Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@deanna21239

Posted by deanna21239 @deanna21239, 3 minutes ago
In reply to @colleenyoung "@cbreiner, there are 2 medical terms that often get confused because they…" + (show)
I have Stage 3 Kidney disease and shattered my ankle in 2011. I was told a few years ago that I have Peripheral Nephropathy, so cannot take anything for pain but Tramadol, doesn't help the pain much, and wondered what else there is. I heard from my Kidney Doctor that Medical Marajuana is ok because it is natural, but have not tried that yet. Also have Diabetes now.

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@deanna21239, Good afternoon. You are certainly being challenged by your medical conditions. The restriction on medications at this point notably leaves you with fewer choices. I do agree with your nephrologist that medical cannabis is ok. Even better, from my perspective, it can significantly improve your current quality of life by relieving pain and inflammation as well as lifting that cloud that is hanging over you.

The task of developing a medical cannabis program for one's self is a hurdle that requires research and the guidance of a helpful coach. There is no product or dosage chart for providers to follow. There are some medical cannabis pharmacologists associated with programs like Minnesota's. Over the last three years, I have experimented and followed the word of mouth recommendations of others. If I dig into the research I make sure it is from reputable sources.

@deanna21239 Maybe it is best to just net this out. Then you will have a preliminary reference guide.

For pain, especially pain from neuropathy, here is what works for me:
Morning…..a 1:1CBD/THC tincture held under the tongue so that it is delivered immediately to the pain area through the membrane located there rather than having it pass through the digestive system. That means….a higher concentration, more quickly, e.g. 10 – 15 minutes. It should last for 4-5 hours.

Afternoon….repeat the tincture with a 2:1CBD/THC dose. If you have neuropathy pain e.g. needles, tingling, in your extremities, use a verified 3:1 balm that should last a couple of hours.

Now you may have sufficient medication to last you till an hour before bedtime when you repeat the 2:1CBD/THC tincture and the balm and prepare for a restful sleep. I do keep a Palm vape pen (with Indica or a Hybrid) in my purse for some breakthrough pain that might happen during the day. There is also one on the nightstand for pain that might interfere with my sleep and heaven knows you need sleep…..uniterrupted by pain, or electric shocks/zaps.

Please let me know if you have additional questions or concerns. I am very willing to assist or help you find someone in this talented group of mentors and moderators with an experience that could be helpful.

May you be free of suffering today. Chris

REPLY
@artscaping

@deanna21239, Good afternoon. You are certainly being challenged by your medical conditions. The restriction on medications at this point notably leaves you with fewer choices. I do agree with your nephrologist that medical cannabis is ok. Even better, from my perspective, it can significantly improve your current quality of life by relieving pain and inflammation as well as lifting that cloud that is hanging over you.

The task of developing a medical cannabis program for one's self is a hurdle that requires research and the guidance of a helpful coach. There is no product or dosage chart for providers to follow. There are some medical cannabis pharmacologists associated with programs like Minnesota's. Over the last three years, I have experimented and followed the word of mouth recommendations of others. If I dig into the research I make sure it is from reputable sources.

@deanna21239 Maybe it is best to just net this out. Then you will have a preliminary reference guide.

For pain, especially pain from neuropathy, here is what works for me:
Morning…..a 1:1CBD/THC tincture held under the tongue so that it is delivered immediately to the pain area through the membrane located there rather than having it pass through the digestive system. That means….a higher concentration, more quickly, e.g. 10 – 15 minutes. It should last for 4-5 hours.

Afternoon….repeat the tincture with a 2:1CBD/THC dose. If you have neuropathy pain e.g. needles, tingling, in your extremities, use a verified 3:1 balm that should last a couple of hours.

Now you may have sufficient medication to last you till an hour before bedtime when you repeat the 2:1CBD/THC tincture and the balm and prepare for a restful sleep. I do keep a Palm vape pen (with Indica or a Hybrid) in my purse for some breakthrough pain that might happen during the day. There is also one on the nightstand for pain that might interfere with my sleep and heaven knows you need sleep…..uniterrupted by pain, or electric shocks/zaps.

Please let me know if you have additional questions or concerns. I am very willing to assist or help you find someone in this talented group of mentors and moderators with an experience that could be helpful.

