Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

Jump to this post

Hi Jim your looking for natural remedies then try what I did after suffering chronic pain with none of the pain killers working I approached. Hypnotherapist who was prepared to help me and after 2+ hours with her I went from an 8/9 pain level down to a two that was about 9 months ago and it has stayed at that level but it is something you must believe in
Regards Brian

REPLY
@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

Jump to this post

Have had adverse reactions with Gabapentin. Eyes had difficulty focusing for almost a day after minimal dosage 100 mg at bedtime. What to try??

REPLY
@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

Jump to this post

Hello @papillon3 — welcome to Connect. Not all people react to gabapentin the same but vision problems are one of the less common side effects according to the information on Mayo Clinic's site here:
https://www.mayoclinic.org/drugs-supplements/gabapentin-oral-route/side-effects/drg-20064011

Have you talked to your doctor about the difficulty with your eyes focusing after taking the gabapentin? I think it's important to share that with them. Maybe they can recommend something else that helps.

I'm tagging other Connect members who have discussed gabapentin to see if they have any information they can share. @bonnieh218, @desirea, @jimhd, @donny67, @gman007 do you have any suggestions or information to share with @papillon3 ?

John

REPLY

Hello @papillon3. I have been taking Gabapentin now for 10 yrs. It was prescribed to me for deep depression. I am sorry to report that I had no side effects except feeling happy on it. My thoughts were clearer, also. Some side effects do fade out, I've experienced with other medications. Gabapentin is prescribed for many different issues. Especially Peripheral neuropathy.
Take care for now!

REPLY
@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

Jump to this post

Hi, I'm the "new girl" on the block. I have had a connective tissue disorder for about 20 years and used to see a regular pain Management doctor who only gave pain pills and nerve blocks! I finally said enough and went in search of another pain doctor. Upon going the Neurologist for carpal tunnel he referred me to a great pain management doctor. She is an Anesthesiology Doctor with a Ph.D. and a degree in Oriental Medicine! I can't begin to tell you the pain relief she has brought to me! Keep in mind I have nerve damage from Chiari brain surgery, laminectomy and craniectomy along with bone graphs and other damage at the foreman magnum!
She does cupping, acupressure, acupuncture, herbal treatments, etc. Sure some days are still hard and I need the extra help; but, her methods HELP! I was skeptical at first until after the first several treatments! My migraines were almost gone! I was happy person untl the problem below hit me. Just waned to drop a line that Alternative Medicine does work!

REPLY
@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

Jump to this post

Welcome to Connect, @papillon3 .

I just tried Gabapentin, up to 200mg three times a day, but wasn't thinking clearly, so I'm tapering off it.

Autonomic neuropathy sometimes causes eye problems, like blurry vision and double vision. Could it be that the disease is the source of the symptoms, rather than Gabapentin?

Just a thought.

Jim

REPLY
@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

Jump to this post

It this the same thing to me! I couldn't take it. Had the same issue's with the eye's, including floaters. Good point on Neuropathy! Having Chiari with severe nerve damage, it has affected one eye so far, blurry vision, double vision. Hmmm. Thanks for info!

REPLY

Hello @johnbishop and All:

While I'm a volunteer mentor with Connect this is my first question for the neuropathy group.

Here goes: For the past couple of weeks, I've had a tingling sensation on my inner right leg. It centers of the inner knee area and extends up the thigh and down the calf (all only on the inner rights side only). I do have arthritis in the right knee as well as lumbar disc problems (right lower back and right hip hurt the most). The tingling is the only symptom – no numbness, etc. Any suggestions as to this being a neuropathy-like condition?

Teresa

REPLY

Good morning Teresa (@hopeful33250), I would welcome you to the polymyalgia rheumatica club but I'm hoping you're just a visitor ☺ I had similar issues with my arm when I didn't have PMR due to sleeping on it once in awhile. I wonder if it might be something similar – nerve compression? I did find a new one that I'm not familiar with – Meralgia paresthetica. The Mayo Clinic site has a description here – does this sound similar?

https://www.mayoclinic.org/diseases-conditions/meralgia-paresthetica/symptoms-causes/syc-20355635

John

REPLY

Thank you for the link, @johnbishop, that was interesting. The only difference between that description and my problem is that I only have the problem on the inner part of the leg, not the outer. You mentioned polymyalgia rheumatica, so I looked that up and see that it is on both sides of the body, not just one – hmmm – I hope that means I won't have to join that club 🙂

Thanks for your suggestion, perhaps I'll contact my neurologist – just would like some more background before I do that (I always prefer to be one step ahead of the doctor).

Teresa

REPLY

When I retired from nursing in 2006, had a two year bout with neuropathy. No numbness. Yes, had the imaging, the blood tests, and followed conventional medicine. Short of traveling to Mayo after two years of medical assessments and conventional therapy, since I am a long time researcher in alternative medicine. Tried something else. Started to read about benefits of turmeric(also found in different curry products), and developed a supportive network to new friends in the Philippines. Yes, short of the long trip to Mayo…the symptoms cleared. Most people know benefits of turmeric(and science based studies in functional food medicine, phytochemistry)…today, world wide, U.S.(Herbalgram a good network) and beyond. Plus a spiritual support, new friends, new thought patterns, and part of the integrative medical picture. Good Luck. Now I am investigating and slow progress with my bouts of dizziness(another neurological condition), as previously, conventional medicine not helpful(except to rule out conditions: MRI, CAT Scan, blood work. And finding a qualified neurologist And as before, to explore neurology research, yes, some progress: the herb of choice is ginger, and happily my spiritual support people in the Philippines. Good Luck. JIM>>>>

REPLY
@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

Jump to this post

Jim, I've wondered the same thing: Is it the disease or is it Gabapentin. I have in my hand a script for Cymbalta, but as I have no drug insurance, I doubt that I'll get a month's supply for $458.99!

REPLY
@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

Jump to this post

I am not a physician. I am not impressed with Gabapentin. But the technology, in plant medicine, including(marijuana), compared to the 60's or 80's….the science is unbelievable. Plant strains with little or no THC, and the science of phytochemistry is world wide and much advanced(I support wholely medical marijuana), the oils of that plant, in the right strain…functional food medicine. Good Luck. JIM>>>

Liked by steeldove

REPLY
@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

Jump to this post

@oh_suzie_q I love the picture of the kitty, very photogenic! Is that your cat?

Teresa

REPLY
@kgoodwin9

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

Jump to this post

@steeldove

I was glad to get off Cymbalta, as it was a primary contributor to ED. If it were legal to do so, I'd send you my last 2-3 month supply for a lot less than $458.99. It was ineffective for me for neuropathy pain.

Jim

REPLY
Please login or register to post a reply.