was accepable for me and do another scan in 6 months. I had to message them back and ask if they scheduled me or do I need to do it myself. They responded that they could it for me if I wished. Seems a bit lax to me and wonder how to set up a second opinion at one of the bigtime medical centers in Seattle or Spokane. NNot sure if medicare pays for second opinion or not

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that growth was 4.9 to 5.0

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@pamela78

My suggestion, for what it's worth, is to have your GP refer you to a cardiologist. Presumably he or she will recommend a bunch of tests to get a clearer picture of your heart. I assume that would include a CT scan. Don't worry about the cost. If Medicare doesn't cover something, throw yourself on their mercy. We all deserve good care. You could probably go straight to the big time center, but you might want to do a little research first to find out who the best surgeons are. I'm learning all this from this group here, so stick around. It'll help.

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thanks for responding, I have been to a cariologist here who basicly told me don,t lift over 30 pounds and do another 6 months. I just had my 6 month scan and it showed a growth from 4.0 to 5.0 which he stated was accepable for me and do another scan in 6 months. I had to message them back and ask if they scheduled me or do I need to do it myself. They responded that they could it for me if I wished. Seems a bit lax to me and wonder how to set up a second opinion at one of the bigtime medical centers in Seattle or Spokane. NNot sure if medicare pays for second opinion or not

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@jpbrickman

Hello all , I am 69 years old anddiagnosed withaortic aneursm 6 months agoduring a routine lung scan. It was 4.9 now 6 months later is 5.0. I am hoping to get better at proper lifting, bending ect. will improve and will have better results next time. My question is ,if I seek a second opinion, will medicare cover it? I live in centeral Wa so am relativly close to some bigtime medical centers. will my Dr have to set up the visit or do I?

Jump to this post

My suggestion, for what it's worth, is to have your GP refer you to a cardiologist. Presumably he or she will recommend a bunch of tests to get a clearer picture of your heart. I assume that would include a CT scan. Don't worry about the cost. If Medicare doesn't cover something, throw yourself on their mercy. We all deserve good care. You could probably go straight to the big time center, but you might want to do a little research first to find out who the best surgeons are. I'm learning all this from this group here, so stick around. It'll help.

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