Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

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Could be. However usual causes ruled out. Have tried acupuncture with limited success, primarily for back pain, not feet.

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@desirea

Hello @papillon3. I have been taking Gabapentin now for 10 yrs. It was prescribed to me for deep depression. I am sorry to report that I had no side effects except feeling happy on it. My thoughts were clearer, also. Some side effects do fade out, I've experienced with other medications. Gabapentin is prescribed for many different issues. Especially Peripheral neuropathy.
Take care for now!

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I was prescribed Gabapentin by my Neurologist for Peripheral Neuropathy in 2015. I took it for a couple of years. Gained 50 lbs. Gave me worse balance issues. Contributed to daytime sleepiness. I read about the side effects and along with the fact that my symptoms are some burning shooting pain but MOSTLY numbness, (it does nothing for numbness!) decided to get off of it. My Dr. agreed to wean me from it so we did.
I did notice it helped the Fibromyalgia pain, but the side effects vs the benefits didn't add up.
So I was on 900 mg 3 x a day and said… This is no good!
If you go to the Mayo website on the section on drugs, you can read more.
Long before I was using Mayo Connect, I'd been receiving the emails from Mayo Clinic to notify me of many topics. I really enjoy getting the notifications in email. Along with that, WebMD is very helpful too.
Darlia

Liked by steeldove

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@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

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Be very careful with taking Cymbalta because it can interact with many other meds and cause Seratonin Syndrome. It happened to me just last year. Took my Zofran and 1st dose of Cymbalta and boom …ended up in n the ER. I will never take it again! Bad drug! Recommend to ALWAYS go to Drugs.com 1st before taking any new med. I usually do, but this one time I didn't and WOW. Could be life threatening! You can plug in all your meds and it checks for you.
Darlia

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@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

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I am a care giver for a person with neuropathy. He was placed on cymbalta for nerve pain. This drug makes one feel wonderful. It is given for depression also. This drug caused divorce in my family. This man could not make decisions for himself. He spent $30,000. in three months for junk. He became a child. He was arrested for shop lifting. He thought he was superman and could do anything. When he tried to get off this medication, he was very sick and it took almost two months. He had brain sparks for 2 years after getting off this medication. If you are thinking of taking cymbalta, and doctors joyfully order this for you, then please read what people are saying on the internet. It has ruined attorneys and doctors and other people that have high intelligence. Please be careful with Cymbalta.

Liked by steeldove

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@desirea

Hello @papillon3. I have been taking Gabapentin now for 10 yrs. It was prescribed to me for deep depression. I am sorry to report that I had no side effects except feeling happy on it. My thoughts were clearer, also. Some side effects do fade out, I've experienced with other medications. Gabapentin is prescribed for many different issues. Especially Peripheral neuropathy.
Take care for now!

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I'm with you Darlia, Gabapentin does nothing at all for the numbness in my feet and legs and it causes daytime sleepiness. I'm struggling to make myself eat at least twice a day, but weight wants to jump on! My best form of pain management is a 60-minute deep-water workout with resistant weights and force gloves, followed by a soak in the hot tub.

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@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

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Thank you for the advice, ealanddtc. I got a scrip for Cymbalta last week from a neurologist at Washington University Medical School and have already decided that I will not fill it. Your post just strengthened my resolve!

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@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

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@steeldove

I didn't have bad side effects from Cymbalta except for one – ED. My wife and I are happy that I quit taking it.

Jim

Liked by steeldove

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@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

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We have to have something to enjoy!!!!

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As you all know neuropathy can have many causes! My husbands neuropathy several years ago disappeared when he stopped a med he’d been on for a couple of years to prevent UTI’s that had not caused a problem in the first year or so! Since then 2 other totally unrelated meds have caused neuropathy so we feel it may be related to “fillers” that are used to produce meds! Look closely at all the meds you are on even those you’ve been on for a long time! When possible stop a med and see if neuropathy lessons after a couple of weeks. If it is a filler there is not a good way to figure that out!

