Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016
@margottaylor

I also have peripheral neuropathy starting in my legs and spreading now into my hands, especially fingers.
My balance and walking instability was improved immensely when I started wearing leg braces. While they are a bit cumbersome, I am able to walk quite well more efficiently and with much less fatigue.
I take 100mg of Gabapentin 3x/day with few side effects and much less pain in my back and down one leg.

Can someone tell me how peripheral neuropathy differs from other types of neuropothy?

Thanks,
Margot

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I would like to know too.

mlmcg

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@mlmcg

I would like to know too.

mlmcg

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@mimcg @margotaylor

Check out the Neuropathic Pain article on Wikipedia:https://en.wikipedia.org/wiki/Neuropathic_pain

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@elizm

@mimcg @margotaylor

Check out the Neuropathic Pain article on Wikipedia:https://en.wikipedia.org/wiki/Neuropathic_pain

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Thank you for the suggestion it still did not answer the questions I have.
mlmcg

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@mlmcg

Thank you for the suggestion it still did not answer the questions I have.
mlmcg

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It simply means the symptoms are showing in the peripheral areas if your body, that is your feet and hands. It is not a diagnosis, but a description. Neuropathy means death of nerves.

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@mlmcg, @margottaylor, this short video by Matthew B Jensen Assistant Professor of Neurology, University of Wisconsin that gives a good explanation of how the different neuropathies are diagnosed. You can do a Google search for Matthew B Jensen YouTube videos for other neuropathy related videos that give good explanations.

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@johnhans

It simply means the symptoms are showing in the peripheral areas if your body, that is your feet and hands. It is not a diagnosis, but a description. Neuropathy means death of nerves.

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Thanks John.

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In reply to @margottaylor "Thanks John." + (show)
@margottaylor

Thanks John.

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I found the information too technical for my needs. Thanks.
mlmcg

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Referral request for NYC-area PN Specialist. Hi. I have serious PN in my feet causing pain and difficulty walking. My neurologist has proven useless and seemingly uncaring. Can anyone please refer me to ''the man or lady'' in this specific field? Thank you very much ! Brucelawreformer @ gmail.com

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peripheral polyneuropathy diagnosed in 1994 over time it gotten worse, also have restless leg problems, I have never been given anything that helps with this problem.

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@jlpdurham526
For restless leg syndrome, I faithfully drink about 6-8 oz. of diet tonic water each night before I go to bed. It has just enough quinine in it to quiet my legs. It's inexpensive (I get 2-liter bottles at the grocery store) and it basically is a great, non-drug solution to a devilish issue.

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@elizm

@jlpdurham526
For restless leg syndrome, I faithfully drink about 6-8 oz. of diet tonic water each night before I go to bed. It has just enough quinine in it to quiet my legs. It's inexpensive (I get 2-liter bottles at the grocery store) and it basically is a great, non-drug solution to a devilish issue.

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thank you, I will try that.

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@brucea

Referral request for NYC-area PN Specialist. Hi. I have serious PN in my feet causing pain and difficulty walking. My neurologist has proven useless and seemingly uncaring. Can anyone please refer me to ''the man or lady'' in this specific field? Thank you very much ! Brucelawreformer @ gmail.com

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Hello @brucea, welcome to Mayo Clinic Connect. I have small fiber PN in my feet and ankles but no pain, only numbness. I was diagnosed at Mayo Clinic Rochester but I'm guessing you are trying to find a specialist or neurologist close. I did a quick search and found a few possibilities that may be OK but I'm hoping someone in the area can offer a suggestion.

The Peripheral Neuropathy Center at New York-Presbyterian Hospital/Weill Cornell Medicine
https://neuropathy.weillcornell.org/our-physicians/

Columbia University Department of Neurology
http://columbianeurology.org/patient-care/peripheral-neuropathies

Have you been given a specific diagnosis?

John

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