anyone use compression sleeves on their calves?

Posted by notborntoburn @notborntoburn, Jun 7, 2019

Hi
Just curious if compression sleeves could hurt or harm the burn and cramping from neuropathy,non diabetic.
I asked the last Dr. who performed my last EMG who discovered this study and just how they decided when they had enough data to quit with the electrical jolts! We all know how medical discoveries happen and for the most part are thankful and even agree to be part of trials to keeps hope and knowledge advancing but pain to help ease pain is a hard door to walk through,I am glad for all the encouragement from this group. Thanks

Hi @notborntoburn — I was diagnosed with lymphedema a little over a year ago and the treatment is wearing 20 to 30 mg knee high compression stockings. I've also had small fiber peripheral neuropathy for 20+ years but wasn't diagnosed until 2016. I only have numbness with my neuropathy so can't speak to the burn feeling. I can tell you I don't like wearing them but they do keep the swelling in my legs down so they are doing what they are supposed to do. They are uncomfortable and by the end of the day it definitely feels better to take them off.

Do you know the name of the study and where it is located?

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Glad you are feeling encouraged by other members in Mayo Clinic Connect, @notborntoburn. I see that you have connected with @johnbishop, and I'd also like you to get some input from other members who've talked about neuropathy to see if they have input on whether compression sleeves could hurt or harm the burn and cramping from nondiabetic neuropathy, like @artscaping @jenniferhunter @grandmar @qball2019.

Is the burning and cramping feeling you mentioned pretty constant, or does it come and go?

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Constant, the burn just keeps burning sometimes it is more intense and I just don't know why,food,water,drugs,shoes,walk,stand,sit,the burn is there!!

Liked by Lisa Lucier

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@notborntoburn

Constant, the burn just keeps burning sometimes it is more intense and I just don't know why,food,water,drugs,shoes,walk,stand,sit,the burn is there!!

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@notborntoburn, @lisalucier Good afternoon. First a question….is the "burn" just in your calves? Unfortunately, mine covers my entire abdomen and sometimes reaches up to my ribcage and down through the pelvic area and top of my legs. I only wear a compression quizmo on my knee when I have to walk much farther than to my car. Standing increases the burn in the knee. So, I look for a chair anywhere I go. With regular Myofascial Release massage (MFR) on the knee, the abdomen, and the pelvic area, I have less burn during the day. I seldom have the 5:30 am burn that used to wake me up every day. I did have it this morning but that is unusual so I have to reflect on my bedtime medications and my daytime activities yesterday. Usually, I wake about 8 and lie in bed reading the news until 9:30 so that the burn can recede and I can begin my day. If I do get up earlier I pay the price and my daytime activities are limited. So….now the nighttime meds…… gabapentin, nortriptyline, and medical marijuana, including a 3:1 topical and a 2:1 tincture. During the day, duloxetine for anxiety about the pain and medical marijuana to keep it at bay (both tincture and topical). This is where I am today….and it has been a journey….with changes in the pain, its intensity, and location and in the medications I find helpful as new ones are tried or become available to try. Hope this helps. The resident expert for MFR is @jenniferhunter. Perhaps she can offer you some other options or reinforce my interpretations better. Be safe today and free of suffering. Chris

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