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Anyone else diagnosed with MAC & Bronchiectasis without symptoms?
I recently had a chest CT scan to check on calcium buildup in my heart (to help see if I needed a statin). Well, calcium is fine, but Radiologist said I have lung damage. Said it's probably NTM caused by MAC & also mentioned Bronchiectasis. My only symptom is a bad cough when I'm sick, which hasn't happened for 2 years. Seeing a pulmonologist next week who specialized in IDL. Has anyone else inadvertently found MAC when they have no symptoms? I'm hoping this means that it was caught early and can be treated.
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Yes, it was absolutely terrifying. Yes, I also have MAC.
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2 ReactionsYou’re probably in the same boat as me I don’t have symptoms, but I saw the growth she told me and showed me so we can probably get rid of it, but it can come back so do the full year treatment. It’s gonna be hard but just do it I hope it doesn’t come back.
Similarly, a radiologist’s incidental finding of tree in bud in my right lung when reviewing my calcium CT was said to be suggestive of MAC. The results of a sputum culture came back today with AFB present but not yet defined as MAC. I’ve had no symptoms other than getting winded more easily when being physically active and fatigue in the early evenings after work. My mother lived with MAC for 14 years and the last 3 or 4 were miserable for her. While it isn’t a hereditary illness, I suppose there may be genetic traits, that make someone more susceptible to contracting the illness. I’m glad to find this message board to check in with others about their illness experiences.
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1 ReactionThat sounds almost exactly like my scenario. If I had not coughed up blood, I would likely have never known.. Best to all!