1. < Neuroendocrine Tumors (NETs)

Any one with Neuroendocrine tumors getting the shot once a month?

Posted by amygirl @amygirl, 3 days ago

I have heard there is side effects to the once a month shot( unsure of the name) what has any one experienced?

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plbyates | @plbyates | 1 day ago
In reply to @catalinaharley752 "I’ve been getting two injections of 40 milligrams every 28 days for the last 3 years...." + (show)
@catalinaharley752

I’ve been getting two injections of 40 milligrams every 28 days for the last 3 years. Dr says probably the rest of my life… not fun but it does help control the tremors and flushing. The diarrhea not so much.

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My husband gets the sandostatin shot every 28 days and is also taking xermelo three times a day for the diarrhea. Xermelo has definitely helped for the diarrhea.

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1 reply
amygirl | @amygirl | 18 hours ago
In reply to @plbyates "My husband gets the sandostatin shot every 28 days and is also taking xermelo three times..." + (show)
@plbyates

My husband gets the sandostatin shot every 28 days and is also taking xermelo three times a day for the diarrhea. Xermelo has definitely helped for the diarrhea.

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Would any over the counter anti diarrhea help? On a daily bases?

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pavlina60 | @pavlina60 | 2 hours ago
In reply to @vinnie694 "I had the same experience with blood sugar rising.." + (show)
@vinnie694

I had the same experience with blood sugar rising..

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Me, too!

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