Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@johnbishop

Hello @holhealthcare, welcome to Connect. Thank you for sharing your post. There is actually another discussion on Connect for laser therapy that you may be interested in reading and meeting others sharing similar treatments.

Groups > Neuropathy > Laser Therapy for Neuropathy
https://connect.mayoclinic.org/discussion/neuropathy-1/

Are you able to share a little more about the type of neuropathy you have and your symptoms?

John

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Thanks John! I've already read 3 on the laser therapy and plan to learn more. Also, thank you for sharing your info on your supplement therapy. It was so generous of you as well all the others with their experiences
Rose

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@holhealthcare

I have diabetic neuropathy of both feet. Using a roller and Chamomile German I was able to nearly eliminate the intense burning feeling on the bottom of my feet and sharp pains on top and toes. I continued to have numb toes and part of the foot. This year I bought the laser. I now feel everything an no pain. Improvement began with the first treatment. It is strange after many years to feel my feet almost normal.

I also had numbness on one side of my face from shingles. This cleared in two weeks of using the laser every other day.

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Thank you so very much for sharing. I also have numbness, tingling from the waist on dowy into my feet.
Please tell me where you purchase the oil/roller and how you use it.
Thanks again

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@holhealthcare

I have diabetic neuropathy of both feet. Using a roller and Chamomile German I was able to nearly eliminate the intense burning feeling on the bottom of my feet and sharp pains on top and toes. I continued to have numb toes and part of the foot. This year I bought the laser. I now feel everything an no pain. Improvement began with the first treatment. It is strange after many years to feel my feet almost normal.

I also had numbness on one side of my face from shingles. This cleared in two weeks of using the laser every other day.

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What is the laser you bought and where do they sell it.

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Also interested in the laser. Where to get it and how long before it works.
Thanks

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@holhealthcare

I used cold laser as shown below for my neuropathy. It has worked very well. Got immediate results. Save money and buy your own.
healthcaremarts.com/products/low-level-laser-therapy-device-hand-held?aff=8

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@holhealthcare Do you own the business that is selling this device?

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@holhealthcare

I have diabetic neuropathy of both feet. Using a roller and Chamomile German I was able to nearly eliminate the intense burning feeling on the bottom of my feet and sharp pains on top and toes. I continued to have numb toes and part of the foot. This year I bought the laser. I now feel everything an no pain. Improvement began with the first treatment. It is strange after many years to feel my feet almost normal.

I also had numbness on one side of my face from shingles. This cleared in two weeks of using the laser every other day.

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Please tell me what is camomile German and what kind of roller? I have numb feet as well

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@bethb94

Thank you for responding. I was told if I had numbness in my face that it could not be coming from my neck. I did have a cervical MRI and it showed some mild degeneration. i know the EMG will not show all nerves affected, I'm expecting that it just be a start. I will need a skin biopsy to show if small fiber nerves are affected. The most depressing part is that I've learned despite having these tests and what they show, there's not much they can do for you. Thanks again for sharing.

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@bethb94 Don't give up because of what tests say. Nerves can get compressed because of tight muscles anywhere in the body, and tight fascial restrictions. Myofascial release (MFR) stretches the fascia so muscles can move normally again. Tests are just looking at a snapshot on a particular day and time. I do get some trigeminal nerve tingling in my face from time to time, and that seems to be caused by tightness in my neck which pulls up into my ear and jaw that is tighter on one side. When my therapist opens this up, it resolves that problem. she does traditional physical therapy with MFR work. See myofascialrelease.com for information. I had a cervical disc problem which generated lots of muscle spasms pulling up to my jaw, and I have thoracic outlet syndrome (TOS) that contributes to one side being too tight. You can ask for a PT evaluation and you can find PTs with MFR training at the website. Not all of them pay for a listing, so you can call Therapy on the Rocks in Sedona, AZ, and ask for names of people who trained there in John Barnes methods. Doing yoga and the "cupping" are also ways that stretch fascia, but if you have tightness in your neck and jaw, that is were a PT needs to work. I hope that information helps. Don't give up.

