Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

I was scared about the anesthesia too..........I can relate. But here I am and you'll be AOK too........Big hugs. Keep us all posted and keep reaching out. We've all been there. They are quite good at breast cancer surgery now. As my surgeon said, 'just be glad it's your breasts and not your insides'......those are much harder to be 'good' at getting whittled on, or so she thought (my breast surgeon was a general surgeon so she did multiple types of surgeries).

@cindylb I do have a good support of family and also my co-workers too. Yesterday was a difficult day...having all the signs of an anxiety attack, but today is better as my son, dil, and grandbabies decided to spend the weekend and keep me busy. I am not looking forward to the surgery, but mostly a bit scared over the anethesia. Just taking each day as it comes the best that I know how.

Here are some relevant videos related to this discussion about atypical breast lesions and prophylactic mastectomy - I hope.

It is very overwhelming at first....it really is. And each decision is important but it will get easier as you get more familiar and comfortable with the process, the tests and the options. Your doctors will make recommendations but unfortunately only you can make those final decisions. Hopefully you have family or friends to bounce the decisions off of as well and of course, we're all here for you too. You'll find lots of experiences here and will find that many women make various decisions throughout the process you very aptly named the medical vortex. Hugs and best wishes for good news for you.

HI
I had my first mammogram 1/2/19. They found a spot and wanted to do a ultrasound, after the ultrasound they decided that I needed a core biopsy. Had that done 1/15/19. The results came back with Atypical ductal Hyperplasia (ADH). Now they want to do a surgical biopsy to check the surrounding area and remove ADH cells. I think I am understanding this all correctly. February 6 is the surgical biopsy. I haven't told my family, other than my husband. My cousin died last year with triple negative and my family will be so devastated if this is cancer. The waiting is the worst.

@cindylb, thank you for your response and for sharing your experience. I'm not sure what I will do regarding the MRI...the outcome of this biospy will most likely help me to decide. I feel like I have been sucked into a medical vortex and each decision carries so much weight...

@doyoga, thank you for all of the support groups that you posted.

@monical .... FB support groups I’ve found helpful xxx

monical..........We're all glad you found this forum as well. It's been a great source of support for me. I had a pretty 'traditional' treatment plan......stereotactic biopsy, excisional biopsy - ALH (lobular vs. ductal) on my left breast. That was 5 years ago. 3 years ago (following testing each 6 months I found a lump, which was a cyst. The doctors sort of wrote that off but I'm glad I insisted on an ultrasound which found a suspected cancer, which in fact was invasive cancer, Stage 1. )
I found the process of the two biopsies and MRI's to be a lot more painful and anxiety producing in many ways that the bi lateral mastectomy I chose. (My issue was Lobular Hyperplasia in the left breast and lumpectomy ultimately and the invasive cancer in the right breast.....so off with my breasts. I am holding at 3 years and counting now with no new signs of cancer.)
As you move along this journey there will be tests and most of them have some level of fear and possible 'issues'. I didn't like the MRI and the contrast dye made me feel very odd (during the test) but it's very sensitive and picks up lots of smaller things that might be missed otherwise. Just something to possibly consider. I will have a follow up MRI possibly this year or next just to make sure I too worry about the effect of the dyes and possible complications but sometimes they can detect something early and that's a big plus.
Hugs..........people here have very diverse and helpful experiences. Keep posting and people will be there for you.