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lila25
@lila25

Posts: 5
Joined: Dec 18, 2017

Acupuncture

Posted by @lila25, Tue, Jan 9 10:56am

Has anyone ever been treated successfully with acupuncture?I’ve had no relief with any of the prescriptions in over two years,so my last treatment I think is left actually is acupuncture.

REPLY

@lila25

I haven’t tried acupuncture as it’s too expensive and not covered by Medicare. I would say that two years isn’t that long to be looking for a medication that works. I went through the list with a couple of neurologists, then a pain specialist, who had another list of things to try. I wish I had kept a list of the ones I tried.

What kind of neuropathy do you have? I think that others in the group have tried acupuncture with little or no result. But some who have tried it might tell you their experience. Do you remember what meds you’ve tried? What are your neuropathy symptoms?

Jim

Hi @lila25 — I’ve never had acupuncture but my mother used to swear by it to relieve her pain. She had rheumatoid arthritis. Until some other members who have tried it share their experience, here is some supportive information on acupuncture and diet changes to treat neuropathic pain:

http://www.ohsu.edu/blogs/brain/2015/09/24/acupuncture-and-diet-changes-to-treat-neuropathic-pain/

@lila25 I am tagging some Connect members who have talked about acupuncture to see if they are able to share their experience with you. @kdubois, @robbinr, @phob, @gailb are you able to share any experiences with acupuncture with @lila25?

John

@jimhd

@lila25

I haven’t tried acupuncture as it’s too expensive and not covered by Medicare. I would say that two years isn’t that long to be looking for a medication that works. I went through the list with a couple of neurologists, then a pain specialist, who had another list of things to try. I wish I had kept a list of the ones I tried.

What kind of neuropathy do you have? I think that others in the group have tried acupuncture with little or no result. But some who have tried it might tell you their experience. Do you remember what meds you’ve tried? What are your neuropathy symptoms?

Jim

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Jim,I have peripheral neuropathy ,reynauds ,and scleroderma.Presently still on prednisone , B12,d and multiple vitamins,efflexor,I don’t think I’ve spelled it correctly to help me be more relaxed,hah,not really,it’s nonstop pins and needles,burning ,numbness ,I am used to that,it’s my hands,numbness ,still using,but very limited.Sooo,did all the protocols,the methotrexate during the 6 months,made me lose tremendous hair loss,with no health help,,same with celcept,oh so many I can’t remember so it’s progress was rapid.So,many mentioned acupuncture.So any advice?Thank you

@johnbishop

Hi @lila25 — I’ve never had acupuncture but my mother used to swear by it to relieve her pain. She had rheumatoid arthritis. Until some other members who have tried it share their experience, here is some supportive information on acupuncture and diet changes to treat neuropathic pain:

http://www.ohsu.edu/blogs/brain/2015/09/24/acupuncture-and-diet-changes-to-treat-neuropathic-pain/

@lila25 I am tagging some Connect members who have talked about acupuncture to see if they are able to share their experience with you. @kdubois, @robbinr, @phob, @gailb are you able to share any experiences with acupuncture with @lila25?

John

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Thank you,John,gabbapentin,no help now on Lyrica,upped to 3@ day,no relief,so cut out the middle school of the day,eventually cut out am,then pm.May try acupuncture,I have 3-5 autoimmune diseases fighting it out,still waiting for them to guit.

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