Anyone taking Brinsupri with current NTM disease?
I'm on Brinsupri and have M. Abscessus (watchful wait) and though I feel so much better since I started the Brinsupri, I am concerned about potential unknown impacts to the immune system. I have asked both my local and NJH ID doctors and both responded, "we don't know". My Pulm Dr thinks it will help since it lowers inflammation. Just curious if anyone has been evaluated (CTs and or sputum) to see if there has been any NTM progression since starting the Brinsupri-particularly, if it has been stable for a long time. My MABC has been stable since Sept 2024 but don't have my next CT until October.
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