Anyone have a Leadless Pacemaker inplanted

Posted by alwayson @alwayson, Feb 24 11:45am

Pre-procedure question. I am scheduled to have one inplanted Monday 3/2/26. Wanted to know your experience and how well it's working for you.

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Hi, I got my first Avier leafless pacemaker February of 2024. It was placed in my right ventricle. They had the pace set at 45 BPM. I couldn’t take it, that was just too low and made it hard to breathe or do anything. About two months later, they adjusted it up to 60 bpm and I was back to living again. The problem was then I was starting to have more shortness of breath and fatigue. Having the pacemaker placed in my ventricle caused me to get left-sided heart failure, because the top and bottom were not working together. That is why they wanted to leave me at 45 because it made it easier for my heart to beat. They told me that I needed a second pacemaker now in my atrium. And it would be a dual chamber pacemaker, and the two would talk to each other. The problem was it would reduce the battery life. At this point, I don’t care about the battery life. I also have pulmonary hypertension, bronchiectasis, COPD. Anything that will help me feel better I will take. After they placed the dual chamber pacemaker in my atrium my left sided heart failure improved, and so did my pulmonary hypertension. I have to go in every six months to have my pacemaker interrogated. Also, anytime that I am not feeling well I have to go in and get my pacemaker interrogated. It is a little like being experimented on. But I’m very grateful for not having a slow heartbeat and having a way to fix it when I am in a fib. If I didn’t have the pacemakers, my heart would stop, as it did one time when they were converting me. I must tell you that the pacemaker doesn’t fix anything except a slow heartbeat. It does prompt your heart to beat, but doesn’t stop it from beating. So when I get converted, if it pauses, the pacemaker will start it again. I have written orders though that if my heart stops totally, they leave me that way. I’m so sorry that I didn’t see this before today. I see that March 2 was your procedure day. I hope that everything goes well and that you will see improved health. My best wishes to you, Janice.

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Of course, I meant leafless

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Profile picture for jw87 @jw87

Hi, I got my first Avier leafless pacemaker February of 2024. It was placed in my right ventricle. They had the pace set at 45 BPM. I couldn’t take it, that was just too low and made it hard to breathe or do anything. About two months later, they adjusted it up to 60 bpm and I was back to living again. The problem was then I was starting to have more shortness of breath and fatigue. Having the pacemaker placed in my ventricle caused me to get left-sided heart failure, because the top and bottom were not working together. That is why they wanted to leave me at 45 because it made it easier for my heart to beat. They told me that I needed a second pacemaker now in my atrium. And it would be a dual chamber pacemaker, and the two would talk to each other. The problem was it would reduce the battery life. At this point, I don’t care about the battery life. I also have pulmonary hypertension, bronchiectasis, COPD. Anything that will help me feel better I will take. After they placed the dual chamber pacemaker in my atrium my left sided heart failure improved, and so did my pulmonary hypertension. I have to go in every six months to have my pacemaker interrogated. Also, anytime that I am not feeling well I have to go in and get my pacemaker interrogated. It is a little like being experimented on. But I’m very grateful for not having a slow heartbeat and having a way to fix it when I am in a fib. If I didn’t have the pacemakers, my heart would stop, as it did one time when they were converting me. I must tell you that the pacemaker doesn’t fix anything except a slow heartbeat. It does prompt your heart to beat, but doesn’t stop it from beating. So when I get converted, if it pauses, the pacemaker will start it again. I have written orders though that if my heart stops totally, they leave me that way. I’m so sorry that I didn’t see this before today. I see that March 2 was your procedure day. I hope that everything goes well and that you will see improved health. My best wishes to you, Janice.

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@jw87

Thank you for sharing your experience. I also received the Aveir which has iSi, implant to implant signals. New technology, Before Aveir could only do one chamber. I agree, glad we have todays technology to get us going again. Especially in your case needing 2 chambers.

