Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Now I am over 70 y.o., I did read that elderly, have 70% neurological problems. When I retired, neuropathy, luckily had imaging of brain and explored options in conventional medical world, even though medical research is out standing. Finally used alternative medicine(the herbal product curcumin, Turmeric(a hot spice now), found in different curry products. Enjoy, and a spiritual network which lead to many great new friends. Friendship is a healing factor of itself. JIM>>>>> Now for a few years, lightheadedness, (a neurological visit and imaging), again, a herbal phytochemical product: quercetin and proprioceptive PT exercise(walk the dogs)..improving...living over 70 years old. JIM>>>>>

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I learned in Rehab I have 50% Neuropathy in hands and feet.. I have not seen a Neurpothist yet and am wondering if anyone knows what can be done for this,

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@danavs

I learned in Rehab I have 50% Neuropathy in hands and feet.. I have not seen a Neurpothist yet and am wondering if anyone knows what can be done for this,

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Hello @danavs,

You may notice I moved your discussion in to a long discussion on living with peripheral neuropathy. I did this so that you could read through and learn a bit from our vast amount of members talking about and addressing your exact question. Like @jimhd mentioned, I suggest you click on VIEW & REPLY so that you will be brought to the full discussion and you can read through the posts by our members and you can feel free to jump in wherever you feel comfortable. Here are a few more discussions on neuropathy as well:

- Neuropathy (group), https://connect.mayoclinic.org/group/neuropathy/
- Living with neuropathy - welcome to the group, https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
- Gabapentin use for neuropathy, https://connect.mayoclinic.org/discussion/gabapentin-use-for-neuropathy/
- Acupuncture, https://connect.mayoclinic.org/discussion/acupuncture/

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Mine is peripheral. - only in my feet & lower legs. SMW

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@superwife

Mine is peripheral. - only in my feet & lower legs. SMW

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Mine extends from feet to just above my knees and I'm not sure if it's neuropathy or arthritis that is affecting my hands. Numbness and feeling of swollen feet but they aren't. Discomfort but vey little pain. Has been going on for over 4 years.

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@superwife

Mine is peripheral. - only in my feet & lower legs. SMW

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Sounds totally familiar. Try to listen to the series on this site...it helps. Lost my feet,left hand, but got good ideas from here for substitutes to find joy. It seems like it will never exist again, but the people here have ideas that open your mind. I hope you don't giveup. My thoughts are with you.

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@rabbit10 One more thing. Remember that there are over a thousand different possibilities for causing neuropathy, and many thousands of combinations of neuropathic feelings (and lack thereof), so don't give up after one or two failures of finding the cause and total combinations of effects. Right now I could name about 50 different sites on my body which have known neuropathy. So then you start multiplying 50 x 49 x 48...... to find the exact number of possible combinations. No wonder everyone is different. Even God could not keep track of that nonsense. And in addition, every variant of causes has its own wild set of possibilities. Mis-folded proteins, radon, bacterias, electric shock, heart, brain deposits, etc. Just don't give up too early. Your journey is just beginning when you recognize you have neuropathy.

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I have chemo induced neuropathy in both my feet. Nothing seems to work. I am starting MLS laser therapy on Monday for two weeks on my feet and also for my carpal tunnel. Hope it helps. Is not covered by insurance but FDA approved.

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@caf132 Progress! You should know that both neuropathy and carpal tunnel are symptoms of various forms of Amyloidosis, most especially LiteChain forms such as Crohn's, hereditary ATTRwt, and many others. You probably should have yourself checked for various protein dyscrasias by underging a SERUM FreeLite@ and other tests. ARUP labs, Mayo-Quant, Mass General, Stanford, MD Andersen and other top labs can do it. Local clinic labs rarely have the expensive equipment to do the testing. You may not have Amy, or it may not show yet in your blood, bone or urine. It usually shows beginning around age 50-70, although mine started very young. You might watch some of the Mayo videos done by Morey Gertz, Angelica Dispenzieri or Martha Grogan. They are very good. And have your doctor talk with https://alnylamact.com about checking your DNA to see if you are prone to having this or some other form of Amy. I have written some of my own story, it is free at https://bit.Ly/1w7j4j8 "Amyloidosis" It will give you some other leads. And there is medicine now to combat the disorder, especially "Patisiran"

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