Anyone here dealing with peripheral neuropathy?
Anyone here dealing with peripheral neuropathy?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Anyone here dealing with peripheral neuropathy?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Thanks let me know if you can think of anything else. This is going to be a really important appt. for me.
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1 Reaction@mikween
Have you considered a spinal cord stimulator implant?
Jim
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1 ReactionYes, I did have it as i trial at one time and did not like the way that it felt. Do you have one now?
Hi @mikween), That is a great group of questions and a lot of thought went into them. I hope the doctor is receptive to a lot of questions and has time to discuss them with you. I would try to limit the questions to 4 or 5 of the ones that are most important to you.
I know that they are all important questions but I would prioritize the list and write them down to take with you so you don't forget any of them (just saying that out of experience ☺).
Just looking them over I would guess that these might be the most important for you (but it's your list so you need to decide):
- Can you even fix my neuropathy through surgery with my Foot Drop?
- Could it make it worse? (if the surgery doesn't work or is not successful)
- What is the success rate for the surgery?
- How long will I be off of my foot?
- Does it matter how long someone might have had the neuropathy as to how the outcome might be to the surgery?
Good luck and I hope you are able to have a good dialogue with the doctor.
John
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1 Reaction@mikween
I did the trial for a week. It was wonderful not to have pain in my feet. I'm waiting right now for the doctor to schedule the permanent implant. We'll see how well and how long it will work. It's the last thing on the list of treatments for me, and I'm very hopeful.
Jim
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1 ReactionI am following your search for freedom from neuropathy in your feet. I posted some time ago about my years long search for relief and all of the meds and procedures. The implant was at the end and is still a possibility for me. However I am almost 90 and not eager for any type of surgery so have not acted on that last possibility. Will keep track of your postings. There is some literature out there about the good results pharmacist prescribed cannabis has had for some people. Any comments.
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4 ReactionsHi John. Glad you are getting the right amount of everything to help the neuropathy. Could you give me a list of all you take. I now take Vitamin B12 And B2 as my neurologist has prescribed but don't think it is helping much. Also take magnesium 500 mg all of this I take once a day and feel like more would be better. Thank you for all the help you can give me. Jan
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2 ReactionsHi Jan, The complete list of the supplements I take can be found here - http://bit.ly/2pLZzey . I would print it out and discuss wtih your neurologist or primary care doctor to make sure there is nothing that conflicts with anything you are currently taking. Also I would join the closed Facebook group that is referenced and read through all their material. You can search their group using the term #theprotocolworks to bring up stories of all of the individuals who have shared their success. Good luck...John
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2 ReactionsThat is great that it worked for you. I wish that it would have had worked for me.
Best of luck!!!
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2 ReactionsThanks for the input John
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