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EJ (@elsajohnson)

Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

Breast Cancer | Last Active: May 16 5:24am | Replies (120)

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@cindylb

monical……….We're all glad you found this forum as well. It's been a great source of support for me. I had a pretty 'traditional' treatment plan……stereotactic biopsy, excisional biopsy – ALH (lobular vs. ductal) on my left breast. That was 5 years ago. 3 years ago (following testing each 6 months I found a lump, which was a cyst. The doctors sort of wrote that off but I'm glad I insisted on an ultrasound which found a suspected cancer, which in fact was invasive cancer, Stage 1. )
I found the process of the two biopsies and MRI's to be a lot more painful and anxiety producing in many ways that the bi lateral mastectomy I chose. (My issue was Lobular Hyperplasia in the left breast and lumpectomy ultimately and the invasive cancer in the right breast…..so off with my breasts. I am holding at 3 years and counting now with no new signs of cancer.)
As you move along this journey there will be tests and most of them have some level of fear and possible 'issues'. I didn't like the MRI and the contrast dye made me feel very odd (during the test) but it's very sensitive and picks up lots of smaller things that might be missed otherwise. Just something to possibly consider. I will have a follow up MRI possibly this year or next just to make sure I too worry about the effect of the dyes and possible complications but sometimes they can detect something early and that's a big plus.
Hugs……….people here have very diverse and helpful experiences. Keep posting and people will be there for you.

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Replies to "monical..........We're all glad you found this forum as well. It's been a great source of support..."

@cindylb, thank you for your response and for sharing your experience. I'm not sure what I will do regarding the MRI…the outcome of this biospy will most likely help me to decide. I feel like I have been sucked into a medical vortex and each decision carries so much weight…

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