May you be free of suffering today. Chris

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Thank you SO much for that clear and detailed explanation of how this stuff works. Although I have spoken to many "experts" no one has been as clear as you.
If I may, one question: A full dropper full of 2:1 is WAY too much for me. How many drops, in your experience, seems to work best. I guess I could start again with one drop each time but I know that is not enough.
I welcome your insight.
Arnrob

REPLY
@arnrob

Thank you SO much for that clear and detailed explanation of how this stuff works. Although I have spoken to many "experts" no one has been as clear as you.
If I may, one question: A full dropper full of 2:1 is WAY too much for me. How many drops, in your experience, seems to work best. I guess I could start again with one drop each time but I know that is not enough.
I welcome your insight.
Arnrob

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@arnrob, Good morning. Thanks….I am glad that my “netting it out” worked for you. Here’s the deal….I am not very good with ml and mgs for medication.

I started a couple of years ago with 1/2 dropper or ,5 ml. That is about 18 to 20 drops depending on how tightly you squeeze it. I now take a full dropper. With the 2:1CBD/THC….that is about 25 drops.

Just like medications, our bodies adjust to medications and to cannabis. I feel nothing psychotropic except a calming sense of being OK. I am in complete control and have no pain anywhere for a glorious 4 hours.

Your body will tell you when the next dose is required. And it is wise to stay ahead of the pain.
Be healthy and whole today.
Chris
PS. Sometimes with a new brand I need to start with fewer drops until my body gets used to it. My best is Care By Design.

REPLY
@artscaping

@arnrob, Good morning. Thanks….I am glad that my “netting it out” worked for you. Here’s the deal….I am not very good with ml and mgs for medication.

I started a couple of years ago with 1/2 dropper or ,5 ml. That is about 18 to 20 drops depending on how tightly you squeeze it. I now take a full dropper. With the 2:1CBD/THC….that is about 25 drops.

Just like medications, our bodies adjust to medications and to cannabis. I feel nothing psychotropic except a calming sense of being OK. I am in complete control and have no pain anywhere for a glorious 4 hours.

Your body will tell you when the next dose is required. And it is wise to stay ahead of the pain.
Be healthy and whole today.
Chris
PS. Sometimes with a new brand I need to start with fewer drops until my body gets used to it. My best is Care By Design.

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GREAT!! Very helpful. Guess I will call on my chemistry training from college and make all the interchanges. Easily done.
Arnrob

REPLY

Hello everyone, I am new to this a I just found this web site, I was in the hospital for pneumonia, the someone sent a Dr that dealt with blood counts, and he told me to go online and try it for mayo clinic he said most of the are a waste of time. OK now for my illness I don't know a lot about it. I was told in 2015 that I had AIPD a spin off of guillin barre. I was falling a lot and then it got to the point that I could not get up my husband had to lift me up. Finally my husband said that it I was going to the doctor. We were up at our vacation property so we packed up and we had 2 vehicles there so I drove one home and then called my primary care doctor, he didn't know what was going on. He thought I might of had a stroke because my left side was the first to go. So I went to the hospital they ran so many tests and they could not figure it out. They decided I needed a cervical fusion and maybe that would clear the stuff I was having.They did the surgery and when I woke up I could no move my legs at all and my arms very little. Well I don't know much more the hospital I was in druged me up so far I was in a coma. Well they told my husband to get hospice they did not know what I had. Then 1 of the doctors told my husband they could get me into Henry Ford Hospital in /Detroit 2 hours away from home. But the best around. My husband say 3-4 days waiting and they took me there. Sorry but I need to stop and make dinner I will post more later.

REPLY
@sandyhill

Hello everyone, I am new to this a I just found this web site, I was in the hospital for pneumonia, the someone sent a Dr that dealt with blood counts, and he told me to go online and try it for mayo clinic he said most of the are a waste of time. OK now for my illness I don't know a lot about it. I was told in 2015 that I had AIPD a spin off of guillin barre. I was falling a lot and then it got to the point that I could not get up my husband had to lift me up. Finally my husband said that it I was going to the doctor. We were up at our vacation property so we packed up and we had 2 vehicles there so I drove one home and then called my primary care doctor, he didn't know what was going on. He thought I might of had a stroke because my left side was the first to go. So I went to the hospital they ran so many tests and they could not figure it out. They decided I needed a cervical fusion and maybe that would clear the stuff I was having.They did the surgery and when I woke up I could no move my legs at all and my arms very little. Well I don't know much more the hospital I was in druged me up so far I was in a coma. Well they told my husband to get hospice they did not know what I had. Then 1 of the doctors told my husband they could get me into Henry Ford Hospital in /Detroit 2 hours away from home. But the best around. My husband say 3-4 days waiting and they took me there. Sorry but I need to stop and make dinner I will post more later.

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@sandyhill
CIPD, perhaps?

REPLY
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