Anyone dealing with ANCA GPA Vasculitis?

Posted by melodyanne @melodyanne, Jul 25, 2025

Newly diagnosed in November, 2024, I am looking for people fighting this same disease to connect with.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

cjd19 | @cjd19 | 3 days ago

What type of therapy rid you of CPAN

cjd19 | @cjd19 | 3 days ago

In reply to @melodyanne "Thanks for reaching out. I'm only 3 in 100,000 - common compared to you. Going to..." + (show)

@melodyanne Melody
I have what you have
I’d like to hear about your initial symptoms, tests used in determining it and treatments.
Thank you
Connie

cjd19 | @cjd19 | 2 days ago

In reply to @cjd19 "@SusanEllen66 I was diagnosed with GPA ANCA in September 2025. I’m looking to connect with another..." + (show)

@cjd19 I would love to connect. I was also diagnosed with GPA ANCA September 2025

cjd19 | @cjd19 | 2 days ago

In reply to @cjd19 "@SusanEllen66 I was diagnosed with GPA ANCA in September 2025. I’m looking to connect with another..." + (show)

@cjd19
So how are you doing? Don’t you feel blessed they found a diagnosis?
I didn’t realize I was so close to the end when they finally diagnosed it.
I’m on a 2 year treatment plan that includes: TAVNEOS, and 6 month Rituxan with steroid infusions, and a 3 times a week antibiotic as a maintenance to keep from catching anything.
I’m super cautious about being around the public.

View More View Less

Please sign in or register to post a reply.