I'm now 81 & have suffered from peripheral neuropathy for years. It affects my ability to walk long distances & gives me itching & burning pain in my ankles.
I have bewen trating my condition with daily Vitamis B11 & B12 + weekly B6. I have been trating the affected areas with CORTIZONE 10 cream but I have recently switched to wearing nylon stockings held up by a garter belt. Thhe positive effect of releaving the discomfort was almost immediate.
I wear a pair of nyloons fior 2 days then put them in the laundry. I use cold water & Ivory liquid, then hang them up to dry.
The nylons I wear werre purchased on Amazon, size Large. But when I put tthem on they are snug so there is a compression effect. My calf diameter is 20 inches for the size I wear.
Wearing nylons has been a great relieef. I now feel the pain onlyy occasionally. Then I unclip the stocking, rub on the cream, then reattach it to the garter belt.
I'm now 81 & have suffered from peripheral neuropathy for years. It affects my ability to walk long distances & gives me itching & burning pain in my ankles.
I have bewen trating my condition with daily Vitamis B11 & B12 + weekly B6. I have been trating the affected areas with CORTIZONE 10 cream but I have recently switched to wearing nylon stockings held up by a garter belt. Thhe positive effect of releaving the discomfort was almost immediate.
I wear a pair of nyloons fior 2 days then put them in the laundry. I use cold water & Ivory liquid, then hang them up to dry.
The nylons I wear werre purchased on Amazon, size Large. But when I put tthem on they are snug so there is a compression effect. My calf diameter is 20 inches for the size I wear.
Wearing nylons has been a great relieef. I now feel the pain onlyy occasionally. Then I unclip the stocking, rub on the cream, then reattach it to the garter belt.
Welcome @jacksinpa, Thanks for sharing what helps you with your peripheral neuropathy. I also have been dealing with peripheral neuropathy for many years but fortunately I just have numbness and some tingling with no pain. I also take vitamins and supplements to hopefully help slow or stop the progression. I wear knee high compression socks but not for neuropathy. They are needed to control swelling from lymphedema in my legs. Not sure if you have seen the Foundation for Peripheral Neuropathy website but they have a lot of helpful information on living well with neuropathy - https://www.foundationforpn.org/living-well/.
Do you have to take any medications to help with your neuropathy?
Yes! Cancer treatment of chemo & radiation has given me neuropathy in my feet. Uncomfortable. I wear supportive shoes which seem to help . Any other suggestions will be accepted! I’d appreciate hearing from others
Welcome @jacksinpa, Thanks for sharing what helps you with your peripheral neuropathy. I also have been dealing with peripheral neuropathy for many years but fortunately I just have numbness and some tingling with no pain. I also take vitamins and supplements to hopefully help slow or stop the progression. I wear knee high compression socks but not for neuropathy. They are needed to control swelling from lymphedema in my legs. Not sure if you have seen the Foundation for Peripheral Neuropathy website but they have a lot of helpful information on living well with neuropathy - https://www.foundationforpn.org/living-well/.
Do you have to take any medications to help with your neuropathy?
@johnbishop I founnd the following via a Google search: Gabapentin is a prescription medication commonly used to treat chronic peripheral neuropathy, particularly diabetic nerve pain and postherpetic neuralgia. It works by modulating calcium channels to reduce pain signals. While effective for some, many patients do not experience significant relief, and it may cause side effects like drowsiness and dizziness.
Coincidentally I have been taking this prescription drug for over 30 years for a psychiatric condition called bipolar & it apparently had no effect on my neuropathy. I think my doctor recomended the skin lotionCeraVie. The OTC cream CORTIZONE 10 seems to have worked for me but as you have to wait for hgours for the steroid to get into your skin it does not work right away. Other pain-killing creams with lidocaine may work right away but I have not tried them.
Whilethere seems to be a lot of interest in compression socks & stockings, my involvement with female nylons & garter belts goes back to the 1960s before the advent of panty hose. I have a collection of lingerie items but only recently started wearing nyloms & belts full time. Their positive effect on my neuropathy amazes me. While my ankles don't seem to be swollen, the nylons make a fairly tight fit. The size is large on Amazon. I have just bought some mnore inb sizes large & X-large to determine the best fit as I will be wearing them with my shiorts on a daily basis as the weather warms up. The garter belt clasps & the lacy hem of the nylons won't show inside my shorts. If anyone asks (I livve in a retirement community) wht I'n wearing ladies' nylons, now I can reply tthat they are for a medical condition.
I have CIDP, with burning pain in my feet and ankles and tingling and numbness up to my knees. No neuropathy medication has helped except for Lyrica, which I unfortunately reacted to and spent a few days in the hospital, incoherent. I'm now doing subcutaneous infusions at home once a week of Hizentra. It reduces the pain from 8-9 to 3-5. I also put Lidocaine cream on my feet at bedtime to numb the pain long enough to get to sleep. I did IVig for a few years, with Privagen, but felt no relief.
