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Anti-mag peripheral neuropathy and BTK inhibitors
I understand that a few doctors in the US are prescribing BTK inhibitors to treat anti-may pn and have had some success. Has anyone received such treatment and if so, will share name and contact information of your doctor? Thanks in advance. Walter Cooke
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Gregg, thanks very much for your reply. Walter
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1 ReactionWalter,
I didn’t see Gregg’s response. Would you mind sharing?
Thks.
Frank ( living with anti-mag)
Gregg's response seems to have disappeared or maybe I cannot find it. Will keep looking. As I recall his response, said he had been on BTK inhibitors for 3 years which had removed the pain but not the numbness. Walter Cooke
Sorry, had an account snafu. Yes, I have been on zanubrutinib (“Brukinsa”) for three years. Numbers have all dropped, and progression seems to have noticeably slowed. Areas that were numb before seem a bit more numb now, but not alarmingly so. — Gregg