Anyone here dealing with peripheral neuropathy?

I was diagnosed with idiopathic peripheral neuropathy about three years ago. It started with just slight tingling in toes and in stages has progessed to painful stinging, pins and needles in both feet and now working its way up both legs. I've tried standard palliative medications, Lyrica, Gabapentin, etc and have tolrance problems with them. Nothing in blood tests so far identifies a suspect cause and now my doctor has ordered additional blood tests and a spinal tap. For these additional blood tests I'm told expense could be considerable, depending on my insurance, but here is bottom line for me. I am under impression that it is unusual to find treatable cause for IPN, which is why such a high percentage of cases remain idiopathic, and at any point process could accelerate to where i need a wheel chair or even face major organ failure. This scares the heck out of me. I'm a 77-year-old man otherwise in good health and I've got a few more things I'd very much to do in this life before I join my ancestors in the sky. I'm not sure of the mechanics of this groups so I'm just going to post this and see what comes back. I think there's a moderator in here somewhere. I have enormous respect for the Mayo Clinic and I was so glad to find this group. There's so much questionable stuff out there on line on this subject and and just about any other.

I was diagnosed with idiopathic peripheral neuropathy about three years ago. It started with just slight tingling in toes and in stages has progessed to painful stinging, pins and needles in both feet and now working its way up both legs. I've tried standard palliative medications, Lyrica, Gabapentin, etc and have tolrance problems with them. Nothing in blood tests so far identifies a suspect cause and now my doctor has ordered additional blood tests and a spinal tap. For these additional blood tests I'm told expense could be considerable, depending on my insurance, but here is bottom line for me. I am under impression that it is unusual to find treatable cause for IPN, which is why such a high percentage of cases remain idiopathic, and at any point process could accelerate to where i need a wheel chair or even face major organ failure. This scares the heck out of me. I'm a 77-year-old man otherwise in good health and I've got a few more things I'd very much to do in this life before I join my ancestors in the sky. I'm not sure of the mechanics of this groups so I'm just going to post this and see what comes back. I think there's a moderator in here somewhere. I have enormous respect for the Mayo Clinic and I was so glad to find this group. There's so much questionable stuff out there on line on this subject and and just about any other.

It’s really bad in my buttocks

I was diagnosed with idiopathic peripheral neuropathy about three years ago. It started with just slight tingling in toes and in stages has progessed to painful stinging, pins and needles in both feet and now working its way up both legs. I've tried standard palliative medications, Lyrica, Gabapentin, etc and have tolrance problems with them. Nothing in blood tests so far identifies a suspect cause and now my doctor has ordered additional blood tests and a spinal tap. For these additional blood tests I'm told expense could be considerable, depending on my insurance, but here is bottom line for me. I am under impression that it is unusual to find treatable cause for IPN, which is why such a high percentage of cases remain idiopathic, and at any point process could accelerate to where i need a wheel chair or even face major organ failure. This scares the heck out of me. I'm a 77-year-old man otherwise in good health and I've got a few more things I'd very much to do in this life before I join my ancestors in the sky. I'm not sure of the mechanics of this groups so I'm just going to post this and see what comes back. I think there's a moderator in here somewhere. I have enormous respect for the Mayo Clinic and I was so glad to find this group. There's so much questionable stuff out there on line on this subject and and just about any other.

Thanks so much for this info, Johnhans. Nobody in my family I know of has the condition and I dont have the info about large bundle or small fibre, which i will now ask about. Thanks again.

My neurologist has diagnosed me with peripheral neuropathy, but I don't really understand it. I know I have pain, numbness and tingling in my left leg.and foot I thought it was the after affects of the shingles about 5 years ago. I also have restless legs and back problems big time. My legs and feet cramp when I sit and during the night. I am taking Pramipexole and Gabapentin. I am alo on oxygen only at night. Does peripheral neuropathy get worse as time goes on? My right leg is starting to have the same symptoms.

My neurologist has diagnosed me with peripheral neuropathy, but I don't really understand it. I know I have pain, numbness and tingling in my left leg.and foot I thought it was the after affects of the shingles about 5 years ago. I also have restless legs and back problems big time. My legs and feet cramp when I sit and during the night. I am taking Pramipexole and Gabapentin. I am alo on oxygen only at night. Does peripheral neuropathy get worse as time goes on? My right leg is starting to have the same symptoms.

I am dealing with neuropathy I have tried gabapetin (spelling?)pills and foot rub. Nothing has worked. It is difficult to walk.