Anyone have mycrobacterium lentiflavin?

Posted by squire123 @squire123, Mar 26, 2023

Just starting the process,, after multiple cases of severe bronchitis, pulmonary testing, lung infections, sputum tested positive for mycrobacterium lentiflavin. Currently awaiting results from Jewish National for susceptibility. Ct of lungs, Gerd and allergy control. Florida is allergy capital of USA. Dr is very conservative with tx. Any imput info would be helpful. Not much on Google. Thanks

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Sue, Volunteer Mentor | @sueinmn | Mar 27, 2023

@squire123 Welcome to Mayo Connect. We have a large group of people living with mycobacteria infections active in our support group, but M. Lentiflavum was new to me, so I looked a little - here is one description:
https://www.ijidonline.com/article/S1201-9712(17)30313-2/fulltext
It appears to be very closely related MAC (M. Avium Complex) and appears to follow the same treatment regimen. so you can probably learn a lot by reading some of the discussions here.

I am very glad that your specimen is being tested by NJH and it will be interesting to hear their recommendation.

What led you to be tested in the first place?
Sue

squire123 | @squire123 | Mar 27, 2023

In reply to @sueinmn "@squire123 Welcome to Mayo Connect. We have a large group of people living with mycobacteria infections..." + (show)

For the last 2 yrs, had several bouts of severe bronchitis, which were treated with 2 antibiotics and prednisone. Add wheezing, a nebulizer, asthma meds, which did nothing. Pulmonary workup. Sputum sample in Dec had 4 different bacteria. Levaquin and Bactrum together to kill it. Then on to HD, and to JN.

lauradefrance | @lauradefrance | Apr 19 4:56am

Bonjour,
Je viens de découvrir depuis peu, que j'avais contracté M.lentiflavum quand j'étais petite , il a était découvert quand je devais me faire opérer pour maladie griffe du chat.
Sauf que je ne savais pas, adulte je toussais beaucoup rhinopharyngite, rhino trachéite... Et autres qui passait à autre chose ma toux pouvait durer un mois trois mois et plusieurs fois comme ça dans l'année, cumuler je toussais bien la moitié de l'année. la nuit c'était pire je toussé trop mes larmes coulait toute seule.
Je n'ai pas pu évoquer m. Lentiflavum au médecin car j'ignorais que j'avais contracté ça plus jeune.
Ma question est aujourd'hui après ça vous reste-t-il des séquelles ? pour savoir s'il peut y avoir un rapport ou si c'est autre chose merci.

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