Anyone here dealing with peripheral neuropathy?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
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@Hi Jodi! I was so glad to hear back from you! ReQuip is a prescription drug originally subscribed for Parkinson’s Diseaseor any other spasmotic disease of the nervous. I don’t know much abour ReQuip, except to know it calms and relaxes the spasms. You start out with a low dose,(I also began Valium at the same time) and work up to a dose that finally helps you.ReQuip is very good, but my doctor had to keep increasing the dosage. Requip works on the nerves that cause those awful spasms.That’s about all I know at the moment. Thank God you had a peaceful night–Praise the Lord for that! Why not a bar of soap, I am willing to try Even banana peels under my pillows instead of drugs! Good luck, Jody. Hope you get to try ReQuip, it is a really good drug at the right dosage. More good nights ahead, Virtual Hugs, Peggy
NOW, I WOULD LIKE TO KNOW IF ANYONE HAS EVER HAD THE SURGERY FOR PERIPAL NEUROPATHY? And if you have has it worked? I have an appt. May 12th with a doctor for a consult to see if I would be candidate? It might not even work for me since I have foot drop or maybe because it has been to long. Back in Sept. Of 08. I inhaled Carbon Monoxide on my boyfriends boat sitting down in the cabin Indian style fir about a day at least. That is how this horrible journey of neuropathy and foot drop began. Of course years later I found out that my foot drop could have been corrected within the first couple of years that I had it. But my neurologist just told me if it did not come back in a couple of years it would never come back. Told me nothing about these surgeries that were out there. One day I was done research and found out it could be done. I am currently still working with one doc, but I am sure I am way out of the time frame. Thanks to the doc… If anyone knows anything good for chronic pain for neuropathy please let me know. As I said earlier I am on Suboxone after being on opioids for many years. I just ordered some cream called lidocaine from Amazon that I read is good. I have been doing so much research myself… I also read about lidocaine injections.. Has anyone ever heard of that?
Does anybody know how to contact her. She posted one time about Foot Drop, Which I am very interested. I thought that I replied to her the right way but have never heard back from her. So, again if someone knows how to get in touch with @jewel8888. Please let her know that I have some questions for her. Thanks
Hi @mikween – She should see your message above because you typed her tag – @jewel8888 which will send her an email that someone tagged her. You can also send a private message by clicking on her username link in your message above and it will take you to her profile. From there you can click the envelope to send her a private email. I think it would be better is you tag her like you did above and ask your questions. That way others will also benefit from any answers or may be able to also provide an answer for you.
Many of you were recently discussing the effectiveness of vitamin B in reducing the symptoms of neuropathy. I showed your conversation to a pharmacist here at Mayo Clinic. She offered this information:
“Taking Vitamin B1 (thiamine) and Vitamin B6 (pyridoxine) daily has been shown in some trials to reduce symptoms of neuropathy. Other research suggests adding Vitamin B9 (folic acid, L-methylfolate) and B12 (cyanocobalamin, methylcobalamin).
– Vitamin B6 and B9 are well absorbed by tablet, capsule or injection. B6 can be administered with food to reduce upset stomach.
– Vitamin B1 is adequately absorbed in tablet or capsule form and rapidly and completely absorbed after injection into the muscle. The active metabolite of thiamine is pyridoxal-5-phosphate.
– Vitamin B12 absorption can vary from person to person, but is less well absorbed by mouth (tablet, capsule, sublingual) than the rapid and complete absorption after injection under the skin or into the muscle. Limited evidence suggests B12 nasal spray (Nascobal) achieves levels similar to injection into the muscle.
Befotiamine and methylcobalamin are marketed as dietary supplements. Metanx is a medical food marketed for diabetic neuropathy and contains L-methylfolate calcium (an active form of Vitamin B9, folic acid), pyridoxal-5-phosphate (an active form of Vitamin B6, thiamine) and methylcobalamin (Vitamin B12) along with algae-S powder. This is a medical food but is sometimes covered by insurance.”
For those of you with good results in treating neuropathy, what products are you using?
Can someone please respond with an email an include the name @jewel8888, so i can respond to her with a private message. Because I have not been able to get achold of her and I have accidentally dedeleted the message that she sent. Hopefully that will work. Thanks fior all of your help
Here’s how you can send a private message to Jewel:
Here’s how to send a private message:
1. Click the member’s @username. in this case, @jewel8888.
2. Click the envelope icon Send Private Message.
3. Write a subject and your message.
4. Click Send Message.
Jewel, will also have received an email notification each time you mentioned her name in your message. Perhaps she is away at the moment. She is usually quite responsive.
I’ve just started the Vitamin B therapy, and I’m cautiously optimistic. I don’t have the bottle in front of me, but I’m taking Nature Made B-100 tablets. It’s a combination of B1, B6, B12 and riboflavin. I believe there’s also some biotin in there. I take a dose 3 times a day. If you want exact dosages, I can provide those in another reply. I started this therapy when I learned of a Japanese study whose results showed significant improvement in individuals with feet/leg cramps. I’ve been taking the B vitamins less than two weeks, and I haven’t had a major episode of cramps.
I just came from my neurologist. She told me to continue with 300 mg Gabapentin,twice daily and B12.
Lyrica is the trade name for pregaba and works on the same neurotransmitter to reduce pain.
I just have the numbness/tingling with my neuropathy and have no need to take a pain medications. I take B12 (2 ml in the morning and 2 ml in the evening) along with other vitamins that has helped with my neuropathy. I also take B7 (Biotin) in the middle of the day so that it doesn’t interfere with the R-ALA I take in the morning and evening. Along with that I also take 1.5 oz of Mantoba Harvest Hemp Oil once a day and 2 tsps of high quality fish oil twice a day. These along with a few other ones I take has stopped the progression of my neuropathy and I believe it’s actually started repairing some of the nerve damage. The numbness was just below both knees when I started taking the protocol last September and it’s now just above my ankles. It’s still subjective on my part but it’s better than it was and my neurologist told me there was nothing that would help with the numbness.
Hi, I’m wandering if this is alright to start taking without talking to my Dr. Can we get side effects from to much B? Thanks for you help. I’m new here and don’t want to step out of bounds. Jody
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