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I have peripheral neuropathy in both feet, R foot is the worst and It's getting worse, especially when driving and at night. I have researched this, since the cause is unknown. I had taken statin drugs for over 20 twenty years and it seems there have been many studies done that show a relationship between statins and idiopathic neuropathy. Can't get any answers and I'm trying to stay off a lot of meds that have side effects such as Gabapentin.

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@jjwest

Hi ALL,
I have been on a Chronic pain group and I ran across this one recently. I have had peripheral neuropathy for at least 12 years. At first it started with restless legs, then gradually started in my feet, burning, tingling then progressed to extreme burning,stabbing pain. my knees and my hands. I would cry and walk. Tylenol helped some, And just recently has progressed up to knees and hands. Finally went to an orthopedic pain Dr. He diagnosed me with peripheral neuropathy. I had an event that had me admitted to the hospital. During that visit a neurologist was checking me over and asked if I had taken gabapentin for the neuropothy. I was given a 300mg with a 50mg of tramadol, and had the best sleep I had had in years. so I started taking 300 mgs a day now I have progressed to 600mg 4 times a day, sometimes more, if I have to. That doesn’t happen as much as it used to. But I always take a 50mg of tramadol with the gabapentin. I have tried taking it without the tramadol, with tylenol, but the gabapentin does not seem to work as well without the tramadol.
I am told that I have that I have peripheral neuropathy because of cervical neck surgery, nerve damage to my upper spinal cord because of bone spurs. And I have severe spinal stenosis in my lower back.. I have tried to get cymbalta that was prescribed by my present pain Dr, but since I do not have drug insurance, I could not afford it….$360 for month supply. The neuropothy gets worse at night. Many nights I cannot sleep even when taking meds. Walking seems to help, something about the pressure that seems to help/ Many times I cannot walk because I cannot feel my feet, that is usually when I have waited too long before taking my meds. I use a rolling walker most all the time, it helps when I cannot feel my feet, and my balance is very iffy. I feel so very bad for those who are suffering with this. Hope any of this sharing helps.
PEACE & LOVE..JJ

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So sorry , sounds like your living my life!

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@jjwest

Hi ALL,
I have been on a Chronic pain group and I ran across this one recently. I have had peripheral neuropathy for at least 12 years. At first it started with restless legs, then gradually started in my feet, burning, tingling then progressed to extreme burning,stabbing pain. my knees and my hands. I would cry and walk. Tylenol helped some, And just recently has progressed up to knees and hands. Finally went to an orthopedic pain Dr. He diagnosed me with peripheral neuropathy. I had an event that had me admitted to the hospital. During that visit a neurologist was checking me over and asked if I had taken gabapentin for the neuropothy. I was given a 300mg with a 50mg of tramadol, and had the best sleep I had had in years. so I started taking 300 mgs a day now I have progressed to 600mg 4 times a day, sometimes more, if I have to. That doesn’t happen as much as it used to. But I always take a 50mg of tramadol with the gabapentin. I have tried taking it without the tramadol, with tylenol, but the gabapentin does not seem to work as well without the tramadol.
I am told that I have that I have peripheral neuropathy because of cervical neck surgery, nerve damage to my upper spinal cord because of bone spurs. And I have severe spinal stenosis in my lower back.. I have tried to get cymbalta that was prescribed by my present pain Dr, but since I do not have drug insurance, I could not afford it….$360 for month supply. The neuropothy gets worse at night. Many nights I cannot sleep even when taking meds. Walking seems to help, something about the pressure that seems to help/ Many times I cannot walk because I cannot feel my feet, that is usually when I have waited too long before taking my meds. I use a rolling walker most all the time, it helps when I cannot feel my feet, and my balance is very iffy. I feel so very bad for those who are suffering with this. Hope any of this sharing helps.
PEACE & LOVE..JJ

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Hello Paula (@paulagershoony), welcome to the Anyone here dealing with peripheral neuropathy? discussion. May I ask what kind of neuropathy you have? I have idiopathic small fiber peripheral neuropathy but the only symptoms I have are numbness in the feet and no real pain. The neurologist said he thought it was hereditary.

