1. < Polymyalgia Rheumatica (PMR)
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Anybody achieve full remission within one year?

Posted by ds1 @ds1, Mar 17 2:32pm

In searching, this forum, which has been very helpful in many ways, but it lacks anything positive regarding successful remission of PMR which I would define as no predinizone, and pain less than 2.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

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tatiana987 | @tatiana987 | Mar 19 3:59pm

I found PMR to be absolutely crippling. I couldn’t do anything for myself, so I tend to assume others are the same, but good for you. I guess the condition can be milder for some.

I tend to see PMR as about as serious as being decapitated. Guess it isn’t always that bad.

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maye33 | @maye33 | Mar 19 4:23pm
In reply to @cazwell50 "Yes, off prednisone at 12 mths. No pain from it at all once I started Prednisone..." + (show)
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Yes, off prednisone at 12 mths. No pain from it at all once I started Prednisone but some aches and pains while tapering. 12-18 mths to recover full health but in remission now for 3 years. My bloods were down from the first month of treatment and never went up again. Good luck.

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@cazwell50 very similar to my experience after GCA / PMR diagnosis. (Pred and Actemera treatment)

Although not the case for everyone, it’s great to know full recovery is possible.

With the advent of biologics I expect many more people will have an easier time of treatment to remission requiring less damaging steroids and a better quality of life with less pain .

Here’s hoping.

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tuckerp | @tuckerp | Mar 19 7:18pm
In reply to @maye33 "@cazwell50 very similar to my experience after GCA / PMR diagnosis. (Pred and Actemera treatment) Although..." + (show)
Profile picture for maye33 @maye33

@cazwell50 very similar to my experience after GCA / PMR diagnosis. (Pred and Actemera treatment)

Although not the case for everyone, it’s great to know full recovery is possible.

With the advent of biologics I expect many more people will have an easier time of treatment to remission requiring less damaging steroids and a better quality of life with less pain .

Here’s hoping.

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@maye33 I just hope they dont rule out prednisone. I am totally against using it but it fixed my PMR within hours. I had already been struggling 3 months. If they start using Actemra and it takes 3 more months to start working. Yikes.

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cazwell50 | @cazwell50 | Mar 19 7:23pm
In reply to @maye33 "@cazwell50 very similar to my experience after GCA / PMR diagnosis. (Pred and Actemera treatment) Although..." + (show)
Profile picture for maye33 @maye33

@cazwell50 very similar to my experience after GCA / PMR diagnosis. (Pred and Actemera treatment)

Although not the case for everyone, it’s great to know full recovery is possible.

With the advent of biologics I expect many more people will have an easier time of treatment to remission requiring less damaging steroids and a better quality of life with less pain .

Here’s hoping.

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@maye33 I have never heard of biological but if it means nine or less prednisone then that would be great. It gave me osteoporosis in my hips so I now take bone building medication and have hit the gym on top of Pilates and swimming daily. Always been a fit person so osteoporosis was not expected. It’s a nasty drug but gives such relief.

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maye33 | @maye33 | Mar 19 11:11pm
In reply to @tuckerp "@maye33 I just hope they dont rule out prednisone. I am totally against using it but..." + (show)
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@maye33 I just hope they dont rule out prednisone. I am totally against using it but it fixed my PMR within hours. I had already been struggling 3 months. If they start using Actemra and it takes 3 more months to start working. Yikes.

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@tuckerp I don’t think you have to worry. Corticosteroids remain the strongest, fastest acting anti inflammatory medication known to man .
Biologics ( when they work well ) take over & keep the inflammation down after Prednisone has done its initial magic reducing inflammation.
Luckily there are treatment options to use whatever works best for people’s individual responses.
May you , and all , have good relief from PMR no matter how you get there .

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tuckerp | @tuckerp | Mar 20 6:17am
In reply to @maye33 "@tuckerp I don’t think you have to worry. Corticosteroids remain the strongest, fastest acting anti inflammatory..." + (show)
Profile picture for maye33 @maye33

@tuckerp I don’t think you have to worry. Corticosteroids remain the strongest, fastest acting anti inflammatory medication known to man .
Biologics ( when they work well ) take over & keep the inflammation down after Prednisone has done its initial magic reducing inflammation.
Luckily there are treatment options to use whatever works best for people’s individual responses.
May you , and all , have good relief from PMR no matter how you get there .

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@maye33 Hopefully I am done with PMR. Mine was a 6 month stint and done. I used dexamethasone for the 6 months and my PMR responded well to it. That was 5 years ago. I agree with your comments.

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ds1 | @ds1 | Mar 20 3:07pm
In reply to @tweetypie13 "@christi48 Thank you for recognizing my life……I am blessed. From day 1, like others before me,..." + (show)
Profile picture for tweetypie13 @tweetypie13

@christi48
Thank you for recognizing my life……I am blessed.
From day 1, like others before me, It was ugly and miserable and far from perfect…..but….. I worked hard day and night to make it perfect in any small way I could . Days on the couch curled up in the fetal position, lost 20 pounds, couldn’t hold a fork, depression, angry, tears…….
Thru it all, my “team” worked with me to rally in any small way I could.
Yes, I am fortunate, I had and have amazing support.
When my life was full of lemons, I chose to make lemonade with the best of whatever ability I had at the time…..and still try today.

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@tweetypie13 Your attitude is excellent and inspiring!

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tweetypie13 | @tweetypie13 | Mar 20 3:59pm
In reply to @ds1 "@tweetypie13 Your attitude is excellent and inspiring!" + (show)
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@tweetypie13 Your attitude is excellent and inspiring!

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@ds1 thank you……some might think it’s fluffy, but this is my choice of lifestyle for my last quarter of life. As I said, my path was sucky, like everyone else and that’s not the way I want to “go out”.
May you and everyone on this blog find your trigger to hang onto for peace of mind, smiles and happiness.

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cheraloha | @cheraloha | Mar 21 1:08pm

Hi, my brother's PMR lasted only eight months and he's never had a relapse in the last 8 years. I'm in my second year, but remain hopeful that I'll go into remission soon. It helps to see this as a season as opposed to a lifetime diagnosis. Movement, eating healthy, supportive family and friends, faith, and an overall positive attitude help!

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ds1 | @ds1 | Mar 21 2:03pm
In reply to @cheraloha "Hi, my brother's PMR lasted only eight months and he's never had a relapse in the..." + (show)
Profile picture for cheraloha @cheraloha

Hi, my brother's PMR lasted only eight months and he's never had a relapse in the last 8 years. I'm in my second year, but remain hopeful that I'll go into remission soon. It helps to see this as a season as opposed to a lifetime diagnosis. Movement, eating healthy, supportive family and friends, faith, and an overall positive attitude help!

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@cheraloha Faith is a big one!

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