Anyone had spine surgery who has osteopenia or osteoporosis?

Posted by Twocoastsm @marlenec, Dec 10, 2022

I have a double whammy. I have spondylolisthesis at L4/L5 and it causes some sciatica/left knee and leg pain that I’ve treated with epidural injections with some relief and with physical therapy. An orthopedic surgeon and two neurosurgeons have said that the only way to fix this when I’m “ready” is a fusion. I also have osteopenia - not osteoporosis yet. Took the oral meds for years and was taken off due to stable scans and some improvement. Density has decreased somewhat since two years ago and internist wants to start medication but I have reflux so she sent me a hematologist for injections - she told me that I can’t take the oral meds anymore and all she can do is Prolia. I’m reluctant so am waiting to see a new endocrinologist (I moved and had to find a new one). Wondering how anyone who has had a fusion has fared if their bone density was also low?

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Profile picture for annie1 @annie1

Anyone had ALIF with osteoporetis? I wàs told by a surgeon I need ALIF but another one said it is risky with osteoporosis . Any experience?

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Hi im due my Alif any day im desperate to get this dont it was from the back now its changed to an Alif ive been fkd about for years

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Profile picture for shirleyhibb26 @shirleyhibb26

I have severe osteoporosis, -4.3 on Dexa. I also have degenerative disc disease and arthritis. I’m 62 and had a compression fracture on L1. I just had L1-L5 fusion. This went went well then I started having pain again. I’m now getting RFA from paint and it seems to be working!!

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@shirleyhibb26
From what I understand the ablation is only good for back pain I don't have back pain I only have pain in my legs so they won't do it for me. Where is your pain? Did you say it worked for you?

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Profile picture for annie1 @annie1

Anyone had ALIF with osteoporetis? I wàs told by a surgeon I need ALIF but another one said it is risky with osteoporosis . Any experience?

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My back is fused L1-L5 and the pain is the S1 joint. I have gone thru the first of 2 tests and hopeful it will work for me. Sorry that isn’t going to work for you.

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Profile picture for mika86753099 @mika86753099

Hi Shirley, I too was recently diagnosed with severe osteoporosis and severe ddd. I see a spine specialist on Monday however I can’t get into an endocrinologist till May. Are you taking any medication for your osteoporosis?
Hope you get some relief soon!

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@mika86753099 I also had a diagnosis of severe osteoporosis and severe DDD. My rheumatologist has been on me for years to take medication for my bones. I rejected because of all the side effects....until he said I could no longer go without doing "something." I started the Forteo injections almost two years ago. My spine has improved greatly and now I'm considered to have osteopenia, not osteoporosis. I am so thankful I did the injections because I now need back surgery. My spine is so compressed with stenosis that I can no longer wait for back surgery. I don't think any doctor would have touched me if I had not started the injections. It was a scary choice, but the right choice.

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Profile picture for annie1 @annie1

Anyone had ALIF with osteoporetis? I wàs told by a surgeon I need ALIF but another one said it is risky with osteoporosis . Any experience?

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@annie1 yes I have just had an ALIF L4/5 . I also have osteoporosis -4.2 L3. Op went well had a stand alone cage with two screws. I am four months post op now. I am 75 and female. Small bones. I also suffer chronic fatigue do my recovery is very slow and depressing so far. My problem was always sacroiliac dysfunction either nerve pain and that has been worsened by the extra load from the stretching of the spine. It’s an individual decision so all I can say is do not go into it lightly . Try everything else first.

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Profile picture for annie1 @annie1

Hello All,I have written here many times, but I thought I should have put the question out, who has had successful fusion surgery that has osteoporosis also and where did you have it done ? You have to private message me to give names of Dr's. Thanks much

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I am due to have ALIF with laminectomy on L2 L3 and L4 L5 next Tuesday MIS. Had ablation that helped but not severe pain burning both legs from knees down to feet. Hoping surgery helps. I’m 81. Dr says young 81. Any thoughts?

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Profile picture for maryyg67 @maryyg67

I am due to have ALIF with laminectomy on L2 L3 and L4 L5 next Tuesday MIS. Had ablation that helped but not severe pain burning both legs from knees down to feet. Hoping surgery helps. I’m 81. Dr says young 81. Any thoughts?

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@maryyg67
I don't have any suggestions unfortunately I'm just interested because I was told I would need an alif/360 for my severely degenerative disc disease. I have osteoporosis. Can I ask where you're having your surgery and if you have osteoporosis? I've been told I'm not a candidate for minimally invasive because of the extensive amount of discs that are almost completely gone.

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Profile picture for tiny28 @tiny28

@annie1 yes I have just had an ALIF L4/5 . I also have osteoporosis -4.2 L3. Op went well had a stand alone cage with two screws. I am four months post op now. I am 75 and female. Small bones. I also suffer chronic fatigue do my recovery is very slow and depressing so far. My problem was always sacroiliac dysfunction either nerve pain and that has been worsened by the extra load from the stretching of the spine. It’s an individual decision so all I can say is do not go into it lightly . Try everything else first.

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@tiny28
Thank you for that advice. I actually was advised that I would need not only alif but 360 which means they flip you over and first do the alift in the front and then posterior decompression fusion in the back. The only reason I'm writing this right now at 1:30 a.m. is cuz I'm having extreme spasms in my legs and I can't sleep. I am not going into any of this lightly but I have to find some way to deal with this. Did you have your surgery at Mayo clinic?

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Profile picture for annie1 @annie1

@maryyg67
I don't have any suggestions unfortunately I'm just interested because I was told I would need an alif/360 for my severely degenerative disc disease. I have osteoporosis. Can I ask where you're having your surgery and if you have osteoporosis? I've been told I'm not a candidate for minimally invasive because of the extensive amount of discs that are almost completely gone.

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@annie1 yes I have osteoporosis.but bone scan shows normal bones. I am having done at. corwell formerly Beaumont in Royal Oak Mi

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Profile picture for annie1 @annie1

@tiny28
Thank you for that advice. I actually was advised that I would need not only alif but 360 which means they flip you over and first do the alift in the front and then posterior decompression fusion in the back. The only reason I'm writing this right now at 1:30 a.m. is cuz I'm having extreme spasms in my legs and I can't sleep. I am not going into any of this lightly but I have to find some way to deal with this. Did you have your surgery at Mayo clinic?

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@annie1 hello Annie, this is difficult to answer . Firstly , do you have any other health issues that might hinder your recovery ? You do realise that a double major op will be a very long recovery with no guarantees. I have been in terrible pain with my lower sacrum for five years with deprivation and continued pain but the only thing that seemed to show up on my scans was L4/5 degenerative disease with bone growth so I decided to have the operation. My surgeon is a professor so very skilled. As I said before I am four months post op ALIF and my pain is considerably worse than it’s ever been!! I now have leg weakness and stiffness also . I feel like my life is over . If you have osteoporosis and are considering rods , screws and cages with two ops then I can only wish you luck and hope that your recovery is better than mine . I have nowhere left to turn now as I don’t have the strength to fight it anymore . You are younger so it may be ok but please think very carefully and let me know your decision . Regards .

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