Anyone out there diagnosed with Pudendal Neuralgia?

OMG, it's horrible. Your perineum area in ' on fire 24 / 7 & your rectum feels like U have a golf ball in it. Having BM' s is difficult & then hurts afterwards, for a good while !
The upper back thighs are very sensitive to touch, as if u had shingles
There are no real answers are cures.
I SURE WOULD like to chat with others, that may have this !!
PRAYERS for research & ANSWERS, anyone !! Thx u.

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OMG, it's horrible. Your perineum area in ' on fire 24 / 7 & your rectum feels like U have a golf ball in it. Having BM' s is difficult & then hurts afterwards, for a good while !
The upper back thighs are very sensitive to touch, as if u had shingles
There are no real answers are cures.
I SURE WOULD like to chat with others, that may have this !!
PRAYERS for research & ANSWERS, anyone !! Thx u.

Jump to this post

Where do you find anesthesiologists who do this type of chronic pain stuff..I have been diagnosed with pudendal nueralgia...not fun!!! Have tried injections to 3 branches of pudendal nerve, trigger point injections, pelvic floor therapist was too agressive and opened this can of worms. I am now seeking out a urogynecologist who can perform pudendal nerve ablatement...not an easy task...I have been in relentless horrid pain...this started 5 years ago after being over dilated in a hemorrhoid banding. Pain upon defacation. Well it ended up, 10 colorectal surgeons later to be internal rectal descent. Had this repaired with good job on rectopexy...with surgeon telling me he could not stop the nerve pain upon defacation. I was to go see a Pelvic floor Therapist, as the pain was still there. I found I thought to be a very good one...1st 2 visits doin good...3rd visit African beehive started. Right now I'm doing tens, unit...and some stretches. I've had mri sacrum, shows connection to my foot nueropathy but not this. I think I found a urogyno in West LA, Dr. Michael Tahery...head of woman's clinic at Cedar Sinai ...asking about pudendal nerve ablatement...his staff said he performed this ...being a holiday, I must wait till Wednesday to know...but it is a long journey to get there. I feel so in the dark...the urogyno who did injections is never available or ever writes I have no medical professional who gets PN...last nite I tried an old tens item I used in the past...tens anal probe. It actually feels better....so going to do sensible things I know help, as no doctor does. I do not get why doctors are not taught about the pudential nerve...most not even knowing what it is. I must be my own advocate...I had a hard time getting on here.
If you know or have advice or questions...please write...I'm in Southern California ...thank you!!!
Hope ur having a nice holiday weekend!!!
Cheri....
..

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OMG, it's horrible. Your perineum area in ' on fire 24 / 7 & your rectum feels like U have a golf ball in it. Having BM' s is difficult & then hurts afterwards, for a good while !
The upper back thighs are very sensitive to touch, as if u had shingles
There are no real answers are cures.
I SURE WOULD like to chat with others, that may have this !!
PRAYERS for research & ANSWERS, anyone !! Thx u.

Jump to this post

OMG, it's horrible. Your perineum area in ' on fire 24 / 7 & your rectum feels like U have a golf ball in it. Having BM' s is difficult & then hurts afterwards, for a good while !
The upper back thighs are very sensitive to touch, as if u had shingles
There are no real answers are cures.
I SURE WOULD like to chat with others, that may have this !!
PRAYERS for research & ANSWERS, anyone !! Thx u.

Jump to this post

I don't think I have pudendal nerve neuralgia. I have been told that I suffered damage to my pudendal nerve probably during childbirth. In reading articles about the pudendal nerve, I have noticed some things i am familiar with. I was in tremendous pain after my first child was born. Forceps were used. I was told that I tore and I was packed within to stop the bleeding. My second pregnancy was with twins and I felt the sensation that they were going to fall out. Maybe one was pressing on the pudendal nerve? Some of the literature describes inability to achieve orgasm. Most doctors I told took this to mean lack of desire, but it was quite the opposite. Everything else worked up until orgasm. I'm thinking that may have also been caused by the damaged pudendal nerve. My husband became determined to help me overcome this dysfunction by increased effort. THEN I experienced the intense burning pain you describe and could not sleep. What brought me to the doctor years later was not being able to control the sounds of expelling gas and very minor fecal incontinance. I am seeing Dr. Michael Snyder in Houston who is recommending surgery implanting a nerve stimulator. Anybody on here familiar with any of this?

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Hi, I just wrote, and it went poof! I am starting over now. Could you please tell me which anti seizure med it is, as I looked and there are so many. Thank u for your response...greatly appreciated!!! This is so hard to live with, glad you found something that works for you! I can not take Gabapentin as it made me feel extremely strange! But I'd there is another ...please let me know exactly which one you take...thanks for your help! This is so debilitating!!!!
Have a nice Holiday!!!

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This is awful and like I have to told others, the only thing that worked for me after 14-1/2 years of sitting on a donut is anti-seizure medicine. Ask ask your doctor. This worked quickly too. Good lucks.

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I don't think I have pudendal nerve neuralgia. I have been told that I suffered damage to my pudendal nerve probably during childbirth. In reading articles about the pudendal nerve, I have noticed some things i am familiar with. I was in tremendous pain after my first child was born. Forceps were used. I was told that I tore and I was packed within to stop the bleeding. My second pregnancy was with twins and I felt the sensation that they were going to fall out. Maybe one was pressing on the pudendal nerve? Some of the literature describes inability to achieve orgasm. Most doctors I told took this to mean lack of desire, but it was quite the opposite. Everything else worked up until orgasm. I'm thinking that may have also been caused by the damaged pudendal nerve. My husband became determined to help me overcome this dysfunction by increased effort. THEN I experienced the intense burning pain you describe and could not sleep. What brought me to the doctor years later was not being able to control the sounds of expelling gas and very minor fecal incontinance. I am seeing Dr. Michael Snyder in Houston who is recommending surgery implanting a nerve stimulator. Anybody on here familiar with any of this?

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Hi, I got the nerve stimulator in 2017. It does help. It's not a cure but takes a point or two off the pain. It was performed by Dr Richard Marvel in Annopolis.

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