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Any chronic cough patients?

Posted by adkindt @adkindt, Nov 24, 2024

Hello, chronic cough patient, Ajay through one round of testing at Mayo. Back in December for 2 GI procedures. If anyone has had the Ph test and/or manometry for chronic cough, I'd love to hear your experience. Thanks

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Lisa Lucier, Moderator | @lisalucier | 4 days ago
In reply to @adkindt "So, I had the esophageal manometry and h monitoring. The manometry was first, very uncomfortable tube,..." + (show)
Profile picture for adkindt @adkindt

So, I had the esophageal manometry and h monitoring. The manometry was first, very uncomfortable tube, made my eyes water. They said I did well. Didn't gag or vomit. Lol. Swallowing and esophageal sphincter normal. The ph tube is much smaller. It's weird having that tube in your throat and eating and drinking. Turns out I do not have GERD. So, in February I will see an ENT at Mayo for them to take my chronic cough source.

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@adkindt - how are you doing? Did your doctors figure out the source of your coughing?

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Lisa Lucier, Moderator | @lisalucier | Feb 16 3:08pm
In reply to @cherbear "My brother went to a great Respiratory Dr after many treatments that never worked and he..." + (show)
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My brother went to a great Respiratory Dr after many treatments that never worked and he suffered until he started getting injections in tummy every 2 weeks for this allergic reaction. Non stop cough my poor brother & he’s okay now! See a Respiratory Dr & ask about allergy or vagus nerve but mention injection on tummy every week then every / weeks etc. A nurse comes to hive it but anyone can be taught to do it themselves. He’s a new man. God love him. Keep searching allergies bad immune system cough so bad. It’s to build immune system. Immunotherapy not sure but Respiratory Dr figured it out without allergy testing.. miracles happen. Not sure if that’s your issue but keep searching.

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@cherbear - what was the injection your brother has gotten in his tummy that helped his coughing?

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Shar | @cherbear | Feb 14 9:05pm

My brother went to a great Respiratory Dr after many treatments that never worked and he suffered until he started getting injections in tummy every 2 weeks for this allergic reaction. Non stop cough my poor brother & he’s okay now! See a Respiratory Dr & ask about allergy or vagus nerve but mention injection on tummy every week then every / weeks etc. A nurse comes to hive it but anyone can be taught to do it themselves. He’s a new man. God love him. Keep searching allergies bad immune system cough so bad. It’s to build immune system. Immunotherapy not sure but Respiratory Dr figured it out without allergy testing.. miracles happen. Not sure if that’s your issue but keep searching.

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1 reply
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scy | @scy | Apr 14, 2025
In reply to @scy "Who prescribed Primary dr Or specialist Had this cough 2 yrs" + (show)
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Who prescribed
Primary dr
Or specialist
Had this cough 2 yrs

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Thx
Will ask
My dr re this
I don’t match with many medications
Esp strong ones
Started taking liquid benedrol

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scy | @scy | Apr 12, 2025
In reply to @agikam "Started to take VOQUEZNA for silent reflux. It is much better than other OTC, I cough..." + (show)
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Started to take VOQUEZNA for silent reflux. It is much better than other OTC, I cough less 20 mg in the mornings, in evenings
I have liquid Gaviscon .

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Who prescribed
Primary dr
Or specialist
Had this cough 2 yrs

REPLY
1 reply
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Lisa Lucier, Moderator | @lisalucier | Apr 11, 2025
In reply to @agikam "Started to take VOQUEZNA for silent reflux. It is much better than other OTC, I cough..." + (show)
Profile picture for agikam @agikam

Started to take VOQUEZNA for silent reflux. It is much better than other OTC, I cough less 20 mg in the mornings, in evenings
I have liquid Gaviscon .

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Hi, @agikam - if you've not already, you might check out this discussion on silent reflux in the Mayo Clinic Connect Digestive Health support group:

-Silent Reflux or LPR
https://connect.mayoclinic.org/discussion/silent-reflux-or-lpr/
So is your cough lessened or gone with taking the vonoprazan (Voquezna) and the liquid aluminum hydroxide and magnesium trisilicate (Gaviscon), agikam? How did your doctor come to the diagnosis of silent reflux?

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agikam | @agikam | Apr 11, 2025
In reply to @adkindt "Through various articles I found, silent reflux can cause a host of issues, including chronic cough,..." + (show)
Profile picture for adkindt @adkindt

Through various articles I found, silent reflux can cause a host of issues, including chronic cough, post nasal drip, and even mimic asthma. I hope the next tests I have prove silent reflux, then get more effective treatment than OTC meds

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Started to take VOQUEZNA for silent reflux. It is much better than other OTC, I cough less 20 mg in the mornings, in evenings
I have liquid Gaviscon .

REPLY
2 replies
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scy | @scy | Apr 2, 2025

I cannot take predisone
I get very anxious
No one knows what causing dry persistent cough
Dr do not check if viral or bacterial
Think allergy related as it started during mn very dry snowless winter 2024?
Dr on tv said that long winter 2024 many got this and that he did not recommend any treatment
He actually said “ nothing worked”
Bizarre
To me this is a common ailment which needs a experienced
provider
Acupuncture helps
Problem- I can’t take many drugs with many ingredients
A calmer steroid?
Allergy med is singular now

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Lisa Lucier, Moderator | @lisalucier | Apr 2, 2025
In reply to @scy "Also had throat scoped by ENT He saw acid Put me on low dose of anti..." + (show)
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Also had throat scoped by ENT
He saw acid
Put me on low dose of anti acid
Am already on low dose Prilosec
I am not familiar with the procedure or treatment you had at Mayo
Mine is pharyngeal but maybe more
Wish dr could treat in their offices like the 70s
Had many ear treatments like this fr ENT at U of Mn

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Hi, @scy - I get it that you just don't enjoy coughing.

If I understand correctly, you've tried various things for coughing like azithromycin (Z-Pack liquid), acetaminophen (Tylenol), prednisone, warm beverages, cold and warm packs, omeprazole (Prilosec) and acupuncture. Have any of these treatments brought you some relief for your coughing?

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scy | @scy | Apr 1, 2025
In reply to @scy "Had chronic cough 1 yr Never had before Dr said many had from long dry snowless..." + (show)
Profile picture for scy @scy

Had chronic cough 1 yr
Never had before
Dr said many had from long dry snowless winter
Ribs hurt
No bronchial
Had RSV vax
Was on zpac liquid
Tylenol prescription
Now predizone because he thinks it’s more of a allergy issue ( I sweat fr this )
Just don’t enjoy coughing
Drink warm beverages
Use cold and warm packs and acupuncture
Seems like a easy thing to treat
Not
Don’t know how they tell if it’s allergic viral or bacterial but viruses can reoccur

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Also had throat scoped by ENT
He saw acid
Put me on low dose of anti acid
Am already on low dose Prilosec
I am not familiar with the procedure or treatment you had at Mayo
Mine is pharyngeal but maybe more
Wish dr could treat in their offices like the 70s
Had many ear treatments like this fr ENT at U of Mn

REPLY
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