Anyone experienced a fibromyalgia flare for 6 months?

Posted by suzanne1951 @suzanne1951, Jul 4, 2023

My fibromyalgia has been flaring for more than 1/2 year. Instead of getting better, I am getting worse. No stamina, complete exhaustion, flu-like achy, headaches. I spend at least half my days lying on the sofa. Has this happened to you? Any advice?

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@gloriape

I've had fibromyalgia for 50 years. A friend of my put it.perfectly, 1 good day and 10 bad ones.
I recently started medical cannabis as a tincture. Its a low dose but is helping.

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I won't take cannabis or smoke it but have tried creams and they don't help like rubA535. I'm happy you have had some relief.

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I am 78 and a fibromyalgia sufferer since my mid 20's. I was in the medical field so I get a lot information. My condition has been horrible this past 2 years. I sleep most of the day. Total fatigue. And cry when I wake up from sleep.
Iv

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I am 78 and a fibromyalgia sufferer since my mid 20's. I was in the medical field so I get a lot information. My condition has been horrible this past 2 years. I sleep most of the day. Total fatigue. And cry when I wake up from sleep.
I've tried everything to get relief. All in vain.
One Rx does help but not nearly for the 12 hrs. Very expensive if you don't have drug coverage ($1,400/month) and you can't stretch it out. Have another Rx to try stop break-through pain (oxychondone/aspirin). Plus heat, relaxation etc. Tried gummies but didn't help just made me more fatigued. So. I am no help with suggestions for you. Some days I don't think I can get through another day. I have a wonderful husband who does most of the duties I feel are mine. So I am blessed. My heart goes out to all of you suffering and pray science comes up with a miracle drug. Be kind to yourself. Wrap up in a warm blanket and sleep when you have to. Do only what has to be done on flare days. Don't stop looking for help.

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I was diagnosed with fibromyalgia 25 years ago, but I started having chronic pain in my groin about two years after giving birth to my second child, so Ive likely had it 40 yrs. Fatigue and fiber fog are the worst symptoms for me. I do have a lot of pain, but the pain is from repetitive stress injuries or just getting stiff from sitting too much or working out too much. In other words, it’s not just a “ mysterious pain.” I have been a sober alcoholic for 32 years but that doesn’t mean I can’t use drugs that doctors prescribed to me. And I do use as many drugs that help me. I must have a stimulant in my arsenal, otherwise I cannot function- but I don’t use it every day. Right now I am using Vyvanse. This seems to work fine. It doesn’t really last any longer than Adderall or Nuvigil but when it wears off, it’s a little less of a crash. I have had terrible migraine headaches. For three months now I have been using injections of Aimovig. The number of migraines I am getting a month has reduced to about four which is amazing. When I do get a headache, I use Fioricet. This is a combination of caffeine, Tylenol, and butalbital, which is a narcotic, but a small amount. It is a controlled substance and my current neurologist keeps trying to make me try these new drugs that cost a fortune and simply do not work, he has a hangup about the controlled substance status. When I am achy and stiff, I use Soma or the generic carisoprodol. I cannot use any regular NSAIDs because they upset my stomach., I do have a prescription for Celebrex, which is a wonderful medication, but there is a stigma about it. Exercise is absolutely crucial even if I just do a little bit. Otherwise, I find that my depression gets worse and my body just sort of folds in on itself. i’m happy to have found this group and I hope this is helpful.

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@ellenblythe

I was diagnosed with fibromyalgia 25 years ago, but I started having chronic pain in my groin about two years after giving birth to my second child, so Ive likely had it 40 yrs. Fatigue and fiber fog are the worst symptoms for me. I do have a lot of pain, but the pain is from repetitive stress injuries or just getting stiff from sitting too much or working out too much. In other words, it’s not just a “ mysterious pain.” I have been a sober alcoholic for 32 years but that doesn’t mean I can’t use drugs that doctors prescribed to me. And I do use as many drugs that help me. I must have a stimulant in my arsenal, otherwise I cannot function- but I don’t use it every day. Right now I am using Vyvanse. This seems to work fine. It doesn’t really last any longer than Adderall or Nuvigil but when it wears off, it’s a little less of a crash. I have had terrible migraine headaches. For three months now I have been using injections of Aimovig. The number of migraines I am getting a month has reduced to about four which is amazing. When I do get a headache, I use Fioricet. This is a combination of caffeine, Tylenol, and butalbital, which is a narcotic, but a small amount. It is a controlled substance and my current neurologist keeps trying to make me try these new drugs that cost a fortune and simply do not work, he has a hangup about the controlled substance status. When I am achy and stiff, I use Soma or the generic carisoprodol. I cannot use any regular NSAIDs because they upset my stomach., I do have a prescription for Celebrex, which is a wonderful medication, but there is a stigma about it. Exercise is absolutely crucial even if I just do a little bit. Otherwise, I find that my depression gets worse and my body just sort of folds in on itself. i’m happy to have found this group and I hope this is helpful.

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@ellenblythe Your story was very interesting to read. Thank you! You said that exercise is crucial. Well, maybe join our virtual walking group!
https://connect.mayoclinic.org/discussion/lets-go-walking-join-me-for-a-virtual-walking-support-group/
Is there anything specific we can help you with?

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