Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Yes i have had peripheral nephropathy for 5 years now. I am a 45 year old male and they tell me they cant tell me why i have it or how i got it. it is so frustrating and not only affects me but my family. I am thinking of doing a nerve block, has anyone on here ever tried it?

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@jasont

Yes i have had peripheral nephropathy for 5 years now. I am a 45 year old male and they tell me they cant tell me why i have it or how i got it. it is so frustrating and not only affects me but my family. I am thinking of doing a nerve block, has anyone on here ever tried it?

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Hi @jasont, not having a specific cause can be frustrating but it doesn't change a whole lot. I have idiopathic small fiber peripheral neuropathy but only have the numbness. I had it for over 20+ years before I decided I wanted a diagnosis and then when I got the diagnosis I found out that most all of the treatments are based on removing or getting rid of the pain and do nothing for the numbness. It has forced me to become a stronger advocate for my own health and learn as much as I can about my health conditions.

There is another discussion about nerve blocks here that may be helpful for you to join in and post questions.

> Groups > Bones, Joints & Muscles > Epidural nerve block
https://connect.mayoclinic.org/discussion/epideral-nerve-block/

Have you tried other treatments for your peripheral neuropathy?

Liked by Lisa Lucier

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@jasont

Yes i have had peripheral nephropathy for 5 years now. I am a 45 year old male and they tell me they cant tell me why i have it or how i got it. it is so frustrating and not only affects me but my family. I am thinking of doing a nerve block, has anyone on here ever tried it?

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I also have PN and didn’t know what was causing it. It has been mostly cured with something called “The Graston Technique”. Find a chiropractor who practices this. no medications were needed!

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@julchilds

I also have PN and didn’t know what was causing it. It has been mostly cured with something called “The Graston Technique”. Find a chiropractor who practices this. no medications were needed!

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Here's a link that explains the Graston Technique.

The Graston Technique – Inducing Microtrauma with Instruments
https://sciencebasedmedicine.org/the-graston-technique-inducing-microtrauma-with-instruments/

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@julchilds

I also have PN and didn’t know what was causing it. It has been mostly cured with something called “The Graston Technique”. Find a chiropractor who practices this. no medications were needed!

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I tried the Graston technique with my physical therapist, but it seemed to make my nerve pain worse. It probably depends on what is causing the neuropathy in the first place. Do you know what is causing yours? Mine seems to be due to issues with my neck and spinal chord that were brought on by a steroid epidural in my neck. What part of the body did they do it to? How long did they do it? I did it about five or six times.

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@johnbishop

Here's a link that explains the Graston Technique.

The Graston Technique – Inducing Microtrauma with Instruments
https://sciencebasedmedicine.org/the-graston-technique-inducing-microtrauma-with-instruments/

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Followed your link. Not what I would call a resounding affirmation of this procedure. Thanks, but I think I will pass on this one.
Arnrob

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Mine seems to be structural, impeded nerves from twisted pelvis and also from severely tight calf muscles.

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@julchilds

Mine seems to be structural, impeded nerves from twisted pelvis and also from severely tight calf muscles.

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To @julchilds … I’m curious…who told you the cause of your PN? Specifically the twisted pelvis and severely tight hamstrings? Thanks

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@julchilds

I also have PN and didn’t know what was causing it. It has been mostly cured with something called “The Graston Technique”. Find a chiropractor who practices this. no medications were needed!

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My neurologist told me that my Nervous System is dying; there is no cure for it. We all get old … and parts of us stop working. She couldn't tell me how long I will live as everyone has different parts of their body wearing out at different rates. 'Reality' bites sometimes.
Like, right now. Peggy

