Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@ruthanderson

I’d like to know what medications folks are taking to help with the pain from neuropathy?

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I am in no way connected with the medical field but after seeing a Neurologist and two Chiropractors it is my honest opinion that medications do not work with Peripheral Neuropathy. I am starting a program using a Durable medical Device called the ReBuilder Model # 2407. It is an electrical nerve stimulator which you use in your home 1/2 hour in the morning and 1/2 hour in the evening and my goal is to be able to walk down my front steps without my wife's assistance by New Years.

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I would like to know how that goes — please keep us posted, Mr. Dutchman … Peggy

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@dutchman09

I am in no way connected with the medical field but after seeing a Neurologist and two Chiropractors it is my honest opinion that medications do not work with Peripheral Neuropathy. I am starting a program using a Durable medical Device called the ReBuilder Model # 2407. It is an electrical nerve stimulator which you use in your home 1/2 hour in the morning and 1/2 hour in the evening and my goal is to be able to walk down my front steps without my wife's assistance by New Years.

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Yes, please keep us up to date with your progress. I wish you well. Delia

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I take EB-N5, a medical food that is a prescription ($105 ffor 3 mos). Black seed oil 2 500 mg softgels, olive leaf extract, and resveratrol and grape seed extract.

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I will try to keep you updated. I'm told the unit has shipped and should arrive sometime this week. I have been trying to get this unit since June and now ………..finally!

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I was recently diagnosed with PN. Symptoms are more around pain. Both feet have a sensation of being sunburned or raw underneath and I imagined open sores on them (not there). Hands and fingertips tender with sore left palm. intermittent numbness and other pins and needle effects. Just started up a few months ago and went for tests at Vanderbilt and now Mayo. Put me on Lyrica and sleep meds and holding off on Cymbalta and I am trying not to take pain meds. Thought I would join and share where I am coming from. MN

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Hello @thunder32, welcome to Connect. I too have PN. I was diagnosed in 2016 with idiopathic small fiber PN but I don't have any pain. I only have the numbness and tingling for which there are no drug or topical treatments that work. I take vitamins and supplements which have helped me some but they're not a cure. I posted my story earlier on Connect here:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

You mentioned you are also taking sleep meds. Do they help you sleep at night because of the pain?

John

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Hi John, same here, small fiber idiopathic but big time pain came out of nowhere in mid May. yes I was prescribed Lorazepam 1mg for sleep. Also pain meds that I only rarely take as it is tough enough to manage at work with the other meds! Hope you are well.

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Just an FYI for the numbness. I have numbness in my feet from my strokes. I find that when I have taken off my shoes and socks I move my feet over the carpet in the bedroom. Most of the time I do not feel anything but I know I am stimulating the bottoms of my feet, and it can't hurt I hope it is doing some good. I did it before my strokes and it felt good then so why not now even if I cannot feel it.

mlmcg

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Yes – I have peripheral neuropathy. My most difficult symptom is difficulty breathing. Any suggestions for helping this?

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@dutchman09

I am in no way connected with the medical field but after seeing a Neurologist and two Chiropractors it is my honest opinion that medications do not work with Peripheral Neuropathy. I am starting a program using a Durable medical Device called the ReBuilder Model # 2407. It is an electrical nerve stimulator which you use in your home 1/2 hour in the morning and 1/2 hour in the evening and my goal is to be able to walk down my front steps without my wife's assistance by New Years.

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can this be used if you have a pacemaker?

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how do you know when someone answers your comments?

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@juanito

how do you know when someone answers your comments?

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@juanito if someone replies to your post you will receive a notification email. Also if you want to direct your post to a specific member just use their Connect user/member name preceded by the @ sign – mine is @johnbishop

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@johnbishop – thanks.

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I began experiencing autonomic/peripheral neuropathy following chemo therapy treatment for cancer. Fortunately I do not have pain, but need a walking stick to keep my balance. I'm wondering if there are some treatments people have found effective.

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