Any non fracture members?

Posted by rudysmom @rudysmom, May 18 7:24am

I guess I’m just looking for some encouraging words. I was diagnosed in February and still working through the different stages of grief/loss. I seem to have more days stuck in depression/sadness.

So, was just wondering if anyone on here has dealt with OP for quite a while and hasn’t fractured? I know you can fracture even if your scores are osteopenia range. I feel like everyday I’m just waiting for a fracture to happen. Im exercising 6 days a week and watching my food intake. I’m just hoping as time goes on this feeling lessens. Sometimes I’m not sure if it’s the diagnosis that’s making me sad or just the fact that I’m getting older, I’m 60, and reality has finally set in.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

I was diagnosed with osteoporosis when I was about 56 and I've never had a fracture. I've never taken any medicine, I take certain vitamins, I joined a gym and do weight-bearing exercises and try to eat as clean as possible it's a lot of meat and veggies basically keto.

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Profile picture for chrisco @chrisco

If there’s anybody who can help me with chronic pain, I’m desperate nothing is working

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@chrisco would need to know what is causing the pain. then maybe someone on here can tell you what they do that helps.
as far as I know pain from osteoporosis only comes when you fracture something. usually compression fractures in the back.

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I am 79 and have osteopenia. I’ve had two serious falls (down 14 oak steps) and was fortunate not to break anything. Recently I was put on sleeping meds which caused balance issues so stopped. I think doing things to prevent falls is critical. Balance exercises, weight bearing exercises. watching where we step and being cautious of stairs. When using stairs use the hand rails and even go down sideways (my son an ortho surgeon told me this). Also don’t carry baskets of laundry down wooden stairs in socks. Wishing you all many break free years to come.

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I was diagnosed this past September and started Evenity in November. I am 58 and go to the gym regularly and eat well blah blah. I did just also start HRT and the right vitamins (Calcium Citrate and D). I am osteopenia everywhere except my low spine which is osteoporosis. I have never fractured anything and, after being really worried like you, decided to keep doing what I'm doing and just keep it in the back of my mind. I'm a litle more mindful when walking on something wet or going up and down stairs etc. but I am not stopping anything else.

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Profile picture for chrisco @chrisco

@daisy17 I have arthritis of the facet joints osteoporosis that’s why I’m a big fall risk. This has been going on for 8 years. No one can diagnose me. I’ve been to so many doctors as a sad situation I gave up driving and I’m only 64. The arthritis of the joints are rubbing bone on bone it is getting worse and worse every day. Do I up on my pain pills? I don’t wanna be addicted. I need advice. and I’ve had every nerve ablation and shot that is out there. I hope that helps a little thank you

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@chrisco I understand that there are targeted back strengthening exercises designed to improve facet joint arthritis, which may help the pain. Have you tried this?

There is a British physio on Utube, Will Harlow, and he concentrates on older adults....nothing too difficult, but very effective. I have used his protocols for other painful joint issues and have been extremely happy.

His focus is on strengthening the muscles associated with a particular joint....so for example, knee pain needs to strengthen the quads, the glutes, and the calf muscles. This allows the knee to operate with less cartilage, the absence of which is what is often called 'bone on bone' and eases pain.

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I just need someone on here to help me understand arthritis of the set joints. I heard that they cannot be fixed or operated on. I’m in pain 24 seven it wakes me up. It does a lot of crazy things to me. Someone please help give a rice.

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Profile picture for chrisco @chrisco

I just need someone on here to help me understand arthritis of the set joints. I heard that they cannot be fixed or operated on. I’m in pain 24 seven it wakes me up. It does a lot of crazy things to me. Someone please help give a rice.

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@chrisco YouTube is often useful for this kind of information. Best to be sure you are watching stuff from real doctors and real physical therapists etc.

