Anyone doing "watchful waiting" with ACTs but no antibiotics?

And would you be willing to share who you get the medicinal grade oils from in Montana? Thank you!

The paper I read was a long research paper by someone diagnosed with a lung disease but also a medically trained person who documented the results of all his testing on himself. After reading the article And bibliography, I didn’t have much to lose so I decided to follow the same path. So far I’m glad. Found it! https://www.cfnaturalhealth.com/blog/inhaling-essential-oils

Aromatics International. I have used other Essential Oils but not to ingest in the nebulizer and have found these to be different. They are labeled with all the Product information but also say “ Recommended for external use”. The mother daughter team does alot of text and email specials and they have videos and classes you can watch.

https://www.cfnaturalhealth.com/blog/inhaling-essential-oils

https://www.cfnaturalhealth.com/blog/inhaling-essential-oils
Aromatics International is mentioned in the article.

Interesting comment about cooler climate as summer is tough for me here in SC.

Thank you so much!

ktw1147, this is not a research paper. It is one person's experience, posted on his web site where he markets videos and seeks donations. He does not claim to have any traditional medical training but, rather, to be a "certified clinical herbalist," a designation worth what you paid for it.

What does your doctor think about your nebulizing tea tree and eucalyptus oil? Doesn't "Recommended for external use" mean they are for use on your skin, not in your lungs?

As you know from reading here, there is not one single treatment for bronchiectasis and/or NTM, but working with a specialist you trust together with regular ACT and nebulizing with 3-7% saline are foundational. Maybe it's time to loop your doctor in with respect to your treatment plan? Wishing you good health.

Using an essential oils diffuser might be safer than nebulizing -- less risk of bronchospasm. The late herbalist Stephen Harrod Buhner, who wrote books on natural antivirals and antibacterials, used to nebulize ginger oil and other oils. His protocols for COPD and IPF are available on his website, for those interested in natural treatments that might not have much supportive medical research. Best of luck to everyone. Involving your doctor is always a good idea, when possible.
https://www.stephenharrodbuhner.com/articles/

Summary
2022 multiple specialist for diagnosis of productive cough
Result allergies and acid reflux
2023 no improvement changed PC doctor after another round of specialist
New NP cultured sputum (shocked it had not been done)
Positive for pseudomonas, treatment Cipro
Off and on for many months. Developed afib somewhere along the way.
ER again Labor Day weekend in afib after Cipro again. Begged to be
admitted for cough because X-ray show lung issues. Nope
Primary care doctor admitted day after holiday and that began my IV
Antibiotics adventure. Four days in and home with line to give at
Infusions at home. Treating pseudomonas still.
Iv line fails. This goes on for ? Total of 3 or 4 PICC lines. Had an allergic
To new iv med.
Infectious disease doc decided I probably have MAC. He orders meds
Big 3, but I have to go to a hospital 40 minutes away twice a day for
Arikaycin infusions. WHAT? How is that even doable?
Thought it over and had home care nurse pull my picc line and found
Another doctor at the University of Alabama. Thought I found a winner,
But turned out she had great intentions (said I was lucky the first one
didn’t kill me), but not experienced. Found out I had Absessus by then.
Ended up at the UAB (Birmingham). They have a 3 year old NT M
Clinic, yay!!! It’s a four hour drive, but so worth it. My CT had
Improved greatly and just an occasional cough. Doctor asked me what
I did to accomplish this. I told him essential oils! I told him about a
Study I had found (he seemed to acknowledge he had seen it) and I had
Been diffusing certain oils. SO I am in the watchful waiting group!! My
Culture a few months ago was negative. I have one in progress that has
Positive for pseudomonas. Pretty sure I’m colonized.
Next appointment 7/29. It will take a lot to get me back on meds. I lost
Over 25 lbs. and was very sick. unfortunately gained it all back plus a
Few. Sorry for the long summary. Best of luck.

@ktw1147 @paxmundi @tcd518 @bamaqueen @wolfplanetzero
Essential Oils!
YES - I use them (externally) extensively to help with chronic pain, skin conditions, as aromatherapy...
NO - I do not inhale or nebulize them, even though I purchase mine from a reputable source, store them carefully and try to keep them uncontaminated.
WHY? There is no regulatory body to oversee the production and insure safety. My lungs are already a "hot mess" with Asthma, Bronchiectasis, scar tissue from past infections...

Is there something of interest in this blog?
Absolutely - I will be trying more aromatherapy with Eucalyptus, Tea Tree, Cinnamon and Lemon Grass as my airway clearance seems "stuck" right now and I fear developing another infection.
Also, I feel my lung capacity is diminishing slightly, and eucalyptus has been shown in hospitals to be helpful with respiratory distress, only a single study to be sure, but quite eye-opening.
( https://pmc.ncbi.nlm.nih.gov/articles/PMC9720502/)
The anti-bacterial properties of the other oils are also well-known, but because I have sensitive lungs, I will introduce the oils one-at-a-time, first by themselves, then in combination with eucalyptus, over a period of several days/weeks.
Along with these trials I will continue my airway clearance/exercise routine, with periodic 7% saline nebs, to try to stay healthy.

What concerned me in the blog? Well, this person has Cystic Fibrosis, and whether they chose to continue traditional treatment or not while using the oils is not clear - but suffice it to say Mica was NOT cured in any way by this therapy - two years later they had a double lung transplant. I am not sure if the blog is still active, but the Facebook link does not work and no current classes are offered. So this might not be the "poster child" for alternative medicine.

Finally, keep in mind that you are experimenting with uncontrolled substances - let your doctors know if you have any other conditions or use any medications. I recently learned that the turmeric (curcumin) I used to alleviate inflammation is also an anti-coagulant. When combined with other meds I use it was causing excessive bruising and bleeding from the slightest bump. Good thing I had this on my med list - when I needed surgery, I had to stop it for 14 days beforehand, delaying the operation, or I could have had major bleeding.

Hoping to hear some results from your trials.