Anyone else have CIDP

Posted by ELW @erinlwingrove, 5 days ago

I was just diagnosed with CIDP. Does anyone else here have that? I went from hiking and jogging 3 months ago to needing a walker/wheelchair now.

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I don't know much about CIDP but I did read that over half of the people diagnosed with it don't have the disease. https://mcpress.mayoclinic.org/cidp/do-i-have-cidp-or-could-it-be-a-misdiagnosis/#:~:text=However%2C%20up%20to%20half%20of,closely%20mimic%20those%20of%20CIDP.
I think CIPD usually progresses slowly. Are there ticks where you hiked and jogged.
I hope you get answers.

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Profile picture for gently @gently

I don't know much about CIDP but I did read that over half of the people diagnosed with it don't have the disease. https://mcpress.mayoclinic.org/cidp/do-i-have-cidp-or-could-it-be-a-misdiagnosis/#:~:text=However%2C%20up%20to%20half%20of,closely%20mimic%20those%20of%20CIDP.
I think CIPD usually progresses slowly. Are there ticks where you hiked and jogged.
I hope you get answers.

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@gently
From what I've read, CIDP has been shown to progress fairly rapidly, over the course of a few months. It is diagnosed more frequently in males than females and often in the 5th to 6th decade of life. Exceptions to everything I've just mentioned do occur. Most of this info is found on the website for the organization for Chronic Inflammatory Demyelinating Polyneuropathy. After an abnormal EMG suggested I don't have PN, I've since had an MRI to eliminate a pinched cervical nerve as the cause of loss of feeling in fingers, hands, and forearms. But I don't have any pinched nerves, so I don't know what the next steps the neurologist will take to confirm or rule out other diagnoses.

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joanland,
this Cleveland clinic article suggests some testing nerve biopsy and lumbar puncture don't sound like any fun.
V=https://my.clevelandclinic.org/health/diseases/cidp-chronic-inflammatory-demyelinating-polyneuropathy

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Profile picture for gently @gently

I don't know much about CIDP but I did read that over half of the people diagnosed with it don't have the disease. https://mcpress.mayoclinic.org/cidp/do-i-have-cidp-or-could-it-be-a-misdiagnosis/#:~:text=However%2C%20up%20to%20half%20of,closely%20mimic%20those%20of%20CIDP.
I think CIPD usually progresses slowly. Are there ticks where you hiked and jogged.
I hope you get answers.

Jump to this post

@gently no ticks where I’m from

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