Here is a search that you can use:
https://www.youtube.com/
search on "arthritis facet joints"

And here is one of the results:

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Profile picture for glojo @glojo

I’m 70 and have been watching my declining T-scores for 20 years. My lumbar score has been in the -3.0 and below range for over 10 of those years, most recently -3.7, but that isn’t really what predicts a fracture. Overall health, level of activity, genetics, nutrition….so many factors determine your bone strength. Density is only one of those factors, but it prompts doctors to emphasize medication, sometimes even before investigating causes or questioning patients about fitness, diet, balance issues, previous falls.

I have not taken any osteoporosis medications, yet, but I have made a tremendous effort to do everything in my control to be as strong and healthy as I possibly can and to stay on top of all research. I have taken a few nasty falls, surprisingly without fracturing, yet!

You are as healthy now as you were in January before this diagnosis. This is not an emergency, and you have time to read, reflect and relax. Find a good personal trainer to make sure you have good form, and work on balance as well as strength. Find solid sources of information (many wise people here), read everything, address any nutrition deficits. Explore all your options before making a decision, and then make the one that is right for you. For some of us here, that is medication, for others it is not. Both paths are reasonable. This is not a one size fits all situation.

That age trap is paralyzing. My daughter is struggling with turning 50 and I told her I wish I had never wasted one moment being sad about turning 50, or 60, cause here I am now, 70 and definitely not wasting any more moments.You are as young as you feel! Hang in there. You are in good company!

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@glojo

Me Too! Haven’t taken any Meds. I’m turning 76 this summer.
Once you start you never stop as Bone density reverts after stopping.
Fosamax stays in system for 2 years then they start you up in another.
Not for me, not yet .
Changed diet, added more exercises for OP like hopping, lunges, deep squats , omega 3s help fight OP so I add that. Omega 6’s are BAD and make bones worse.
Dexa scans are faulty and not reliable stats. I did one REMs scan , bone quality not as good as expected.
Never have fractured that I know of.

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Rudysmom, I was first diagnosed with osteopenia, then osteoporosis, then after 18 months of Fosamax, no improvement in osteoporosis. I consider myself healthy, even with modest arthritis and hypothyroidism, both managed with meds. My whole adult life I have eaten healthy foods, consumed calcium-rich foods and now exercise daily (it was 3-4 times/week while I was working.) I am physically active, muscular, and while I trust my doctor, I don't totally trust the scans. I don't feel my lifestyle mandates changing habits. She asked me to look into Prolia and Reclast, neither of which look guaranteed to help. I appreciated seeing an article referenced in this forum on over-diagnosis of thin women, but since it's from an anthropologist, I suspect the MDs will dismiss it.
I may ask my GP to recommend a rheumatologist for more specific advice.

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Profile picture for wagsofbevis @wagsofbevis

Rudysmom, I was first diagnosed with osteopenia, then osteoporosis, then after 18 months of Fosamax, no improvement in osteoporosis. I consider myself healthy, even with modest arthritis and hypothyroidism, both managed with meds. My whole adult life I have eaten healthy foods, consumed calcium-rich foods and now exercise daily (it was 3-4 times/week while I was working.) I am physically active, muscular, and while I trust my doctor, I don't totally trust the scans. I don't feel my lifestyle mandates changing habits. She asked me to look into Prolia and Reclast, neither of which look guaranteed to help. I appreciated seeing an article referenced in this forum on over-diagnosis of thin women, but since it's from an anthropologist, I suspect the MDs will dismiss it.
I may ask my GP to recommend a rheumatologist for more specific advice.

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@wagsofbevis
If you do decide to entertain the idea of Osteoporosis drugs at some point, I wonder about your doctors recommendation of either Prolia or reclast. I wonder about the possibility of an anabolic such as tymlos, forteo or evenity next instead. However I am not a doctor and I don't anything about your medical history. Sequencing of these medications is very important. It is also quite important to understand whether any physician who treats you has the training and experience in osteoporosis and bone health. Let us know how it goes.

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