Anyone here dealing with peripheral neuropathy?
Interested in more discussions like this? Go to the Neuropathy Support Group.
ANYONE THAT HAS NEUROPATHY PLEASE GO TO THIS LINK http://WWW.SILVESTERFOOTCLINIC.COM and then HOW WE CAN HELP, and then NERVE PAIN and read that page, and then scroll down and click on the link neuropathy. And you will see the different options he has available for people including the surgery that I mentioned the other day that no one had ever heard of. I am very excited. My appt. is May 16th. I will let you guys know how it goes. Wish me luck…. It all sounds really great. I hope you guys get this. I have tried typing this about 4 times and something keeps happening and throwing me out.
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Here’s the abstract of a research paper I found about “Surgical treatment of peripheral neuropathy: outcomes from 100 consecutive decompressions.” https://www.ncbi.nlm.nih.gov/pubmed/16166462 Published in 2005.
According to the Mayo Clinic information (http://mayocl.in/2qBbcFY) “If you have neuropathies caused by pressure on nerves, such as pressure from tumors, you might need surgery to reduce the pressure.”
We will be very interested in hearing what you find out on May 16th. Hopefully this information helps to prepare questions you might ask at the appointment. Please keep us posted.
Also @mikween, can you please send me a message using this form to tell me about the tech issues you were having with the website: https://connect.mayoclinic.org/contact-a-community-moderator/
Additionally, we discourage the use of ALL CAPS for writing messages as it is considered shouting in online communication. Maybe you’re excited and feel like shouting 🙂 Still I recommend turning the all caps off. See the community guidelines here: https://connect.mayoclinic.org/community-guidelines/
Hi @colleenyoung, sorry about the all caps. I just wanted to know are you the only one that revived my message about the link I sent? And if so how do I get everybody to get it?
When you reply to an email that you receive from Mayo Clinic Connect’s website, your message is posted for everyone to see. Click VIEW & REPLY in this email and you will see the entire discussion thread about neuropathy. Scroll up and you’ll see your post with the link to the website about surgery options.
I hope this clarifies. I have posted this publicly because I believe other members may have the same question. Thank you for raising it.
Notice this review from 2013 that was referenced in this article. https://www.ncbi.nlm.nih.gov/pubmed/24124946 It references the need for more research into the seeing if diabetic neuropathy may be a compression-caused neuropathy since compression relieving surgery seems to help.
hi @colleenyoung I do not have a view and reply button on my screen. I think I saw it one time, but now I am not seeing it anymore I only see Post reply. Is something wrong with my machine or am I not looking in the right place?
hi @colleenyoung or should I just hit reply from within my e-mail itself since I do not see a view and reply button?
So now does everyone see this. I just hit reply from my e-mail direclty.
I see it.
I would like to thank everyone that has sent me more information on neuropathy. It has certainly made me think twice about having the surgery. I really liked the link to the different Meds., Therapies, and Alternative medicine. I am so glad that I found this discussion group. Another Dr. Elkwood that I had been working with before a couple of years ago about my foot drop. Which I did not go because somone told me all he would be doing would be a tendon transfer. And at that point he told me he could help me. So, I found another doctor in this area and he told me my chances would be 50/50. For it to work. So I did not go, perhaps I should have. I have read good reviews about him. Has anybody ever heard of him. Anyway I got in contact with her again a ask if he did anything with people that had neuropathy and that had foot drop. She responded almost really soon and already a date set up for surgery. In the meantime I was going to get her a. Updated EMG for my Foot Drop to see if he could still help me with that. Because the latesed EMG he had was from 2013 and at that point he said he could have helped me. So, I told her I did not want to do anything until we got my EMG. I am sure that it is to late to do anything about my foot drop. But I was not ready to set up any surgey especially since I have this appt. set up with this doctor in May. I a could not beilive that she already had it set up without even talking to me. Because of course I am going to have many questions. What kind of questions might you guys ask the doctor? If you do not mind me asking you. Just because I am sure that I will forget to ask something about the surgery. Besides the main ones.
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