Anybody else have Factor V Leiden?

Posted by patientk @patientk, Jun 24, 2021

Anybody else have factor 2 and factor v leiden what has been your expierence with them

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@rmd23

I have Factor V and have been on a baby aspirin for years. My problem is every time I have an IV for a procedure, I get a blood clot or sclerosis in that vein. How can I prevent that?

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@rmd23, getting a clot or sclerosis everytime you have an IV is an issue. What does your medical team do to help reduce the risk of clot?

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@robinpope2013

Hi! I'm a 49yo f with Factor V Lieden. I've had clusters of PE's several different times. I had a severe stroke 3 years ago and 4 wks ago had 6 heart bypasses. Are there any studies I can join to help with research?

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@robinpope2013, you can search for available clinical trials at Mayo Clinic using this tool: https://www.mayo.edu/research/clinical-trials

You can also contact a research coordinator with your questions. They may be able to help match you with a trial for which you are eligible.
Phone: 800-664-4542 (toll-free)

Robin, you certainly have been through several serious health events. How was recovery from your stroke? And 6 heart by passes, woah? How are you doing now?

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