All went well yesterday and I believe 90 days is the tell all. No dislodgement, etc. I'm 66 very active and they set my resting at 60 bpm and 170 bpm max. On my watch i've had it goes as low as 46 which is why I needed the PM. Bradycardia. I still have AFib according to my Kardia Mobile. Maybe I will get free of that eventually once the heart is fully healed. I had an ablation done January 28th to rid me of flutter then it went into afib.

Anyway, I'm happy for you and the gains you have received from these procedures and can live a more joyful lifestyle God Bless!

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The dual is i2i not iSi

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Profile picture for alwayson @alwayson

@jw87

Thank you for sharing your experience. I also received the Aveir which has iSi, implant to implant signals. New technology, Before Aveir could only do one chamber. I agree, glad we have todays technology to get us going again. Especially in your case needing 2 chambers.

All went well yesterday and I believe 90 days is the tell all. No dislodgement, etc. I'm 66 very active and they set my resting at 60 bpm and 170 bpm max. On my watch i've had it goes as low as 46 which is why I needed the PM. Bradycardia. I still have AFib according to my Kardia Mobile. Maybe I will get free of that eventually once the heart is fully healed. I had an ablation done January 28th to rid me of flutter then it went into afib.

Anyway, I'm happy for you and the gains you have received from these procedures and can live a more joyful lifestyle God Bless!

Jump to this post

@alwayson
Thank you, and I’m glad that your procedure went well and that you are feeling good. Before I had my pacemaker, I would get a fib with tachycardia, and I could always tell when my heart was irregular. Now, I don’t really feel it when I have any kind of irregular beat. It seems to have changed that, well, at least the feeling of it. My next hurdle, is that I will be seeing my electrophysiologist on Monday to talk about taking me off of Flecainide. I will need to be hospitalized for a few days to be put on the new medication as it can cause a serious irregular beat. I have initiated this because I have heart failure, and flecainide is contraindicated for that because it makes it harder for the heart to beat. I don’t really want to do it, but I think it’s necessary. Last time I talked to him, he said that I was not a good candidate for the ablation. Not sure why so I will talk to him about that too. Thank you for sharing your experience with me. May God bless you too!

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Profile picture for jw87 @jw87

Hi, I got my first Avier leafless pacemaker February of 2024. It was placed in my right ventricle. They had the pace set at 45 BPM. I couldn’t take it, that was just too low and made it hard to breathe or do anything. About two months later, they adjusted it up to 60 bpm and I was back to living again. The problem was then I was starting to have more shortness of breath and fatigue. Having the pacemaker placed in my ventricle caused me to get left-sided heart failure, because the top and bottom were not working together. That is why they wanted to leave me at 45 because it made it easier for my heart to beat. They told me that I needed a second pacemaker now in my atrium. And it would be a dual chamber pacemaker, and the two would talk to each other. The problem was it would reduce the battery life. At this point, I don’t care about the battery life. I also have pulmonary hypertension, bronchiectasis, COPD. Anything that will help me feel better I will take. After they placed the dual chamber pacemaker in my atrium my left sided heart failure improved, and so did my pulmonary hypertension. I have to go in every six months to have my pacemaker interrogated. Also, anytime that I am not feeling well I have to go in and get my pacemaker interrogated. It is a little like being experimented on. But I’m very grateful for not having a slow heartbeat and having a way to fix it when I am in a fib. If I didn’t have the pacemakers, my heart would stop, as it did one time when they were converting me. I must tell you that the pacemaker doesn’t fix anything except a slow heartbeat. It does prompt your heart to beat, but doesn’t stop it from beating. So when I get converted, if it pauses, the pacemaker will start it again. I have written orders though that if my heart stops totally, they leave me that way. I’m so sorry that I didn’t see this before today. I see that March 2 was your procedure day. I hope that everything goes well and that you will see improved health. My best wishes to you, Janice.

Jump to this post

@jw87 i am very happy with my pacemaker they can adjust the heartbeat easily

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