Anyone taking PPIs?

Posted by wandafanda @wandafanda, Jan 30 9:31am

My pulmonologist and gastroenterologist both want me to continue on Rabeprazole for 6 more months after trying it for 3 months. I am resistant as there are long term side effects from taking PPIs . After I started taking it for reflux and possible aspiration from GERD in October there was dramatic decrease in coughing and mucus production. So I can’t argue with the fact that it is improving my quality of life. Has anyone else experienced this? I would like to try kelp which is a more natural way to reduce acid reflux. Anyone using it?

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Profile picture for blm1007blm1007 @blm1007blm1007

@dho75 For me I am constantly clearing my throat area by way of what I call gargling and sucking up what is in my throat because of the feeling of something clinging to the throat. I don't cough, what we consider a cough...what I do is to gargle/ draw it up or huff cough it up and out. I have been doing this for at least 4 years. So far no sore throat or hoarseness.

Before knowing about the wedge pillow and sleeping on ones left side, I slept on my back for ten years and I did wake up with a burning tongue and dry mouth frequently . I was breathing through my mouth at night rather than my nose. This is no longer happening. I take it it is because of my new sleeping position and taping my mouth closed with a small piece of sensitive skin tape (Nexcare 3M) secured on my facial skin above my lip and below my lip.
Any of this familiar.?
Thanks for your response.
Barbara

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@blm1007blm1007 have you been tested for sleep apnea? Sounds like you might have it (especially if you sleep on your back and also snore), and if you do indeed have it, taping your mouth shut is not a good idea!

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I also started taking PPI a weeks ago. But my understanding is that PPI help to reduce acidity They lower stomach acid, so when reflux happens, it’s less irritating to the stomach. But they don’t stop the physical backflow of stomach contents (reflux). So you can still have reflux.

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Profile picture for rashida @rashida

@blm1007blm1007 the major symptom of a hiatal hernia is heartburn due to reflux. Sometimes heartburn feels like a heart attack, other times just a burning sensation in the middle of the chest. Other times, regurgitation of food or acid in the stomach.

I was given a barium swallow test to diagnose the hiatal hernia. I have been taking Lansoprazole (generic of Prevacid) for many years now. I read a lot that PPIs should not be taken long term but for me it is a daily necessity in addition to sleeping with the head of my bed raised (I have an adjustable bed). If I don’t continue taking my PPI I run the risk of getting Barrett’s esophagus.

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@rashida Think I’m going to raise the head of the bed. I hate you have this as well.

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Profile picture for rashida @rashida

@blm1007blm1007 have you been tested for sleep apnea? Sounds like you might have it (especially if you sleep on your back and also snore), and if you do indeed have it, taping your mouth shut is not a good idea!

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@rashida Thanks for your responses.
Regarding the sleep apnea. I was told by at least two doctors I brought it up with, possibly having sleep apnea, they felt I did not have it, of course that was a clinical diagnosis. I would think that if NJH, National Jewish Hospital, thought I had it during my week's long testing period they would have suggested something for me. So, hope they were all right.
Barbara

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Profile picture for rashida @rashida

@blm1007blm1007 the major symptom of a hiatal hernia is heartburn due to reflux. Sometimes heartburn feels like a heart attack, other times just a burning sensation in the middle of the chest. Other times, regurgitation of food or acid in the stomach.

I was given a barium swallow test to diagnose the hiatal hernia. I have been taking Lansoprazole (generic of Prevacid) for many years now. I read a lot that PPIs should not be taken long term but for me it is a daily necessity in addition to sleeping with the head of my bed raised (I have an adjustable bed). If I don’t continue taking my PPI I run the risk of getting Barrett’s esophagus.

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@rashida That is the problem, or rather not the problem, and why it is so difficult for me in that I don't know why I continually have to clear my throat. Meaning is it just the mucus sitting there?????
I do not have any of the acid reflux symptoms. Including what is known as heartburn or a feeling of a heat attack. Glad I don't and lucky I don't. No regurgitation of food or the feeling of acid coming up.
Now when I am pulling mucus up an out I may have a tiny piece of food that might come up if it is right around the time I ate. Nothing like what I think regurgitation would be.
Thanks,
Barbara

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Profile picture for blm1007blm1007 @blm1007blm1007

@rashida That is the problem, or rather not the problem, and why it is so difficult for me in that I don't know why I continually have to clear my throat. Meaning is it just the mucus sitting there?????
I do not have any of the acid reflux symptoms. Including what is known as heartburn or a feeling of a heat attack. Glad I don't and lucky I don't. No regurgitation of food or the feeling of acid coming up.
Now when I am pulling mucus up an out I may have a tiny piece of food that might come up if it is right around the time I ate. Nothing like what I think regurgitation would be.
Thanks,
Barbara

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@blm1007blm1007 I guess the best way to know for sure would be to have a barium swallow … or an endoscopy …?

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Profile picture for blm1007blm1007 @blm1007blm1007

@rashida Thanks for your responses.
Regarding the sleep apnea. I was told by at least two doctors I brought it up with, possibly having sleep apnea, they felt I did not have it, of course that was a clinical diagnosis. I would think that if NJH, National Jewish Hospital, thought I had it during my week's long testing period they would have suggested something for me. So, hope they were all right.
Barbara

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@blm1007blm1007 as far as I know, the only way to diagnose sleep apnea is to have the sleep test. How did those doctors conclude you don’t have sleep apnea? Did they hook you up to a monitoring device and were you monitored through the night, as they do at the Sleep Clinic?

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Profile picture for rashida @rashida

@blm1007blm1007 as far as I know, the only way to diagnose sleep apnea is to have the sleep test. How did those doctors conclude you don’t have sleep apnea? Did they hook you up to a monitoring device and were you monitored through the night, as they do at the Sleep Clinic?

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@rashida Reality, both times it was purely a clinical analysis when we discussed symptoms of ones having sleep apnea.
You bring up a good point and reminded me of what happened with a friend. One doctor indicated she didn't need the test and another said yes....WELL...she now sleeps with a cpap system.
When I see the pulmonologist again, I will bring it up. Thanks.
Barbara

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Profile picture for rashida @rashida

@blm1007blm1007 I guess the best way to know for sure would be to have a barium swallow … or an endoscopy …?

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@rashida Barium swallow test has been scheduled for April.
Barbara

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Profile picture for blm1007blm1007 @blm1007blm1007

@rashida Barium swallow test has been scheduled for April.
Barbara

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@blm1007blm1007 that’s good! Hopefully you will get a correct diagnosis!

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