Anyone use Budesonide inhalation with good results?

Posted by noisylungs31 @noisylungs31, Nov 13 10:15am

Diagnosed with asthma in 2019. Have been using inhalation saline 3% and cromolyn sodium with some success to relieve mucus buildup, coughing, and wheezing. Now the good effects appear to have worn off. I am severely sensitive to steroids and resort to Flovent only when wheezing gets so noisy, it keeps me awake. Lately, I wake up around 5 am congested, with breathing difficulty. I get up and sit upright. Seems like my meds inhaled before bedtime have worn off.
I wondered if Budesonide might help. I have some on hand to use.
Anybody here use it with good results?

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Sue, Volunteer Mentor | @sueinmn | 6 days ago

In reply to @km6 "@sueinmn I have asthma with no wheezing but a bad cough. I have COPD, sob, emphysema..." + (show)

@km6 Wow, I would be feeling overwhelmed as well. Are you being seen at a lung specialty center? They are accustomed to treating complex cases in a way that a general pulmonologist is not. Here are lists of the centers identified so far:
https://connect.mayoclinic.org/discussion/the-bronchiectasis-care-center-network-33-centers/
And an additional list just released yesterday:
https://connect.mayoclinic.org/discussion/new-bronchiectasis-centers-announced/

km6 | @km6 | 6 days ago

In reply to @sueinmn "@jwool89 Budesonide is an inhaled corticosteroid.If you are sensitive, pleas call your doctor before trying it." + (show)

@sueinmn I have asthma with no wheezing but a bad cough. I have COPD, sob, emphysema and bronchiectasis and possible Mac. I have been on trelegy for years. I'm usually on prednisone 2 to 3 times a year, which is really starting to have some pretty bad side effects, high sugar, high blood pressure, terrible headaches. I just got switched to Breztri which does nothing for me. Went back on Trelegy
I neb levabuterol, sometimes budesonide and 3% saline. I have a constant nonproductive cough.
I am at my wits end.
Not long ago, I had a very severe reaction to someone cooking a lot of garlic. ( I cannot eat it.)
I am sensitive to all scents, smoke, exhaust, etc.

noisylungs31 | @noisylungs31 | Nov 15 6:25pm

In reply to @ricktweld "@jwool89 i,m on medicare, so I don’t think those discounts and or grants apply to me." + (show)

That's correct. Most discounts from Pharma manufacturer aren't available to persons with insurance.

Yahoo Mail: Search, Organize, Conquer

ricktweld | @ricktweld | Nov 15 5:03pm

In reply to @jwool89 "@ricktweld Did you sign up for their discount program? We pay nothing for Dupixent. My daughter..." + (show)

@jwool89 i,m on medicare, so I don’t think those discounts and or grants apply to me.

ricktweld | @ricktweld | Nov 15 8:37am

In reply to @noisylungs31 "@ricktweld Thanks for your comments. What's your diagnosis?" + (show)

@noisylungs31 a couple of doctors call it asthma, and a pulmo nurse calls it copd. Sucks either way!

jwool89 | @jwool89 | Nov 15 8:06am

In reply to @ricktweld "@jwool89 Dupixent has been fantastic for me. 3 days after 1st dose, i felt better. After..." + (show)

@ricktweld Did you sign up for their discount program? We pay nothing for Dupixent. My daughter has done well on it for several months & I am dying to know if it helps prevent bacterial infections (the reason the Dr had her switch). She is a college athlete & picked up every virus last year making her really sick for several months. Dr. swears it will help. I tried one shot and got super inflamed with bad headaches also so I didn’t continue. But I have a neck injury & think I am atypical.

noisylungs31 | @noisylungs31 | Nov 15 7:49am

In reply to @sueinmn "@jwool89 Budesonide is an inhaled corticosteroid.If you are sensitive, pleas call your doctor before trying it." + (show)

@sueinmn
Thank you for your comment. Appreciate your taking time to moderate this blog!

noisylungs31 | @noisylungs31 | Nov 15 7:44am

In reply to @ricktweld "@jwool89 Dupixent has been fantastic for me. 3 days after 1st dose, i felt better. After..." + (show)

@ricktweld
Thanks for your comments. What's your diagnosis?

noisylungs31 | @noisylungs31 | Nov 15 7:42am

In reply to @budisnothome "I do duo nebs 2 or 3 times pet day. I got on astrazeneca free program..." + (show)

@budisnothome
Thanks, I'll check out the AstraZeneca offers.

ricktweld | @ricktweld | Nov 15 6:59am

In reply to @jwool89 "I have asthma, emphysema, & bronchiectasis. Have been inhaling Budesonide for years with success and it..." + (show)

@jwool89 Dupixent has been fantastic for me. 3 days after 1st dose, i felt better. After 2nd dose, no more wheezing. Will be taking 3rd dose on Thursday. Spo2 levels may have increased a little also. Only negative i have found is the cost.

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