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I was diagnosed with peripheral neuropathy via pathology of skin biopsy taken from my right ankle. The report suggests the case is rather advanced, which is very troubling as it came on overnight and was until recently, confined to the first three toes of my right foot only. It has now recently “spread” to the first three fingers of my left hand. All the testing ordered by my doctor and neurologist to find a cause have yielded only normal results, no blatent issues. For now it’s considered idiopathic.
One odd thing happened between the arrival of symptoms in the foot and hand, I acquired a nasty case of shingles about the chest and back. The pain from this was extremely harsh. I felt as though someone took a baseball bat to my rib cage. I was hoping that my neurologist would have a eureka moment when I divulged this information, but no, he did not make any connections.
Until I found a neurologist, I was not sleeping at night, not well at all. He prescribed me a compounded creme made from lidocaine, prilocaine, and gabapentin. This really helped to alleviate my foot pain. He said it works for about 20% of those who try it.
Andrew

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Hello @ahendershot, welcome to Connect. I also have idiopathic small fiber peripheral neuropathy but have had it 20+ years. Mine is mostly numbness in my feet and just above the ankles. This past winter while clearing snow I stayed out a little longer than I should have and even though I had good gloves on my hands got very cold and as a result it feels like I have the start of neuropathy in the tips of a few fingers on my left hand or it's a result of frostbite.

Do you have pain with your neuropathy? I don't have any pain from it but I take supplements which has slowed the progression of the neuropathy. I posted what helps me earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
John

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Andrew… do you have any foot drop? Interesting that your neurologist didn't connect the Shingles with onset of neuropathy.

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@johnbishop

Hello @ahendershot, welcome to Connect. I also have idiopathic small fiber peripheral neuropathy but have had it 20+ years. Mine is mostly numbness in my feet and just above the ankles. This past winter while clearing snow I stayed out a little longer than I should have and even though I had good gloves on my hands got very cold and as a result it feels like I have the start of neuropathy in the tips of a few fingers on my left hand or it's a result of frostbite.

Do you have pain with your neuropathy? I don't have any pain from it but I take supplements which has slowed the progression of the neuropathy. I posted what helps me earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
John

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Hi John,
I do have pain from my foot and my hand that is non-stop. I feel pinching, stabbing, burning, “frostbite”, and numbness that causes a deep cramp to ride up my leg and arm. I’m ramping up my dose of gabapentin but it has not helped a lot yet. I’m currently at 900mg a day. My anesthetic creme still works ok on my foot, but I still have trouble sleeping because it is not as effective on my hand.
Thanks for the additional information on your management of neuropathy. I’ll be sure to go through it.
Andrew

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@margottaylor

Andrew… do you have any foot drop? Interesting that your neurologist didn't connect the Shingles with onset of neuropathy.

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Hi Margot,
I did not have foot drop issues on my right foot. The pain started in the tips of my first three toes and quickly setteled in the ball of my foot around those same toes. At first, walking helped alleviate the pain and sitting or lying down made it much worse. Now it on 24/7 and I have bearable days and miserable days, and mostly miserable nights.
Andrew

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@ahendershot

Hi John,
I do have pain from my foot and my hand that is non-stop. I feel pinching, stabbing, burning, “frostbite”, and numbness that causes a deep cramp to ride up my leg and arm. I’m ramping up my dose of gabapentin but it has not helped a lot yet. I’m currently at 900mg a day. My anesthetic creme still works ok on my foot, but I still have trouble sleeping because it is not as effective on my hand.
Thanks for the additional information on your management of neuropathy. I’ll be sure to go through it.
Andrew

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@ahendershot, @johnbishop, Good morning to you and I would like to add my welcome. I recognize the place where you are now residing. And I hear you wondering, "what's next". I just have a couple of questions. Are you taking all 900 mg of gabapentin at night? I have found that a 900 mg dosage taken at 8:30 pm or no later than 9:30 pm will help with the tingling in the hands during the night. You might even get a couple of pretty painless hours in the morning….enough to do morning chores.

For the needles in your hands (also known as pin cushions)….have you tried any other topicals? I experimented with essential oils…e.g. copaiba and deep blue together, and a prescription lidocaine cream with other pain reducing additives. Both options served to take the edge off and lingered for an hour or so. My real solution came in the form of Papa & Barkley 3:1 CBD/THC Releaf Balm if you can find it where you live. My life partner also uses it on his 72-year-old knee and ankle that have suffered a bit with this year's heavy snow. Please let me know how I might be helpful. And may you have a pain free day or even an hour. Chris

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