For me, socks just make my feet hurt more. Basically, any contact hurts - having my foot on the accelerator, walking, having the bedding touch my feet... I've tried many different shoes, but none of them is any better than the others. Crossing my legs hurts. Sitting in the recliner is ok for an hour or less. Lying on the bed gives the most relief, but I've always been a type A person, and lying down for an hour 2 or 3 times a day is depressing. (I also have MDD and RLS and sleep apnea and PTSD.)
We each do what we can to cope with the pain. There is certainly a plethora of treatments, from snake oil to legit options.
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I'm now 81 & have suffered from peripheral neuropathy for years. It affects my ability to walk long distances & gives me itching & burning pain in my ankles.
I have bewen trating my condition with daily Vitamis B11 & B12 + weekly B6. I have been trating the affected areas with CORTIZONE 10 cream but I have recently switched to wearing nylon stockings held up by a garter belt. Thhe positive effect of releaving the discomfort was almost immediate.
I wear a pair of nyloons fior 2 days then put them in the laundry. I use cold water & Ivory liquid, then hang them up to dry.
The nylons I wear werre purchased on Amazon, size Large. But when I put tthem on they are snug so there is a compression effect. My calf diameter is 20 inches for the size I wear.
Wearing nylons has been a great relieef. I now feel the pain onlyy occasionally. Then I unclip the stocking, rub on the cream, then reattach it to the garter belt.
Jack in Buycks, PA
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3 ReactionsWelcome @jacksinpa, Thanks for sharing what helps you with your peripheral neuropathy. I also have been dealing with peripheral neuropathy for many years but fortunately I just have numbness and some tingling with no pain. I also take vitamins and supplements to hopefully help slow or stop the progression. I wear knee high compression socks but not for neuropathy. They are needed to control swelling from lymphedema in my legs. Not sure if you have seen the Foundation for Peripheral Neuropathy website but they have a lot of helpful information on living well with neuropathy - https://www.foundationforpn.org/living-well/.
Do you have to take any medications to help with your neuropathy?
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1 ReactionIm getting CET treatments that create new nerves in my legs and feet. Its also covered by medicare.
@johnbishop I founnd the following via a Google search: Gabapentin is a prescription medication commonly used to treat chronic peripheral neuropathy, particularly diabetic nerve pain and postherpetic neuralgia. It works by modulating calcium channels to reduce pain signals. While effective for some, many patients do not experience significant relief, and it may cause side effects like drowsiness and dizziness.
Coincidentally I have been taking this prescription drug for over 30 years for a psychiatric condition called bipolar & it apparently had no effect on my neuropathy. I think my doctor recomended the skin lotionCeraVie. The OTC cream CORTIZONE 10 seems to have worked for me but as you have to wait for hgours for the steroid to get into your skin it does not work right away. Other pain-killing creams with lidocaine may work right away but I have not tried them.
Whilethere seems to be a lot of interest in compression socks & stockings, my involvement with female nylons & garter belts goes back to the 1960s before the advent of panty hose. I have a collection of lingerie items but only recently started wearing nyloms & belts full time. Their positive effect on my neuropathy amazes me. While my ankles don't seem to be swollen, the nylons make a fairly tight fit. The size is large on Amazon. I have just bought some mnore inb sizes large & X-large to determine the best fit as I will be wearing them with my shiorts on a daily basis as the weather warms up. The garter belt clasps & the lacy hem of the nylons won't show inside my shorts. If anyone asks (I livve in a retirement community) wht I'n wearing ladies' nylons, now I can reply tthat they are for a medical condition.
Hope this helps you & others.
Jack in Bucks, PA
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1 ReactionBest to all my fellow neuropathy patients as we fight the good fight with dignity and pride!
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1 ReactionI have CIDP, with burning pain in my feet and ankles and tingling and numbness up to my knees. No neuropathy medication has helped except for Lyrica, which I unfortunately reacted to and spent a few days in the hospital, incoherent. I'm now doing subcutaneous infusions at home once a week of Hizentra. It reduces the pain from 8-9 to 3-5. I also put Lidocaine cream on my feet at bedtime to numb the pain long enough to get to sleep. I did IVig for a few years, with Privagen, but felt no relief.
For me, socks just make my feet hurt more. Basically, any contact hurts - having my foot on the accelerator, walking, having the bedding touch my feet... I've tried many different shoes, but none of them is any better than the others. Crossing my legs hurts. Sitting in the recliner is ok for an hour or less. Lying on the bed gives the most relief, but I've always been a type A person, and lying down for an hour 2 or 3 times a day is depressing. (I also have MDD and RLS and sleep apnea and PTSD.)
We each do what we can to cope with the pain. There is certainly a plethora of treatments, from snake oil to legit options.
Jim
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1 Reaction@dennisntexas hi, what is CET
Combine electro.chemical therapy hor nerve growth. Google it for the details.