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Anyone diagnosed with alpha-Gal syndrome?
Diagnosed in June. Alpha-Gal is a tick-borne illness. Wow, life changing. Thought if I stayed away from pork, beef, and venison I would be fine, but made tiramisu donuts with my grandson and the heavy cream has an ingredient (carrageenan) which has properties of the alpha-Gal sugars (or something like that) .... My tongue and throat swelled up a bit and I was almost ready to go to the ER. Scary and frustrating.
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Hey there, curious to see if anyone has developed anxiety after being diagnosed with Alpha Gal. I was diagnosed in June and had been managing it pretty well all things considered. I recently had a cross country flight and had a bag of chips before the flight, not realizing the chips had whey on them, resulting in a reaction mid flight. Certainly don't recommend that to anyone. Since then, I have had a lot of anxiety, including multiple panic attacks, which is not something I've ever experienced before.
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1 ReactionHave had alpha gal 7 years now
You have to watch milk and cheeses ,ice cream also because it is derived from beef cows.
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