Anyone stop valcyte early?

Posted by myringo @myringo, Oct 17, 2023

I am 10 weeks post liver transplant and my wbc is low. So low that my Dr took me off valcyte two weeks early. I am high risk for cmv because donor was pos and I’m neg. Has this happened to anyone else I’m terrified of getting it. I will get tested weekly for cmv. Have a great day everyone.

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Cheryl, Volunteer Mentor | @cehunt57 | Oct 20, 2023

I had a pancreas transplant 18 years ago. I had 2 immune suppressants, prophylactic antibiotics and antivirals. At one point my white blood count (WBC) dropped and it was attributed to Mycophenolate / Cellcept. I was switched to Sirolimus / Rapamune. Eventually the antibiotics (Bactrim Sulfa Trimeth ?) and the antivirals (Valcyte) plus a mouth lozenge were discontinued. During this time (and still) there were post transplant labs to determine the doses of the various meds based on lab levels. At one point my CMV increased and I temporarily resumed taking Valcyte. When you are post transplant, early on there is a lot to adjust to. As time goes on things start to settle down.