Any new treatments for Cogans syndrome

Posted by lmpa65 @lmpa65, Jan 26 12:28pm

I previously was on Actemra but had to stop. Currently on Prednisone and azathioprine. Still having breakthrough with tinnitus, mouth sores, some balance issues. Was fit for hearing aids after 20 years and it’s amazing how it turns down the noise. Was just wondering what others are doing.
Good day
Laura

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gtbensa | @gtbensa | 18 hours ago

my son is going through treatment for Cogans syndrome. started with infliximab. he has had two sessions so far. anyone else using this treatment?

Becky, Volunteer Mentor | @becsbuddy | 5 hours ago

In reply to @gtbensa "my son is going through treatment for Cogans syndrome. started with infliximab. he has had two..." + (show)

@gtbensa
https://connect.mayoclinic.org/discussion/anyone-else-have-cogans-syndrome/
There is a whole discussion here that was pretty recent (within a year).
https://connect.mayoclinic.org/comment/1494121/

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