← Return to Anyone here dealing with peripheral neuropathy?

Discussion

Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 6 days ago | Replies (2916)

Comment receiving replies
@charly

I think we all have to find our own relief. In 6 years not one of the 9 specialists I saw has really helped the pain of my peripheral neuropathy. I have idiopathic neuropathy. Numb from toe to knees, sometimes freezing , sometimes burning but chronic pain. I tried cymbalta, gabapentin, anitriptaline. All the side effects were unbearable. The neurology tests showed yes indeed I had it . I had to find my own relief. What works for me is mostly meditation(I had practiced many years before neuropathy,) counselling for anxiety and depression,cannabis for insomnia, Saran Wrap around calves and feet even takes numbness away. Weird but try it. I wish the pharmaceuticals would have worked but I learned a lot and most days am content and happy. When flare up comes ,warm bath and Saran Wrap. Very fortunate for me I live in Canada and we have health coverage. Also we have good pain clinics that teach about pain. I have also found anything that bothers my nerves bothers my emotions as well. Too hot, too cold, too windy, people who antagonize me, dumb politics you name it. gentle and middle way seems to guide me through this terrible disease. Appreciation Charly

Jump to this post


Replies to "I think we all have to find our own relief. In 6 years not one of..."

I too have idiopathic neuropathy in both legs. I saw where you talked about your knees. I'm starting to feel pain in my knee and was wondering if it had something to do with neuropathy. My pcm had a xray done but it didn't show anything. He prescribed diclofenac. I'm trying this to see how it goes. My neurologist has me taking gabapentin 600mg 3 times a day.