Anyone treated for Bullous Pempigoid?

Posted by anc50 @anc50, Nov 27 12:59pm

I developed red itchy raised bumps in different parts of my body. One became a blister, healed and then returned so I saw a dermatologist who has prescribed Prednisone. I am very sensitive to pharmaceutical drugs which I metabolize quickly and get unpleasant side effects. Starting on 20 mg was way too much. Dose was reduced to 10 mg and itching reduced. I finished the short course. Waited a week and got a flu shot. Then was exposed to an emotional shocking situation and itching & bumps spread. Now on 5 days of 10 mg and then reducing to 5 mg. I am concerned about the effect on my Hashimotos, Intersticial cystitis, chronic constipation caused by medical trauma from past childbirth causing tears & nerve damage in rectal wall and now have bladder and uterine prolapses and a rectocele all of which make moving stool out difficult. I also live with chronic pain caused by a dental injury to my jaw joint making it impossible to chew on one side of my mouth. I eat a soft diet of puréed vegetables & other easy to eat foods. Many doctors have damaged me and only a small number have helped. For reference I am 75.

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After nearly 5 years on and off medrol the bullis prevails. Stress causes flaring; IVIG infusion did nothing. At times the itching keeps me awake most of the night. Still searching for relief.

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So sorry to hear of your suffering. You are not alone.Please explain what kind of infusion you had. This may help others. I hope you find relief.

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