John

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@johnbishop

For those of you living in and around the Minneapolis, Minnesota area, the Minnesota Neuropathy Association’s next meeting is on Saturday, March 25th and looks to be an interesting topic. I attached a meeting flyer and directions.

Medical Cannabis – what’s it all about?

Our speakers on March 25 are Dr. Gary Starr, one of the co-founders of the cannabis
manufacturer LeafLine Labs, and our Board member, Mary McLeod. Both will talk about
the use of cannabis in addressing neuropathic pain.

Mary has used it as a peripheral neuropathy patient, and will tell us of the process
involved in applying for the state cannabis registry, and her experience as a consumer.

Dr. Starr will address the origins of the medical cannabis industry in Minnesota, the
research involved in setting up their labs, and their reasons for going into this business.
He will also review the variety of pain and other medical problems with which they have
worked, the general results these trials have shown, their specific experiences with
neuropathic patients, and where they expect to go from here.

Meeting location:
St. Michael’s Lutheran Church
9201 Normandale Boulevard,
Bloomington, MN 55437

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Thanks for the info for the meeting on 3/25/18, I don't see a time for it. Could you please let us know? I would love to go.

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@johnbishop

For those of you living in and around the Minneapolis, Minnesota area, the Minnesota Neuropathy Association’s next meeting is on Saturday, March 25th and looks to be an interesting topic. I attached a meeting flyer and directions.

Medical Cannabis – what’s it all about?

Our speakers on March 25 are Dr. Gary Starr, one of the co-founders of the cannabis
manufacturer LeafLine Labs, and our Board member, Mary McLeod. Both will talk about
the use of cannabis in addressing neuropathic pain.

Mary has used it as a peripheral neuropathy patient, and will tell us of the process
involved in applying for the state cannabis registry, and her experience as a consumer.

Dr. Starr will address the origins of the medical cannabis industry in Minnesota, the
research involved in setting up their labs, and their reasons for going into this business.
He will also review the variety of pain and other medical problems with which they have
worked, the general results these trials have shown, their specific experiences with
neuropathic patients, and where they expect to go from here.

Meeting location:
St. Michael’s Lutheran Church
9201 Normandale Boulevard,
Bloomington, MN 55437

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@suzeebee227 the meeting was actually last year 3/25/2017. I just missed their last meeting on Feb 24th but will post their next meeting here when it's scheduled. Their website posts the meetings and other information – http://neuropathy-mn.org/

John

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@johnbishop

For those of you living in and around the Minneapolis, Minnesota area, the Minnesota Neuropathy Association’s next meeting is on Saturday, March 25th and looks to be an interesting topic. I attached a meeting flyer and directions.

Medical Cannabis – what’s it all about?

Our speakers on March 25 are Dr. Gary Starr, one of the co-founders of the cannabis
manufacturer LeafLine Labs, and our Board member, Mary McLeod. Both will talk about
the use of cannabis in addressing neuropathic pain.

Mary has used it as a peripheral neuropathy patient, and will tell us of the process
involved in applying for the state cannabis registry, and her experience as a consumer.

Dr. Starr will address the origins of the medical cannabis industry in Minnesota, the
research involved in setting up their labs, and their reasons for going into this business.
He will also review the variety of pain and other medical problems with which they have
worked, the general results these trials have shown, their specific experiences with
neuropathic patients, and where they expect to go from here.

Meeting location:
St. Michael’s Lutheran Church
9201 Normandale Boulevard,
Bloomington, MN 55437

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Hi again John,
Sorry about that. I'll have to pay more attention to the dates but I will be anticipating and looking forward to the next meeting.
Thank you so much.

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