Anyone had CAR-T therapy for solid tumors? (pancreatic cancer)
Hello! I am a probable candidate for a clinical trial of CAR-T cell therapy for pancreatic cancer. Is there anyone who has experience with this therapy on solid tumors? Thanks!
Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.
This may have some overlap with Lori's reply, but Joe's House keeps a listing of short-/medium-term furnished apartments that are generally offered to cancer patients at discounted rates. My wife and I had great luck using them last year in Houston.
Here are some of the accommodations that turn up searching that site for Mayo/Rochester:
https://www.joeshouse.org/lodging?state=Minnesota&hid=169
A travel nurse in my family also pointed me to the site
https://www.furnishedfinder.com/
which generally has better deals than Air B&B, VRBO, and the like.
Good luck in Rochester. May you have warm weather, a great experience and a cure there!
Thank you so much @loribmt ! 3/12 is the app.
Wishing you and your husband safe travels to Rochester and positive news on the possibility CAR-T Therapy so you can both get back to enjoying life!
For most everyone who visits, the experience at the Clinic is exceptional…from the caring, highly educated, professional staff to the gorgeous artwork gracing the walls, to the seamless efficiency behind the scenes. Mayo is a place of hope.
Do you have far to travel?
we are coming from Seattle!
Good morning @utravelone8671 You’re coming from Seattle?! I was thinking road trip! LOL. Assuming you’ll be winging your way to Rochester instead. ☺️
Have a safe trip and please let me know if there’s anything else I can help you with. All set with lodging now?
Thank you @loribmt ! We stayed at the Towneplace Suites. A 7min walk to the Gonda building with a free shuttle bus every 30min and free breakfast. It was great.
The Mayo Clinic is pretty impressive. The doctors are knowledgeable, thorough and spent time answering questions.
One of the trials they proposed is
https://clinicaltrials.gov/study/NCT05882058
A BITE T cell therapy. If and when we might need it in the future.
Wondering if anyone here is on it and how is the treatment side effects?
Hi @utravelone8671! It’s great you had such a productive and enjoyable experience at Mayo/Rochester! I agree whole heartedly with you that Mayo Clinic is pretty impressive. No wonder it’s been voted the #1 medical center in the world many times!
So far I’ve not found members who have had the BiTE T Cell therapy. (bispecific T-cell engager). I’m expecting the procedure is similar to CAR-T.
Moffitt Cancer Center has a good article online with a broad perspective of the newer immunotherapy treatments you might be interested in reading:
https://www.moffitt.org/taking-care-of-your-health/taking-care-of-your-health-story-archive/understanding-tils-car-t-and-bites-immunotherapy-treatments/
In the meantime is your husband to stay on his current treatment for pancreatic cancer? Is CAR-T off the table?
Thank @loribmt ! Mayo recommended that my husband stay on the current chemo because it is responding really well. But, in case things change in the future, the BiTE trial is what to consider. They seem to think CAR-T has more common and severe side effects than BiTE. I’m not sure if everyone agrees there?
We have not given up on CAR-T. And we will be visiting MD Anderson soon to see what they recommend. We don’t need to make any decisions till the current situation changes. We are doing our leg work ahead of time so we are ready when it is needed.
It definitely is a learning journey.
Thank you again for the Moffitt article, it is very well written and informative!