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@prudence

Please tell me what is camomile German and what kind of roller? I have numb feet as well

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Hi @prudence, I didn't knwo what it is either and had to look it up. It's an essential oil and I'm assuming the roller is just a roller-ball applicator bottle of some sort.
https://essentialoilsanctuary.com/15-benefits-uses-of-german-chamomile-essential-oil-plus-recipes-application-tips/

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If you have numbness from the waist down into both feet do you know what causes it? Can you do anything for the numbness pain and debilitating discomfort?
Thanks
Any help will be greatly appreciated

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@goetf4997

If you have numbness from the waist down into both feet do you know what causes it? Can you do anything for the numbness pain and debilitating discomfort?
Thanks
Any help will be greatly appreciated

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@goetf4997 Hello and welcome. You'll probably be hearing from others here, but no one here can give you a diagnosis of what is causing your numbness. I think you should consult a neurologist and spine specialist as a first step if you have not done this already. My personal experience is with a spine issue and I had surgery at Mayo for cervical stenosis and I have had numbness and tingling in my arms and legs from a spine problem in my neck. I had surgery at Mayo that resolved it all. Diabetes can also cause nerve pain from what I've heard. Does changing your position change your pain? Is it worse bending over, sitting, standing? Do you stand straight with good posture or stooped over? If anything seems to change with position, it may indicate a physical problem of nerve compression that changes with different positions. I say that because in bending, your spinal cord within the spinal column will move as it floats in spinal fluid, and the in-between spaces get closer together as the spinal vertebrae bend round a curve. This is where nerve roots exit on the sides, in-between the vertebrae, so a problem there could compress nerves that exit the spinal cord there. If there is a bulging disc in your spine that is pressing on the spinal cord, it certainly can cause this type of problem. There probably are other possible causes, but only a specialist can help figure that out. If you are near one of the Mayo Clinics and your insurance is accepted, it would be a good place to go. I came to Mayo after 5 specialists missed my diagnosis, and Mayo is very thorough about finding all the contributing factors to a problem. At Mayo, it is a team approach to patient care, and the various departments do consult each other to look at the big picture; not just what they evaluate within their specialty. The website lists what insurance they accept and you can contact them to request an appointment. I wish you luck in your health journey.

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Me. I have peripheral neuropathy. Small Fiber Neuropathy

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@jenniferhunter

@bethb94 Don't give up because of what tests say. Nerves can get compressed because of tight muscles anywhere in the body, and tight fascial restrictions. Myofascial release (MFR) stretches the fascia so muscles can move normally again. Tests are just looking at a snapshot on a particular day and time. I do get some trigeminal nerve tingling in my face from time to time, and that seems to be caused by tightness in my neck which pulls up into my ear and jaw that is tighter on one side. When my therapist opens this up, it resolves that problem. she does traditional physical therapy with MFR work. See myofascialrelease.com for information. I had a cervical disc problem which generated lots of muscle spasms pulling up to my jaw, and I have thoracic outlet syndrome (TOS) that contributes to one side being too tight. You can ask for a PT evaluation and you can find PTs with MFR training at the website. Not all of them pay for a listing, so you can call Therapy on the Rocks in Sedona, AZ, and ask for names of people who trained there in John Barnes methods. Doing yoga and the "cupping" are also ways that stretch fascia, but if you have tightness in your neck and jaw, that is were a PT needs to work. I hope that information helps. Don't give up.

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Many massage therapists do forms of myofascial release. There are many schools of it. Just Google the term for a therapist near you.

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@johnbishop

Hi @prudence, I didn't knwo what it is either and had to look it up. It's an essential oil and I'm assuming the roller is just a roller-ball applicator bottle of some sort.
https://essentialoilsanctuary.com/15-benefits-uses-of-german-chamomile-essential-oil-plus-recipes-application-tips/

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The roller is hand held and made of Jade. There is a special one for the feet.

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@goetf4997

If you have numbness from the waist down into both feet do you know what causes it? Can you do anything for the numbness pain and debilitating discomfort?
Thanks
Any help will be greatly appreciated

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Hello @goetf4997, @jenniferhunter has given some good advice and suggestions. If you have not already met with a doctor or neurologist that would be my first thought so that you can get a diagnosis and get help with a treatment plan.

@goetf4997 have seen a doctor or specialist for your pain and numbness?

John

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@maryy

Me. I have peripheral neuropathy. Small Fiber Neuropathy

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Hi @maryy, welcome to Connect. I have small fiber peripheral peripheral neuropathy with only numbness and no pain. Can you share a little more about your symptoms and what helps treat the symptoms?

John

Liked by Lisa Lucier, maryy

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