Anyone have the rare disorder of Hemifacial spasms

Posted by perplexed @perplexed, Mar 11, 2023

Anyone have the rate disorder of hemifacial spasms? I feel like I’m the only one with this rare debilitating disorder with no cure. Had my 4th Botox injections over 3 months ago & now severe Botox complications to where I look like I had a stroke similar to Bells Palsy.

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I am sorry to hear that you have this condition. My husband has it as well. So far, he has had some relief after working with a physical therapist. She taught him about pressure points between his eyebrows and between his thumb and first finger. Two other types of temporary relief have been to use soothing eye drops and to put warm compresses on his neck, behind his ear, on the affected side. He had an MRI that was negative. He is holding off on Botox or any surgical procedure.

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