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Any one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: May 8 1:05pm | Replies (230)Comment receiving replies
Sherry, your experience sounds exactly like mine. I have been getting injections of octreotide every 4 weeks, and also went to memorial Sloan Kettering for 4 infusions of lutathera. Except for minor fatigue, and would never know that I have neuroendocrine cancer in my pancreas that has spread to o my liver.
How are you doing?
Replies to "Sherry, your experience sounds exactly like mine. I have been getting injections of octreotide every 4..."
Hello @rit333 and welcome to the NETs support group on Mayo Connect. I appreciate you sharing your journey with NETs and I'm glad to hear that the treatments you have received have been helpful to you.
You do not mention how long ago you were diagnosed with NETs in the pancreas nor when it was discovered in the liver. As you are comfortable doing so, please share more about how long ago you were diagnosed. Also, have you had any other treatments besides the monthly injections and the PRRT (Lutathera)?
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Were your tumors growing while you were on Octreotide and that is why you were given the Lutathera? How have the tumors responded since you had the Lutathera treatment? Thanks for sharing.