1. < Head & Neck Cancer

Anyone on dabrafenib (Tafinlar) & trametinib (Mekinst) oral chemo?

Posted by lilyann @lilyann, Nov 4, 2023

is anyone else taking mekinist and dabrafenib for oral chemo. very nervous about the situation. onconologist agree on no target radiation. have no idea to their conclusion.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 7, 2023
In reply to @tomschwerdt "Just to give you an update - the Synthroid seems to be working. For the past..." + (show)
@tomschwerdt

Just to give you an update - the Synthroid seems to be working. For the past few days I've been back up to fairly normal energy levels.

My followup at MDA is tomorrow, so I'll be able to find out whether the blood test agrees with how I feel...

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How did the follow-up appointment go, Tom?

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Tom Schwerdt | @tomschwerdt | Dec 7, 2023

Imaging says tumor is stable and T4 is back into normal range. So, generally good news - but of course what I really want is tumor shrinkage/bone regrowth. Just not enough published data to know what timeframe that should be.

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lilyann | @lilyann | Dec 12, 2023

tomschwerdt, i'm hoping the images showed shrinkage in the tumors. lets us know how it went for you. lilyann

REPLY
Tom Schwerdt | @tomschwerdt | Dec 13, 2023

Imaging showed stable - no growth, no shrinkage. Just not enough published data to know when I should expect to see shrinkage.

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